Sharing decisions in cancer care

Gattellari, Melina; Butow, Phyllis; Tattersall, Martin H. N.

doi:10.1016/s0277-9536(00)00303-8

Cited by 443 publications

(409 citation statements)

References 41 publications

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“…This suggests when language is a barrier, some doctors may revert to a paternalistic model of care, overlooking their patient's desire for involvement. However, inconsistency between patient decision-making preferences and experiences is not unique to migrants, with a number of studies in a general breast cancer population finding less than half of patients (50% and 34% respectively), reach their desired level of participatory communication regarding decision-making [16][17][18]. Doctors therefore need to place greater emphasis on determining patient preferences for involvement, and take additional time during such discussions with migrant patients, due to the challenge of language differences.…”

Section: Discussionmentioning

confidence: 99%

Treatment decision making experiences of migrant cancer patients and their families in Australia

Shaw¹,

Zou²,

Butow³

2015

Patient Education and Counseling

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Objective: To explore treatment decision-making experiences of Australian migrants with cancer from Arabic, Chinese, or Greek backgrounds and their relatives.Methods: 73 patients and 18 caregivers from cancer support groups and oncology clinics participated in either a focus group (n=14) or semi-structured interview (n=21) conducted in the participant's own language. Participant treatment decision-making preferences were discussed as part of patients' overall treatment experience and a thematic analysis conducted.Results: Four main themes emerged from the data:(1) perceived role of the patient in decision-making;(2) access to information and the impact of language; (3)cultural influences (4)family involvement. The majority of participants experienced passive involvement during treatment consultations, but expressed a desire for greater involvement. Language rather than culture was a greater obstacle to active participation. Difficulty communicating effectively in English was the most significant barrier to participation in treatment decisions. To overcome language challenges, participants actively sought information from alternative sources. Conclusion and practice implications:This study provides new insights into the influence of language and culture on the treatment decision-making experiences of migrants with cancer and their families within the Australian cancer care system. To reduce health disparities doctors need to address language difficulties and be aware of cultural differences.

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Section: Discussionmentioning

confidence: 99%

Treatment decision making experiences of migrant cancer patients and their families in Australia

Shaw¹,

Zou²,

Butow³

2015

Patient Education and Counseling

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“…For instance, several families expressed frustration because they felt that some care options were unavailable, such as fetal monitoring or cesarean section. Participation in medical decision-making in other clinical situations has been shown to improve satisfaction 29 and could possibly improve the experience of families faced with abnormal prenatal diagnosis. Care plans should be developed with as much family input as possible, balancing safety, resource use and family preferences.…”

Section: Discussionmentioning

confidence: 99%

The health-care experiences of families given the prenatal diagnosis of trisomy 18

Walker

Miller²,

Dalton

2007

J Perinatol

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Objective: The objective of this study was to examine parent-reported experiences in the health care system after receiving the prenatal diagnosis of trisomy 18 and to identify factors that contribute to satisfaction with care.Study Design: Nineteen families who received the diagnosis between 2002 and 2005 were given semistructured telephone interviews. Of the 19 families, 11 continued the pregnancy while the remaining 8 chose induced abortion. Classical content analysis was utilized to identify themes among subject responses. Result:We identified several specific aspects of care as key in either being highly satisfied or dissatisfied: expressions of empathy from provider, continuity of care, communication, valuing the fetus and participation in medical decision-making.Conclusions: Aspects of care that were identified as reasons for dissatisfaction are potentially modifiable by training, education or teambased approaches. Further studies are necessary to determine how we can improve the quality of services during prenatal diagnosis.

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“…With respect to patient perceptions of provider behavior, recent research has suggested that patient perceptions of more collaborative communication between patient and provider (regardless of actual provider behavior or communication style) may be associated with more positive outcomes such as blood pressure control (Naik, Kallen, Walder, & Street, 2008). In addition, perceptions of greater information-sharing and collaborative decision-making have also been associated with greater satisfaction with medical care for among parents of pediatric patients (Wanzer, Booth-Butterfield, & Gruber, 2004) and among patients with cancer (Gattellari, Butow, & Tattersall, 2001). With respect to variability in patient preferences for provider behavior, several studies have suggested that patient preferences regarding patientProvider Behavior Symmetry 5 provider interactions vary widely from highly provider-centered to highly patient-centered (Caress, et al, 2005;Levinson, Kao, Kuby, & Thisted, 2005;Swenson, et al, 2004).…”

Section: Variability In Patient Preferences Regarding Patient-providementioning

confidence: 99%

Patient preference for and reports of provider behavior: Impact of symmetry on patient outcomes.

et al. 2009

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Objective: Research has suggested that congruence between patient characteristics and contextual characteristics is a more robust predictor of outcomes than either patient or context characteristics alone. The goal of the present study was to examine the degree of congruence between patient preferences for the clinical encounter and reports of analogous dimensions of provider behavior and the effects of this congruence on patient outcomes. Design: Two hundred eighteen patients with diabetes (predominately Type II) completed measures of preference for and ratings of perceived provider behavior in three domains (1) information sharing, (2) behavioral involvement, and (3) socioemotional support. Main Outcome Measures: Patient satisfaction, self-reported adherence, and a clinical marker of diabetic control (hemoglobin A1c) were the outcomes of interest. Results: Congruence in information sharing and congruence in behavioral involvement were predictive of glycemic control and self-reported adherence, respectively. Congruence in behavioral involvement and congruence in socioemotional support were predictive of greater patient satisfaction. Conclusion: These findings provide further support for the importance of congruence between patient characteristics and contextual characteristics in predicting patient outcomes.

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Sharing decisions in cancer care

Cited by 443 publications

References 41 publications

Treatment decision making experiences of migrant cancer patients and their families in Australia

Treatment decision making experiences of migrant cancer patients and their families in Australia

The health-care experiences of families given the prenatal diagnosis of trisomy 18

Patient preference for and reports of provider behavior: Impact of symmetry on patient outcomes.

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