Short communication: reliability and validity of the UKU Side Effect Rating Scale for adults with intellectual disabilities

Tveter, Anne Louise; Bakken, Trine Lise; Røssberg, Jan Ivar; Bech-Pedersen, Egon; Bramness, Jørgen G.

doi:10.1108/amhid-10-2015-0051

Cited by 5 publications

(7 citation statements)

References 12 publications

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“…Adams and Shah (2016) discussed the importance of recognising adverse effects in this population and the requirement for adverse effect rating scales for people with an intellectual disability. The Udvalg for Kliniske Undersøgelser, UKU (Lingjaerde et al, 1987) side effect rating scale has been adapted for adults with intellectual disabilities UKU-SERS-ID (Tveter et al, 2016), this validated tool that can be implemented into practice areas where adverse effect of psychotropic medications is of concern. It is vital that nurses working in forensic settings are adequately trained to report on the risks and benefits impact of the medications they are administering.…”

Section: Self-identified Clinical Training Need: the Environment And Behavioural Managementmentioning

confidence: 99%

Training needs analysis of nurses caring for individuals an intellectual disability and or autism spectrum disorder in a forensic service

Burke

Cocoman

2020

JIDOB

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Purpose Examining the education and training needs of forensic nurses is paramount as services move from the older institutions to new care settings. The purpose of this study was to identify Irish Forensic nurses perceived deficits in their knowledge and skills to assist them to provide effective seamless care for individuals with an intellectual disability within their forensic mental health service, so that appropriate training could be provided. Design/methodology/approach Training needs analysis (TNA) procedures are used as a way of establishing the continuing processional development of staff, as they seek to identify the gaps between the knowledge and skills of an individual and the need for further training. A training needs tool developed by Hicks and Hennessy (2011) was used and completed by nurses working in an Irish forensic mental health service. A total of 140 surveys were circulated and 74 were completed (51 per cent response). Findings The top priority training needs identified were for additional training in research and audit and in the use of technology. Other self-identified training needs included additional training in behavioural management for challenging behaviour, understanding mental health and intellectual disability and dual diagnosis, training in enhancing communication skills and how to work with patients who have an intellectual disability patients specific training on autistic spectrum disorders and a guide and template for advance individual care planning and for caring for the physical health needs and promoting the physical health needs of these patients. Originality/value Despite there being a vast range of training issues identified, the majority of nurses appear to have a clear idea of their training needs to ensure the provision of seamless care for individuals with an intellectual disability within a forensic mental health setting. This TNA has identified the specific needs of nursing staff working at different positions across the interface of intellectual disability and forensic mental health care.

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Section: Self-identified Clinical Training Need: the Environment And Behavioural Managementmentioning

confidence: 99%

Training needs analysis of nurses caring for individuals an intellectual disability and or autism spectrum disorder in a forensic service

Burke

Cocoman

2020

JIDOB

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“…One article describes a screening tool for detection of psychotropic side effects developed for patients with ID. This tool was developed at the Oslo University Hospital in Norway (Tveter et al, 2016). One article encompasses evaluations from the use of psychoeducational multi-family groups with patients with ID (Bakken et al, 2017).…”

Section: Resultsmentioning

confidence: 99%

“…There have been a number of projects addressing mental health in ID in Norway over the last two decades, and especially within the last decade, of which three examples will follow. First, a project on detecting side effects from psychotropic medication has been conducted by a regional department at the Oslo University Hospital (Tveter et al, 2016). This project is in its last phase, collecting data from patients with ID using psychotropic medication in both specialized mental health services, and in habilitation services (Tveter et al, 2016).…”

Section: Resultsmentioning

confidence: 99%

“…First, a project on detecting side effects from psychotropic medication has been conducted by a regional department at the Oslo University Hospital (Tveter et al, 2016). This project is in its last phase, collecting data from patients with ID using psychotropic medication in both specialized mental health services, and in habilitation services (Tveter et al, 2016). Second, a nation-wide project on mental health in people with ID and additional autism spectrum disorders (ASD) has been collecting data since 2010 (Helverschou et al, 2017).…”

Section: Resultsmentioning

confidence: 99%

See 1 more Smart Citation

Mental health services for adolescents and adults with intellectual disabilities in Norway: a descriptive study

Bakken

Evensen

Bjørgen

et al. 2018

AMHID

Self Cite

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Purpose The purpose of this paper is to present and discuss mental health services for people with intellectual disability (ID) in Norway. Design/methodology/approach A literature review and a survey were conducted to map services for people with ID and mental health problems in Norway. Findings The results were sparse and confirmed what is already known among clinicians working with these patients. The Norwegian services are fragmented and there are geographical differences. Research limitations/implications There are no special services for children with ID developing mental illness. For offenders with ID, a national unit assesses and follows up, also when the person is sentenced to compulsory care and services are provided in their home municipality. Practical implications More data about both the patients and the services are needed in order to improve mental health services for people with ID in Norway. Originality/value This paper describes mental health services for people with ID in Norway.

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“…These regular phone calls will be carried out every two days during the whole dose titration phase until the participant reaches a stable dose for the open-label phase. The study team will also check whether the participant shows any physical or mental changes believed to be attributed to adverse events based on the UKU side effect rating scale [68], and advise the participant and his/her/their caregivers accordingly on the next step of titration. Dose adjustments are performed until the participant reaches the maximum permitted dose of 1 mg twice daily or experiences intolerable adverse events believed to be related to nabilone.…”

Section: • Concomitant Medication(s)mentioning

confidence: 99%

Nabilone treatment for severe behavioral problems in adults with intellectual and developmental disabilities: Protocol for a phase I open-label clinical trial

Lin

Abi-Jaoude²,

Desarkar³

et al. 2023

PLoS ONE

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Severe behavioral problems (SBPs) are common contributors to morbidity and reduced quality of life for adults with intellectual and developmental disabilities (IDD) and their families. Current medications for SBPs show equivocal effectiveness and are associated with a high risk of side effects. New and safe treatments are urgently needed. While preliminary studies suggest that medical cannabinoids, particularly the synthetic cannabinoid nabilone, are plausible treatment options for SBPs in adults with IDD, data on the tolerability, safety and efficacy of nabilone in this population has never been investigated. Thus, we propose this first-ever Phase I pre-pilot open-label clinical trial to obtain preliminary data on the adherence, tolerability and safety profiles of nabilone in adults with IDD, and explore changes in SBPs pre- to post-treatment. We hypothesize that nabilone has favorable tolerability and safety profile for adults with IDD. The preliminary results will inform the next-stage pilot randomized controlled trials, followed by fully powered clinical trials eventually. This research helps fill the evidence gap in the use of cannabinoids in individuals with IDD to meet the needs of patients, families, and service providers.

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Short communication: reliability and validity of the UKU Side Effect Rating Scale for adults with intellectual disabilities

Cited by 5 publications

References 12 publications

Training needs analysis of nurses caring for individuals an intellectual disability and or autism spectrum disorder in a forensic service

Training needs analysis of nurses caring for individuals an intellectual disability and or autism spectrum disorder in a forensic service

Mental health services for adolescents and adults with intellectual disabilities in Norway: a descriptive study

Nabilone treatment for severe behavioral problems in adults with intellectual and developmental disabilities: Protocol for a phase I open-label clinical trial

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