Shared Decision Making and Serious Mental Illness

Mahone, Irma H.

doi:10.1016/j.apnu.2007.11.002

Cited by 23 publications

(27 citation statements)

References 26 publications

(26 reference statements)

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“…Some of them could be applied to our findings. First, patients' health worldview, including health belief models, treatment preferences, involvement of family, greater trust in their physician and attitude may vary and influence a patient's preference for participation (influence by cultural attitudes and tradition) [37][38][39][40]. Second, perceived lack of knowledge, lack of self-efficacy or a learned response influenced by cultural attitudes may contribute to this as well [38][39][40].…”

Section: Discussionmentioning

confidence: 99%

Participation in medical decision-making across Europe: An international longitudinal multicenter study

et al. 2016

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Background: The purpose of this paper was to examine national differences in the desire to participate in decision-making of people with severe mental illness in six European countries. Methods:The data was taken from a European longitudinal observational study (CEDAR; ISRCTN75841675). A sample of 514 patients with severe mental illness from the study centers in Ulm, Germany, London, England, Naples, Italy, Debrecen, Hungary, Aalborg, Denmark and Zurich, Switzerland were assessed as to desire to participate in medical decision-making. Associations between desire for participation in decision-making and center location were analyzed with generalized estimating equations. Results:We found large cross-national differences in patients' desire to participate in decision-making, with the center explaining 40% of total variance in the desire for participation (p<0.001). Averaged over time and independent of patient characteristics, London (mean=2.27), Ulm (mean=2.13) and Zurich (mean=2.14) showed significantly higher scores in desire for participation, followed by Aalborg (mean=1.97), where scores were in turn significantly higher than in Debrecen (mean=1.56). The lowest scores were reported in Naples (mean=1.14). Over time, desire for participation in decision-making increased significantly in Zurich (b=0.23) and decreased in Naples (b=-0.14). In all other centers, values remained stable.Conclusions: This study demonstrates that patients' desire for participation in decisionmaking varies by location. We suggest that more research attention be focused on identifying specific cultural and social factors in each country to further explain observed differences across Europe.

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Section: Discussionmentioning

confidence: 99%

Participation in medical decision-making across Europe: An international longitudinal multicenter study

et al. 2016

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“…Mahone (2008) Loh, Leonhart et al (2007) found a significant positive relationship (by the Patient Participation Scale from Man-Son-Hing (MSH-scale)). Tambuyzer & Van Audenhove (2015), Golnik, Maccabee-Ryaboy et al (2012) and Swanson et al (2007) observed that perceived SDM significantly predicted patients' (or parents') satisfaction with care.…”

Section: Sdm Antecedentsmentioning

confidence: 99%

Measurement issues of shared decision making in mental health: challenges and opportunities

Perestelo-Pérez

Rivero‐Santana

Álvarez‐Pérez

et al. 2017

MHRJ

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Purpose Shared decision making (SDM) is a model of health care in which patients are involved in the decision-making process about their treatment, considering their preferences and concerns in a deliberative process with the health care provider. Many existing instruments assess the antecedents, process, or the outcomes of SDM. The purpose of this paper is to identify the SDM-related measures applied in a mental health context. Design/methodology/approach The authors performed a systematic review in several electronic databases from 1990 to October 2016. Studies that assessed quantitatively one or more constructs related to SDM (antecedents, process, and outcomes) in the field of mental health were included. Findings The authors included 87 studies that applied 48 measures on distinct SDM constructs. A large majority of them have been developed in the field of physical diseases and adapted or directly applied in the mental health context. The most evaluated construct is the SDM process in consultation, mainly by patients’ self-report but also by external observer measures, followed by the patients’ preferences for involvement in decision making. The most applied instrument was the Autonomy Preference Index, followed by the Observing Patient Involvement in Decision Making (OPTION) and the Control Preferences Scale (CPS). The psychometric validation in mental health samples of the instruments identified is scarce. Research limitations/implications The bibliographic search is comprehensive, but could not be completely exhaustive. Effort should be invested in the development of new SDM for mental health tools that will reflect the complexity and specific features of mental health care. Originality/value The authors highlight several limitations and challenges for the measurement of SDM in mental health care.

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“…39,[69][70][71] In addition, participants in a number of studies declared that they had a clear desire for greater participation in decision regarding their psychiatric care compared to the current care they were receiving. 39,65,67,70 To illustrate, in one study, 82 percent of participants preferred a collaborative relationship with their health care provider, however only 70 percent experienced this collaboration. 65 Interestingly, participants articulated a clear idea of how and when to prioritise autonomy in decision-making and when to consult or defer the decision to health care professionals.…”

Section: Preferences In Decision-makingmentioning

confidence: 99%

“…Some authors have found that shared decision-making interventions had some impact on reducing the severity of substance-related and/or psychiatric problems but did not impact quality of life. 64,65 Another study found shared decision-making to have a significant impact for clients with a mental illness even when deciding on secondary decisions like lifestyle behaviours. 66 Mahone (2008) found that participation in shared decision-making was associated with better medication adherence rates, 65,67 while a recent study found that a computerized shared decision-making tool had no impact on medication adherence in community outpatient settings.…”

Section: Shared Decision Making In Mental Health Carementioning

confidence: 99%

Supported Decision-Making for Persons with Mental Illness: A Review

Pathare

Shields

2012

Public Health Rev

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Persons with mental illness (PWMI) are often not afforded the same opportunity to make decisions on a par with others in society. Article 12 of the International Convention on the Rights of Persons with Disabilities (CRPD) states that persons with disabilities should have equal recognition before the law and the right to exercise their legal capacity. Exercising legal capacity can mean making decisions about employment, medical or psychosocial treatment, property, finances, family, and participation in community activities. The aim of this paper is to comprehensively review the evidence on supported decision making for PWMI, both in legislation and research globally, with a focus on low-and middle-income countries (LMICs). Results reveal only a few countries have provisions for supported decision-making for PWMI, with a particular shortage of such provisions in legislation in LMICs There is also a general paucity of research evidence for supported decision-making, with the majority of research focusing on shared decision-making for treatment decisions. This review highlights the need for additional research in this area to better guide models, which can be utilised in domestic legislation, particularly in LMICs, to better implement the ideals of Article 12 of the CRPD.

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Shared Decision Making and Serious Mental Illness

Cited by 23 publications

References 26 publications

Participation in medical decision-making across Europe: An international longitudinal multicenter study

Participation in medical decision-making across Europe: An international longitudinal multicenter study

Measurement issues of shared decision making in mental health: challenges and opportunities

Supported Decision-Making for Persons with Mental Illness: A Review

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