Siblings of children with cancer – Their experiences of participating in a person-centered support intervention combining education, learning and reflection: Pre- and post-intervention interviews

Nolbris, Margaretha Jenholt; Ahlström, Britt Hedman

doi:10.1016/j.ejon.2014.01.002

Cited by 34 publications

(38 citation statements)

References 39 publications

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“…Thirty‐six papers examined emotional and behavioral functioning (21 quantitative, 14 qualitative, 1 mixed‐methods) . Three were low in sibling‐specific scientific merit (1 quantitative, 2 qualitative) …”

Section: Resultsmentioning

confidence: 99%

“…Fifteen qualitative or mixed methods studies reported on psychological distress among pediatric or mixed pediatric/young adult (<25 years) samples. Siblings feel overwhelmed by strong negative emotions including fear, anxiety, worry, shock, jealousy, loneliness, isolation, sadness, depression, anger, guilt, and helplessness . Parents also reported negative behaviors (eg, lying) in siblings .…”

Section: Resultsmentioning

confidence: 99%

“…In response to the family's continuous attention to cancer‐related practical and emotional demands, siblings reported losing a sense of self as separate from cancer and shifting toward defining themselves as the brother or sister of the child with cancer . They reported unmet needs regarding knowledge of cancer, and their limited understanding of cancer amplified feelings of guilt and anxiety about the future …”

Section: Resultsmentioning

confidence: 99%

“…Thirty papers reported on family functioning (3 quantitative, 25 qualitative, 2 mixed‐methods) . Seven qualitative papers were low in sibling‐specific scientific merit …”

Section: Resultsmentioning

confidence: 99%

“…These efforts were facilitated by home‐based (vs clinic‐based or hospital‐based) care, which enabled fewer family disruptions, greater parental presence, and increased sibling involvement in care . Positive family changes included increased family closeness or cohesion due to the shared goal of overcoming cancer, more appreciation for the family, and greater sibling sensitivity . Bereaved siblings also reported increased family communication and emotional disclosure …”

Section: Resultsmentioning

confidence: 99%

See 4 more Smart Citations

Psychosocial functioning and risk factors among siblings of children with cancer: An updated systematic review

et al. 2018

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Despite methodological limitations, research indicates a strong need for sibling support. Clinical recommendations include identifying at-risk siblings and developing interventions to facilitate family communication and increase siblings' social support, cancer-related knowledge, and treatment involvement. Future longitudinal studies focusing on mechanisms and moderators of siblings' adjustment would inform timing and targets of psychosocial care.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

“…Thirty papers reported on family functioning (3 quantitative, 25 qualitative, 2 mixed‐methods) . Seven qualitative papers were low in sibling‐specific scientific merit …”

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

See 3 more Smart Citations

Psychosocial functioning and risk factors among siblings of children with cancer: An updated systematic review

et al. 2018

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Consensus on the items for early identification of unmet psychosocial needs of siblings of children with cancer and blood disease: A modified Delphi method

Kaneko,

Niinomi,

Nonoyama

et al. 2023

Nursing Open

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AimTo reach a consensus on question items for early identification of unmet psychosocial needs of school‐aged siblings of children with cancer and blood disease.DesignModified Delphi method.MethodsTwenty‐three studies were reviewed to extract question items, which were classified into seven categories. A total of 39 question items were selected for this study. The selected question items were carefully considered using the modified Delphi method. The participants were 28 medical staff from a childhood cancer hub hospital and 20 sibling support group staff members. The first round consisted of a questionnaire (n = 48); the second, a focus group interview (n = 8) and the third, another questionnaire (n = 8). The first and third rounds used a 5‐point Likert scale. This survey was conducted from July to October 2021.ResultsA total of 38, 26, and 24 question items were included in the first, second, and third rounds respectively. A total of 24 question items were extracted using the modified Delphi method to identify siblings' unmet psychosocial needs: relationship with family members, 3; daily life issues, 4; stress, 6; emotions, 3; information, 3; relationships with medical staff, 1 and social and medical resources, 4. Seven categories and 24 question items were confirmed as items for identifying the unmet psychosocial needs of school‐aged siblings of children with cancer and blood disease.

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Supporting Siblings as a Standard of Care in Pediatric Oncology

Gerhardt

Lehmann

Long

et al. 2015

Pediatric Blood & Cancer

109

179

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In this study, evidence is provided for supporting siblings as a standard of care in pediatric oncology. Using Medline, PsycInfo, and CINAHL, a systematic search of articles published over the past two decades about siblings of children with cancer was conducted. A total of 125 articles, which were primarily descriptive studies, were evaluated by the four investigators using Grading of Recommendations Assessment, Development, and Evaluation (GRADE) criteria. There is moderate-quality evidence, as well as support from community stakeholders, to justify a strong recommendation that siblings of children with cancer should be provided with psychosocial services and that parents and professionals are advised about how to meet siblings' needs. Pediatr Blood Cancer 2015;62:S750-S804. C 2015 Wiley Periodicals, Inc.Key words: adjustment; cancer; intervention; pediatric; sibling INTRODUCTIONSiblings are exposed to significant stress when a child is diagnosed with cancer. Concern about the ill child, disruptions in family roles and routines, decreased contact with family members, and additional demands for caregiving or other responsibilities in the home are common. [1,2] In some cases, siblings are also called upon to serve as a donor for stem cell transplant, which can introduce other ethical and psychosocial concerns. [3] Taken together, these unique challenges leave siblings of children with cancer at risk for acute and long-term psychosocial difficulties. However, there are no current evidence-based standards for the supportive care of siblings of children with cancer.Although severe psychopathology is rare, several reviews suggest that some siblings exhibit symptoms of anxiety, depression, posttraumatic stress; lower quality of life and healthcare utilization; and disruption to academic and social functioning. [1,2,4,5] Most difficulties improve over the first year after diagnosis, but they may resurface or worsen with declines in the ill child's health or death.[6] Siblings can also demonstrate resilient outcomes, such as posttraumatic growth. [4,7] This variability in adjustment underscores the need for accurate screening to identify risk and protective factors and to provide appropriate services for siblings vulnerable to difficulties. Unfortunately, siblings have unmet needs and psychosocial support may be limited. [8,9] Further, in a large survey of professionals from three pediatric oncology organizations, only 25% reported that they provide psychosocial services to siblings.[10] Thus, it is critically important to establish evidence-based standards of care for siblings of children with cancer in efforts to encourage the provision of more consistent and comprehensive services for this population. METHODSThis review was performed as a part of the collaborative effort, Standards for Psychosocial Care of Children with Cancer and Their Families. A full description of the methods used to develop each standard is in the introduction to this special issue.[11] The literature search for this standard used three ...

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Siblings of children with cancer – Their experiences of participating in a person-centered support intervention combining education, learning and reflection: Pre- and post-intervention interviews

Cited by 34 publications

References 39 publications

Psychosocial functioning and risk factors among siblings of children with cancer: An updated systematic review

Psychosocial functioning and risk factors among siblings of children with cancer: An updated systematic review

Consensus on the items for early identification of unmet psychosocial needs of siblings of children with cancer and blood disease: A modified Delphi method

Supporting Siblings as a Standard of Care in Pediatric Oncology

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