Sharing information about diagnosis and outcome of first‐episode psychosis in patients presenting to early intervention services

Farooq, Saeed; Green, Debra J.; Singh, Swaran P.

doi:10.1111/eip.12670

Cited by 5 publications

(11 citation statements)

References 11 publications

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“…The way information on diagnosis, treatment and prognosis is communicated, can impact a person’s recall and understanding of the diagnosis, the treatment options and prognosis, and how they accept the diagnosis and treatment plan, which then ultimately can affect the process of recovery and long-term outcome ( 9 ). When information about their illness is not communicated adequately individuals may feel confused and perplexed ( 10 ). As a consequence, communicating diagnostic information relating to psychotic disorders in particular is a complex task for mental health workers ( 9 , 10 ).…”

Section: Introductionmentioning

confidence: 99%

“…When information about their illness is not communicated adequately individuals may feel confused and perplexed ( 10 ). As a consequence, communicating diagnostic information relating to psychotic disorders in particular is a complex task for mental health workers ( 9 , 10 ). Especially in the early phase of illness, when individuals receive information on their disorder for the first time, providing clear, comprehensive and concise information in a respectful way seems crucial.…”

Section: Introductionmentioning

confidence: 99%

“…A recent study on clinicians working in Early Intervention Services (EIS) highlights the challenges posed in discussing the diagnosis of FEP ( 10 ). Most clinicians identified a number of barriers, such as diagnostic uncertainty, stigma and the variations in outcome.…”

Section: Introductionmentioning

confidence: 99%

“…Most clinicians identified a number of barriers, such as diagnostic uncertainty, stigma and the variations in outcome. Therefore, the term “psychosis” or FEP was preferred ( 10 ). Because cognitive deficits, impaired metacognition and insight can interfere with the communication and interpretation of information, the need for information on the diagnosis of FEP for those experiencing psychotic symptoms is completely different from other serious disorders ( 2 , 10 , 11 ).…”

Section: Introductionmentioning

confidence: 99%

“…Therefore, the term “psychosis” or FEP was preferred ( 10 ). Because cognitive deficits, impaired metacognition and insight can interfere with the communication and interpretation of information, the need for information on the diagnosis of FEP for those experiencing psychotic symptoms is completely different from other serious disorders ( 2 , 10 , 11 ). In line with the preferred term psychosis or FEP, it has been debated whether the term schizophrenia should be replaced with psychosis spectrum syndrome ( 12 – 14 ).…”

Section: Introductionmentioning

confidence: 99%

See 4 more Smart Citations

Communicating diagnoses to individuals with a first episode psychosis: A qualitative study of individuals perspectives

Huurman

Pijnenborg²,

Sportel³

et al. 2023

Front. Psychiatry

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BackgroundReceiving the label of a psychotic disorder influences self-perception and may result in negative outcomes such as self-stigma and decreased self-esteem. The way the diagnosis is communicated to individuals may affect these outcomes.AimsThis study aims to explore the experiences and needs of individuals after a first episode of psychosis with regard to the way in which information about diagnosis, treatment options and prognosis is communicated with them.Design and methodsA descriptive interpretative phenomenological approach was used. Fifteen individuals who experienced a first episode of psychosis participated in individual semi-structured open-ended interviews on their experiences and needs regarding the process of providing information about diagnosis, treatment options and prognosis. Inductive thematic analysis was used to analyze the interviews.ResultsFour recurring themes where identified (1) timing (when); (2) content (what); and (3) the way information is provided (how). Individuals also reported that the provided information could elicit an emotional reaction, for which they would require specific attention, therefore the fourth theme is (4) reactions and feelings.ConclusionThis study provides new insights into the experiences and specific information needed by individuals with a first episode of psychosis. Results suggest that individuals have different needs regarding the type of (what), how and when to receive information about diagnosis and treatment options. This requires a tailor-made process of communicating diagnosis. A guideline on when, how and what to inform, as well as providing personalized written information regarding the diagnosis and treatment options, is recommended.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

Communicating diagnoses to individuals with a first episode psychosis: A qualitative study of individuals perspectives

Huurman

Pijnenborg²,

Sportel³

et al. 2023

Front. Psychiatry

View full text Add to dashboard Cite

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Patients’, carers’ and clinicians’ attitudes towards alternative terms to describe the at-risk for psychosis state

Polari

Street

Conus

et al. 2021

Schizophrenia Research

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Leaving child and adolescent mental health services (CAMHS): the impact of diagnosis and medication management on optimal discharge or transition

Street,

Ni Chinseallaigh,

Holme

et al. 2023

MHRJ

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Purpose This study aims to explore how young people in child and adolescent mental health services (CAMHS) in the UK, Ireland, The Netherlands and Croatia, experienced leaving CAMHS and identified a range of factors impeding optimal discharge or transition to adult mental health services (AMHS). Design/methodology/approach Interviews about discharge or transition planning, including what information was provided about their ongoing mental health needs, undertaken with 34 young people aged 17–24, all previous or current attendees of CAMHS. Some interviews included accounts by parents or carers. Data were thematically analysed. Findings A number of previously well-documented barriers to a well-delivered discharge or transition were noted. Two issues less frequently reported on were identified and further discussed; they are the provision of an adequately explained, timely and appropriately used diagnosis and post-CAMHS medication management. Overall, planning processes for discharging or transitioning young people from CAMHS are often sub-optimal. Practice with regard to how and when young people are given a diagnosis and arrangements for the continuation of prescribed medication appear to be areas requiring improvement. Originality/value Study participants came from a large cohort involving a wide range of different services and health systems in the first pan-European study exploring the CAMHS to adult service interface. Two novel and infrequently discussed issues in the literature about young people’s mental health transitions, diagnosis and medication management were identified in this cohort and worthy of further study.

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Sharing information about diagnosis and outcome of first‐episode psychosis in patients presenting to early intervention services

Cited by 5 publications

References 11 publications

Communicating diagnoses to individuals with a first episode psychosis: A qualitative study of individuals perspectives

Communicating diagnoses to individuals with a first episode psychosis: A qualitative study of individuals perspectives

Patients’, carers’ and clinicians’ attitudes towards alternative terms to describe the at-risk for psychosis state

Leaving child and adolescent mental health services (CAMHS): the impact of diagnosis and medication management on optimal discharge or transition

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