Sexual health in the community: Services for people with intellectual and developmental disabilities

Friedman, Carli; Owen, Aleksa

doi:10.1016/j.dhjo.2017.02.008

Cited by 8 publications

(4 citation statements)

References 35 publications

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“…24 Emerging research suggests that many autistic people are denied equitable access to SRH services during adolescence and over their lifespans. Autistic people are less likely to receive SRH education in school compared to non-autistic peers or youth with other disabilities, 25,26 rarely receive proactive sexual health services through Medicaid programs, 27 are at greater risk of pregnancy complications, 28 and are less likely to receive routine pelvic exams compared to non-autistic controls or people with other disabilities. 29,30 Systematic research on SRH and development of services for autistic youth is limited by lack of population-level data.…”

Section: Sexual and Reproductive Health For Autistic Youthmentioning

confidence: 99%

Sexual and reproductive health services for autistic young people in the United States: A conceptual model of utilization

Holmes

Anderson

Sieber

et al. 2023

Perspect Sexual Reproductive

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Background Sexual and reproductive health services promote the ability of people to have safe, satisfying, non‐coercive sexual experiences and make informed decisions about pregnancy. Stakeholder input is needed to understand barriers or facilitators to service access for autistic people, who report unmet needs. Methods We recruited 18 autistic people, 15 parents, and 15 service providers in the United States to participate in an interview and two surveys. Using their input, we created a conceptual model of sexual and reproductive health service needs, access barriers, and facilitators. Results Stakeholders rated a variety of sexual and reproductive health services as important for autistic people, including those with intellectual disability or minimal verbal language. Stakeholders identified barriers to sexual and reproductive health service utilization including lack of service availability, lack of service providers with autism or neurodiversity training, lack of accurate information about autism and sexuality, verbal and communication differences that are not accommodated by service providers, and socio‐cultural attitudes about sexuality. Stakeholders identified facilitators to service access including person‐centered, trauma‐informed care, service accommodations such as clear and detailed expectations, and long‐enough appointments. We created a conceptual model based on the social ecological model of health to organize these utilization factors and support future research, provider, and policy action. Stakeholders provided feedback and responded favorably on the model's accuracy, utility for spurring research, practice, and policy improvements, and application to diverse groups of autistic people. Conclusions The model shows the many feasible ways to support equitable access to services for autistic people.

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Section: Sexual and Reproductive Health For Autistic Youthmentioning

confidence: 99%

Sexual and reproductive health services for autistic young people in the United States: A conceptual model of utilization

Holmes

Anderson

Sieber

et al. 2023

Perspect Sexual Reproductive

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“…(Farisa, Deliana, & Hendriyani, 2013;Petronela, 2018) Penyandang disabilitas sangat sulit dan minim dalam mendapatkan akses pelayanan kesehatan meliputi, konseling masalah kesehatan reproduksi, konseling reproduksi seputar mitos dan fakta kesehatan reproduksi, advokasi dan konselor sebaya yang membuat nyaman dalam konseling. (Fauzi, 2017;Friedman & Owen, 2017;Nguyen, Liamputtong, Horey, & Monfries, 2018) Pemerintah kurang memperhatikan difabel, terbukti dalam survey dan wawancara pada kepala bagian ketahanan remaja, belum ada anggaran untuk program kesehatan reproduksi untuk remaja dengan disabilitas. (Didik, 2017) Berdasarkan undang-undang nasional tersebut diatas Yogyakarta telah memiliki perda tentang Perlindungan dan Pemenuhan Hak-hak Penyandang Disabilitas No.…”

Section: Latar Belakangunclassified

Analisis Implementasi Perda Kabupaten Bantul NO.11 Tahun 2015 Tentang Pemenuhan Hak Penyandang Disabilitas Pada Kesehatan Reproduksi Remaja Disabilitas

Puspito¹

2021

j. keperawatan. kesehat. masy. cendekia. utama.

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Remaja penyandang disabilitas merupakan kelompok rentan terhadap pelecehan dan kekerasan seksual. Penyandang disabilitas juga makhluk seksual yg perlu diperhatikan kesehatan reproduksinya. Pemda Bantul membuat Perda No.11 tahun 2015 untuk memenuhi hak-hak penyandang disabilitas. Penelitian ini bertujuan memperoleh gambaran implementasi kebijakan, khususnya hak-hak kesehatan reproduksi pada remaja disabilitas SLB Negeri di Kabupaten Bantul. Penelitian ini menggunakan pendekatan kualitatif, pemilihan informan dengan purposive sampling, data dikumpulkan dengan wawancara mendalam, observasi dan studi dokumen. Penelitian di lingkungan Pemerintahan Kab.Bantul, Juni-Juli 2019. Hasil penelitian menunjukkan implementasi Perda Bantul No.11 tahun 2015 belum berjalan baik, upaya pemenuhan hak-hak promotif dan preventif belum dicapai. Adanya pengaruh dari Isi Perda, Karakteristik dan kemampuan pelaksana, disposisi pelaksana, serta kondisi lingkungan menyebabkan implementasi menjadi tidak maksimal. Perlu adanya revisi pasal 29 dan 30, menetapkan juklak dan juknis, mengadakan penandatanganan komitmen pelaksana, meningkatkan keterampilan kespro tenaga kesehatan dan guru, serta pelibatan orangtua dalam Pendidikan kespro

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“…Mayoritas responden pernah memperoleh informasi kesehatan reproduksi. Anak disabilitas intelektual biasanya mengakses sumber-sumber informasi yang berasal dari program sekolah atau komunitas, orang tua, pengasuh, teman sebaya atau media (8). Sebagian besar sumber informasi diperoleh dari guru dan tenaga kesehatan.…”

Section: Pembahasanunclassified

Pengaruh Pendididkan Kesehatan Dalam Meningkatkan Pengetahuan Kesehatan Reproduksi Anak Disabilitas Intelektual

Kelrey¹

2020

MHJ

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Disabilitas intelektual pada anak merupakan Ketidakmampuan atau keterbatasan kecerdasan yang menjadikan mereka rentan terhadap permasalahan diantaranya yaitu masalah kesehatan reproduksi dan salah satu upaya penanganannya yaitu memberikan pendidikan kesehatan reproduksi melalui media edukatif audio visual. Tujuan untuk menganalisis pengaruh pendidikan kesehatn media audio visual dalam meningkatkan pengetahuan kesehatan reproduksi anak disabilitas intelektual. Peneltian ini menggunakan metode Pre-eksperiment dengan pendekatan Pretest-Posttest design. Sampel dalam penelitian berjumlah 24 orang anak disabilitas intelektual dengan Teknik quota sampling, non probability sampling. Lokasi penelitian dilakukan di Sekolah luar biasa Rela Bhakti Gamping 1 Sleman Yogyakarta pada bulan Mei- Juni 2019. Uji Analisis menggunakan Wilcoxon Signed-Rank Test. Hasil penelitian menunjukan adanya Pengaruh yang signifikan dengan nilai p value 0,00<0,05.

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Sexual health in the community: Services for people with intellectual and developmental disabilities

Cited by 8 publications

References 35 publications

Sexual and reproductive health services for autistic young people in the United States: A conceptual model of utilization

Sexual and reproductive health services for autistic young people in the United States: A conceptual model of utilization

Analisis Implementasi Perda Kabupaten Bantul NO.11 Tahun 2015 Tentang Pemenuhan Hak Penyandang Disabilitas Pada Kesehatan Reproduksi Remaja Disabilitas

Pengaruh Pendididkan Kesehatan Dalam Meningkatkan Pengetahuan Kesehatan Reproduksi Anak Disabilitas Intelektual

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