Shared medical information: Expectations of breast cancer patients

Guittard, Laure; Charlois, Anne-Laure; Letrilliart, Laurent; Favrel, V.; Galand-Desme, Sophie; Schott, Anne-Marie; Berthoux, Nicole; Chapet, O.; Méré, P.; Colin, Cyrille

doi:10.1016/j.ygyno.2007.08.001

Cited by 4 publications

(2 citation statements)

References 31 publications

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“…Breast cancer patients' need for information and their satisfaction with the information provided have been extensively investigated , but fewer studies have been published to date on patients' involvement in the decision‐making about their treatment. Most of these studies have focused on decisions about surgery, and they have shown that discrepancies frequently occur between patients' preferred and perceived involvement in decision‐making .…”

Section: Introductionmentioning

confidence: 99%

Young breast cancer patients' involvement in treatment decisions: the major role played by decision‐making about surgery

et al. 2013

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Section: Introductionmentioning

confidence: 99%

Young breast cancer patients' involvement in treatment decisions: the major role played by decision‐making about surgery

et al. 2013

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“…Outside the acute setting, Milliat-Guittard showed that 21% of breast cancer patients did not want to hold records; they did not want to come across a comment that they were not expecting. Instead, they wished to come to terms with the disease in their own way [51].…”

Section: Too Much Information Too Soon?mentioning

confidence: 99%

A systematic review of patient access to medical records in the acute setting: practicalities, perspectives and ethical consequences

2020

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Background: Internationally, patient access to notes is increasing. This has been driven by respect for patient autonomy, often recognised as a primary tenet of medical ethics: patients should be able to access their records to be fully engaged with their care. While research has been conducted on the impact of patient access to outpatient and primary care records and to patient portals, there is no such review looking at access to hospital medical records in real time, nor an ethical analysis of the issues involved in such a change in process. Methods: This study employed a systematic review framework in two stems, to integrate literature identified from two searches: Medline, CINAHL and Scopus databases were conducted, (for (1) hospitalised patients, patient access to records and its effects on communication and trust within the doctor-patient relationship; and (2) patient access to medical records and the ethical implications identified). The qualitative and quantitative results of both searches were integrated and critically analysed. Results: 3954 empirical and 4929 ethical studies were identified; 18 papers representing 16 studies were identified for review (12 empirical and 6 ethical). The review reveals a consensus that our current approach to giving information to patientsalmost exclusively verballyis insufficient; that patient access to notes is a welcome next step for patient-centred care, but that simply allowing full access, without explanation or summary, is also insufficient. Several ethical implications need to be considered: increased information could improve patient trust and knowledge but might transfer an (unwelcome) sense of responsibility to patients; doctors and patients have conflicting views on how much information should be shared and when; sharing written information might increase the already significant disparity in access to health care, and have unforeseen opportunity costs. The impact on medical practice of sharing notes in real time will also need to be evaluated. Conclusions: The review presents encouraging data to support patient access to medical notes. However, sharing information is a critical part of clinical practice; changing how it is done could have significant empirical and ethical impacts; any changes should be carefully evaluated.

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Le dossier de santé détenu par le patient : impact sur le suivi du cancer du sein dans la région Rhône-Alpes. Projet Archimed

Guittard

Romestaing

Letrilliart

et al. 2008

Revue d'Épidémiologie et de Santé Publique

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Shared medical information: Expectations of breast cancer patients

Cited by 4 publications

References 31 publications

Young breast cancer patients' involvement in treatment decisions: the major role played by decision‐making about surgery

Young breast cancer patients' involvement in treatment decisions: the major role played by decision‐making about surgery

A systematic review of patient access to medical records in the acute setting: practicalities, perspectives and ethical consequences

Le dossier de santé détenu par le patient : impact sur le suivi du cancer du sein dans la région Rhône-Alpes. Projet Archimed

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