Sexuality and Reproductive Health in Women With Congenital Heart Disease

Vigl, Matthäus; Kaemmerer, Mathias; Niggemeyer, Eva; Nagdyman, Nicole; Seifert-Klauss, Vanadin; Trigas, Vasiliki; Bauer, Ulrike; Schneider, Karl-Theo M.; Berger, Felix; Hess, John; Kaemmerer, Harald

doi:10.1016/j.amjcard.2009.10.025

Cited by 40 publications

(19 citation statements)

References 11 publications

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“…229 In women, symptoms of menstrual discomfort and cardiac symptoms during sexual activity were associated with functional class, congenital heart lesion severity, and cyanosis. Menstrual discomfort occurred in 29% to 49% of survey respondents; cardiac symptoms with sexual activity occurred in 6% to 26% of women.…”

Section: Sexual Dysfunction In Older Adults With Chdmentioning

confidence: 99%

Congenital Heart Disease in the Older Adult

Bhatt¹,

Foster²,

Kuehl³

et al. 2015

Circulation

193

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Section: Sexual Dysfunction In Older Adults With Chdmentioning

confidence: 99%

Congenital Heart Disease in the Older Adult

Bhatt¹,

Foster²,

Kuehl³

et al. 2015

Circulation

193

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“…The reasons underlying this may be complex, potentially involving both self-image and physical capacity. There is conflicting data in the literature as to whether ACHD patients experience decreased sexual function compared to the general population, however women with complex lesions or cyanosis have been shown to have particularly impaired function 6,7,8 . As our study population was predominantly female, this may explain why this emerged as such an important symptom.…”

Section: Discussionmentioning

confidence: 99%

Adult Congenital Heart Disease Patients Experience Similar Symptoms of Disease Activity

Cedars

Schmidt

Broberg

et al. 2016

Circ: Cardiovascular Quality and Outcomes

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Background There is a lack of objective data on the symptoms characterizing disease activity among adults with congenital heart disease (ACHD). The purpose of this study was to elicit the most important symptoms from patients across the spectrum of ACHD and to examine whether reported symptoms were similar across the spectrum of ACHD as a foundation for creating a patient-reported outcome measure(s). Methods and Results We constructed a 39-item survey using input from physicians specializing in ACHD to assess the symptoms patients associate with disease activity. Patients (n=124) prospectively completed this survey and the results were analyzed based on underlying anatomy and disease complexity. A confirmatory cohort of patients (n=40) was then recruited prospectively to confirm the validity of the initial data. When grouped based on underlying anatomy, significant differences in disease-related symptom rankings were found for only six of thirty-nine symptoms. Six symptoms were identified which were of particular significance to patients regardless of underlying anatomy. Patients with anatomy of great complexity experienced greater overall symptom severity than those with anatomy of low or moderate complexity, attributable exclusively to higher ranking of 5 symptoms. The second patient cohort had symptom experiences very similar to that of the initial cohort, differing in only 5 of 39 symptoms. Conclusions This study identified 6 symptoms relevant to patients across the spectrum of ACHD, and remarkable homogeneity of patient experience, suggesting that a single disease-specific PRO can be created for quality and outcomes assessments.

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“…The current study reported a mean age of 16.2 ± 4.7 years (lowest age of 9 years), similar to 17.7 ± 2.5 years (lowest age of 12 years) found in a previous study that included only women. 8 Improved clinical outcomes and an enhanced perception of well-being could account for the absence of any recognizable difference in embracing sexual activity. 9 The initial step for individuals in understanding how their cardiac lesion could affect their sexual health would be a clear understanding of the nature of their specific heart lesion.…”

Section: Discussionmentioning

confidence: 99%

Addressing Sexual Health in Congenital Heart Disease: When Being the Same Isn't the Same

2014

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A larger number of individuals born with congenital heart disease is living into adolescence and young adulthood. With this comes the responsibility to counsel these patients regarding their sexual and reproductive health. This study utilizes representative data from the National Health and Nutrition Examination Survey to compare sexual measures including percentage of that sexually active, age of first sexual activity, number of sexual partners, condom use, and history of sexually transmitted diseases in those with and without congenital heart disease. A total of 1086 patients (1057 without congenital heart disease and 29 with congenital heart disease) were included in this study. Likelihood of being sexually active, age of first sexual intercourse, and condom use did not differ significantly between the two groups after multivariate analysis. Incidence of sexually transmitted disease did not differ between the two groups after multivariate analysis except for genital warts. There are no major differences in sexual measures between those with and without congenital heart disease. The absence of significant differences in sexual measures in those with congenital heart disease compared with the general population places this group of individuals at increased health risk known to occur with pregnancy.

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Sexuality and Reproductive Health in Women With Congenital Heart Disease

Cited by 40 publications

References 11 publications

Congenital Heart Disease in the Older Adult

Congenital Heart Disease in the Older Adult

Adult Congenital Heart Disease Patients Experience Similar Symptoms of Disease Activity

Addressing Sexual Health in Congenital Heart Disease: When Being the Same Isn't the Same

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