Sexuality in Intimate Partners of People with Cancer: Information and Communication Needs: A Brief Communication

Albers, Leonore F.; Belzen, M.A. van; Batenburg, C. van; Engelen, Vivian; Putter, Hein; Ouden, Marjolein E.M. den; Pelger, Rob C.M.; Elzevier, Henk W.

doi:10.1080/0092623x.2020.1828206

Cited by 2 publications

(1 citation statement)

References 24 publications

(41 reference statements)

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“…Orientation theory suggests that clinicians should consider voluntarily providing information, including written material or direction to web content, that can be reviewed outside the clinical setting. This is especially true for cancer challenge topics of a sensitive nature that may have a major impact on both the patient and informal caregiver, such as end of life [ 59 ] and the impact of cancer and cancer treatment on sexuality [ 60 ].…”

Section: Discussionmentioning

confidence: 99%

Navigating the Cancer Journey Using Web-Based Information: Grounded Theory Emerging From the Lived Experience of Cancer Patients and Informal Caregivers With Implications for Web-Based Content Design

Thiessen¹,

Bouchal²,

Tang³

et al. 2023

JMIR Cancer

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Background The internet is an important source of information for many informal caregivers and patients living with cancer. A better understanding of how individuals use the internet to meet their informational needs is important for guiding intervention development. Objective The objectives of this study were to develop a theory describing why individuals living with cancer use the internet to find information, characterize the challenges faced with existing web-based content, and provide recommendations for web-based content design. Methods Adults (≥18 years) with a history of being patients with cancer or informal caregivers were recruited from Alberta, Canada. After providing informed consent, participants were engaged through digitally recorded one-on-one semistructured interviews, focus groups, a web-based discussion board, and emails. Classic grounded theory guided the study procedures. Results A total of 21 participants took part in 23 one-on-one interviews and 5 focus groups. The mean age was 53 (SD 15.3) years. Breast, gynecological, and hematological cancers were the most common cancer types (4/21, 19% each). In total, 67% (14/21) of patients, 29% (6/21) of informal caregivers, and 5% (1/21) of individuals reporting both roles participated. Participants experienced many new challenges in their cancer journey and used the internet to become better oriented to them. For each challenge, internet searching attempted to address one or more of 3 key orientation questions: why the challenge was happening, what to expect, and options for managing it. Better orientation resulted in improved physical and psychosocial well-being. Content that was well laid out, concise, free of distractions, and that addressed the key orientation questions was identified as the most helpful in assisting with orientation. Creators of web-based content are encouraged to 1) clearly identify the cancer challenge and population the content is addressing, as well as the presence of any potentially distressing information; 2) provide versions of the content in different formats, including printer-friendly, audio, video, and alternative languages; 3) state who created the content, including the individuals, organizations, and processes involved; 4) place hyperlinks after the key orientation questions have been addressed; and 5) ensure that the content is optimized for discovery by search engines (ie, Google). Conclusions Web-based content plays an essential role for many living with cancer. Clinicians are encouraged to take active steps to help patients and informal caregivers find web-based content that meets their informational needs. Content creators also have a responsibility to ensure that the content they create assists and does not hinder those navigating the cancer journey. Research is needed to better understand the many challenges that individuals living with cancer face, including how they are temporally related. In addition, how to optimize web-based content for specific cancer challenges and populations should be considered an important area for future research.

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Section: Discussionmentioning

confidence: 99%

Navigating the Cancer Journey Using Web-Based Information: Grounded Theory Emerging From the Lived Experience of Cancer Patients and Informal Caregivers With Implications for Web-Based Content Design

Thiessen¹,

Bouchal²,

Tang³

et al. 2023

JMIR Cancer

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Sexual health and androgen deprivation therapy in prostate cancer—a narrative review

Nicolai

2024

Tijdschr Urol

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SamenvattingAndrogeendeprivatietherapie (ADT) voor prostaatkanker heeft talrijke schadelijke effecten op het welzijn en het seksuele functioneren van de patiënt. ADT zou samenhangen met verminderde peniele contractiliteit, een slechte respons op behandeling met fosfodiësterase type 5-remmers (PDE5i) en een hoog risico op verlies van seksuele interesse. Toch blijft seksualiteit een cruciaal aspect van de kwaliteit van leven voor veel patiënten en hun partners, zelfs op gevorderde leeftijd en tijdens ADT.De behandeling van ADT-geïnduceerde seksuele disfunctie is lastig in een richtlijn te vatten. De behandeling is afhankelijk van de seksuele functies van de patiënt vóór de behandeling, de leeftijd, de fysieke en mentale gezondheid en de wensen van zowel de patiënt als zijn partner.De woorden ‘seks’ en ‘kanker’ roepen sterke emoties op en lijken onverenigbaar. Seks is onlosmakelijk verbonden met leven en voortplanting, terwijl kanker gerelateerd is aan verval en dood. Maar juist voor patiënten die te maken hebben met een levensbedreigende ziekte zoals kanker, zijn partnerrelaties, intimiteit en seksueel contact zeer belangrijk voor de kwaliteit van de resterende jaren. Daarom moet het behoud van openheid, intimiteit en niet-penetratieve seksuele activiteiten altijd worden aangemoedigd om het zelfrespect van de patiënt en de intimiteit in de relatie te behouden.In de klinische urologische praktijk is het belangrijk om aandacht te besteden aan de impact van ADT op patiënten met prostaatkanker en het persoonlijke leven van hun partner. Toegankelijke ondersteuning moet worden geboden om depressie en relatiecrises te voorkomen. Het initiëren van een dialoog over ‘seks’ tijdens ADT, het normaliseren en benoemen van emoties die verband houden met het verlies van mannelijke kenmerken en seksuele functies zijn cruciale eerste stappen. Het is ook van groot belang om patiënten zorgvuldig te informeren over de verwachte effecten van ADT op de fysieke en mentale aspecten van seksualiteit. De volgende stap bij het bieden van hulp tijdens deze impactvolle behandeling bestaat uit het faciliteren van gemakkelijke toegang tot psychologische ondersteuning door gespecialiseerde verpleegkundigen, urologen/andrologen, seksuologen of psychologen. Ten slotte moet het belang van lichamelijke activiteit tijdens ADT altijd worden benadrukt.Dit artikel bespreekt de gevolgen van ADT op seksuele functies en verkent potentiële therapeutische en ondersteunende behandelopties.

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Sexuality in Intimate Partners of People with Cancer: Information and Communication Needs: A Brief Communication

Cited by 2 publications

References 24 publications

Navigating the Cancer Journey Using Web-Based Information: Grounded Theory Emerging From the Lived Experience of Cancer Patients and Informal Caregivers With Implications for Web-Based Content Design

Navigating the Cancer Journey Using Web-Based Information: Grounded Theory Emerging From the Lived Experience of Cancer Patients and Informal Caregivers With Implications for Web-Based Content Design

Sexual health and androgen deprivation therapy in prostate cancer—a narrative review

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