Siblings of Adults with Mental Retardation or Mental Illness: Effects on Lifestyle and Psychological Well-Being

Seltzer, Marsha Mailick; Greenberg, Jan S.; Krauss, Marty Wyngaarden; Gordon, Richard; Judge, Katherine S.

doi:10.2307/585099

Cited by 99 publications

(73 citation statements)

References 28 publications

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“…This theme also incorporates the concept that current / future partners will have to accept the disabled sibling and accommodate them so some extent. Previous research indicates that having a learning disabled sibling does affect sibling lives in areas such as career choice, partner choice, decision to have children, plans for the future and feelings about people who have a disability (Seltzer et al 1997) and the expectation to take on a care or "overseer" role is reiterated by Bigby (2007) and Rigney (2009) …”

Section: ) Siblings Are Worried About the Future Futures Planning Imentioning

confidence: 99%

Futures planning, parental expectations and sibling concern for people who have a learning disability

Davys

Mitchell

Haigh

2010

J Intellect Disabil

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Abstract:The aim of this questionnaire was to explore the existence of future plans, parental expectation and sibling concern regarding people who have a learning disability. A questionnaire was sent via email to siblings of people who have a learning disability. 21 completed questionnaires were returned and responses were anaylsed using descriptive statistics and thematic analysis.A full discussion regarding sibling support was reported to have taken place by 12 (57%) of respondents, 7 (33%) stated this discussion had not taken place and 2 (9%) were unsure. 12 (57%) of participants reported no clear future plan however where a plan did exist, 7 (33%) of respondents claimed it was fully agreeable to both them and their parents. 11 (52%) of respondents reported no difference between their wishes regarding their future role and parental wishes. Key themes generated were; satisfaction with services, parental influence, sibling concern about the future, futures planning, the impact of the disabled person upon sibling lives and siblings needs.Further qualitative exploration into the personal wishes, reality and parental expectations for future support of siblings of adults who have a learning disability is required.Keywords: adult siblings, futures planning, learning disability, parental expectation Abstract word count 1862

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Section: ) Siblings Are Worried About the Future Futures Planning Imentioning

confidence: 99%

Futures planning, parental expectations and sibling concern for people who have a learning disability

Davys

Mitchell

Haigh

2010

J Intellect Disabil

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“…This role arises when there are multiple siblings in a family but one assumes greatest responsibility for the disabled person (Orsmond and Seltzer 2000;Heller & Arnold 2010). The most likely profile for this role is that of an older sister who lives within one hour's drive from the family home and is likely to have at least weekly contact, with the disabled person (Seltzer et al 1997) which introduces the influence of gender, proximity and life situation upon sibling uptake of roles (Jokinen 2008;Heller & Arnold 2010).…”

Section: Introductionmentioning

confidence: 99%

Adult Siblings Consider the Future: Emergent Themes

Davys

Mitchell

Haigh

2015

Research Intellect Disabil

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“…Trends in life expectancy suggest that adults in this population will increasingly outlive their parents and rely on siblings or other relatives for care (Seltzer, Greenberg, Krauss, Gordon & Judge, 1997). Arguably, those charged with planning residential services can best meet current or future requirements if they are aware of the strengths and limits of this intra-generational form of family care.…”

Section: Introductionmentioning

confidence: 99%

Sources of Stress Among Adult Siblings of Irish people with Intellectual Disability

Egan

Walsh

2001

The Irish Journal of Psychology

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Siblings play an important role in the lives of their brothers and sisters with intellectual disability when they reside in the parental home. Many assume a primary caregiving role following the death of their parents or when parents are no longer able to give care. Sources of stress reported by 39 adult siblings of lrish men and women with intellectual disability were explored.Siblings who were primary caregivers were older and earned less income than their counterparts in a second group who lived in the parental home and who had an especially close bond with their brother or sister with intellectual disability. Perceived social support as well as their brother or sister's independence were significantly related to the stress reported by siblings on the short form of the QRS-F. Neither levels of reported stress nor the presence of a plan for their relative's future distinguished the two groups of siblings.

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Siblings of Adults with Mental Retardation or Mental Illness: Effects on Lifestyle and Psychological Well-Being

Cited by 99 publications

References 28 publications

Futures planning, parental expectations and sibling concern for people who have a learning disability

Futures planning, parental expectations and sibling concern for people who have a learning disability

Adult Siblings Consider the Future: Emergent Themes

Sources of Stress Among Adult Siblings of Irish people with Intellectual Disability

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