Should Neonatal Palliative Care Take Place at Home, Rather Than the Hospital?

Cavaliere, Terri A.

doi:10.1097/01.nmc.0000287994.13179.43

Cited by 11 publications

(8 citation statements)

References 1 publication

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“…Reports on palliative care in perinatology usually concern hospital setting, in particular NICU [ 14 – 18 ]; however numerous publications stress a need for development of home PPC [ 19 – 22 ]. Very few publications worldwide are devoted to the problem of suggesting home palliative care to a newborn with a lethal defect [ 18 , 22 – 27 ]. The analysis of structure of patients treated at HHChLR between 2005 and 2011 revealed (unpublished data) that neonates and infants are a growing group of patients referred to palliative care.…”

Section: Discussionmentioning

confidence: 99%

Perinatal Palliative Care: Barriers and Attitudes of Neonatologists and Nurses in Poland

Korzeniewska-Eksterowicz

Respondek-Liberska

Przysło³

et al. 2013

The Scientific World Journal

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Objective. To identify barriers and personnel attitudes towards realization of palliative care principles in neonatological units. Study Design. An anonymous questionnaire was posted to all heads of departments and head nurses of all the 27 neonatological units in the Lodz area. Results. We received 46 (85%) questionnaires. Final analysis comprised 42 properly filled-in questionnaires (by 22 doctors and 20 nurses). In case of prenatal diagnosis of a lethal defect, 77.27% of doctors and 65% of nurses opted for informing the mother also about the possibility of pregnancy continuation and organization of palliative care after delivery. Most of respondents accepted conditions for abortion pointed by the Polish law. The most common barriers pointed out by both groups were insufficient knowledge of the personnel on palliative medicine and family preference for life sustaining treatment. Conclusions. Understanding attitudes of personnel towards palliative care and identification of barriers are a starting point for future efforts to improve the system of neonatological care.

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Section: Discussionmentioning

confidence: 99%

Perinatal Palliative Care: Barriers and Attitudes of Neonatologists and Nurses in Poland

Korzeniewska-Eksterowicz

Respondek-Liberska

Przysło³

et al. 2013

The Scientific World Journal

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“…Staff suggested that PICU was not an ideal environment for EOLC as privacy could not be assured and a unit where a child and family could stay together would be beneficial. The concept of PICU providing an inadequate environment for effective EOLC frequently occurs in current literature (Cavaliere, ; Longden, ). Wolff and Wolff () argue that keeping a child in hospital for EOLC results in them being in an unfamiliar environment and deprives them from contact with family, friends and pets.…”

Section: Introductionmentioning

confidence: 99%

Caring until the end: a systematic literature review exploring Paediatric Intensive Care Unit end‐of‐life care

Howes

2014

Nursing in Critical Care

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Although the number of relevant articles is limited, a wide range of challenges facing children, parents and staff are highlighted, whilst generally supporting the facilitation of transferring children to their homes or hospice for withdrawal of intensive care and continuing EOLC. Further research is required, particularly regarding long-term implications, legal issues and the effectiveness of clinical protocols.

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“…6 There are pros and cons to various location options for neonatal endof-life care. 7,8 Some units have endeavored to create protocols and checklists to assist clinicians in providing the best possible care in transferring a child to home or hospice for compassionate extubation. 9,10 There are also guidelines available that outline options through a framework to plan the care of home extubation.…”

Section: Drs Loganathan Simpson Boutcher Cooper and Jackson Commentmentioning

confidence: 99%

Home Extubation in a Neonate

Loganathan¹,

Simpson²,

Boutcher³

et al. 2018

Pediatrics

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End-of-life care for many infants involves the withdrawal of mechanical ventilation. Usually this takes place in the hospital environment, but sometimes parents request that their infant dies at home. Facilitating this has significant practical and resource implications and raises both logistical and ethical questions. In this article, we report a neonatal case involving home extubation, explaining the processes involved as well as providing an ethical context.

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Should Neonatal Palliative Care Take Place at Home, Rather Than the Hospital?

Cited by 11 publications

References 1 publication

Perinatal Palliative Care: Barriers and Attitudes of Neonatologists and Nurses in Poland

Perinatal Palliative Care: Barriers and Attitudes of Neonatologists and Nurses in Poland

Caring until the end: a systematic literature review exploring Paediatric Intensive Care Unit end‐of‐life care

Home Extubation in a Neonate

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