Sexual adjustment and quality of relationships in spinal paraplegia: A controlled study

Kreuter, Margareta; Sullivan, Marianne; Siösteen, A

doi:10.1016/s0003-9993(96)90292-0

Cited by 103 publications

(103 citation statements)

References 14 publications

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“…16 Relationships where the non-injured partner has a greater understanding of his partner's sexual needs are more successful in sexual adjustment. 43 This is in keeping with the finding that the preferred type of sexual activity changes post injury. Before injury, penisvagina intercourse is considered the preferred type of sexual activity, whereas kissing is the preferred type of sexual activity in 76% of SCI women after injury.…”

Section: Psychosocial Factors Influencing Sexual Rehabilitationsupporting

confidence: 80%

“…16,[33][34][35] It has been suggested that poor sexual satisfaction (regardless of form of sexual activity) of SCI women over the age of 30 years can be traced to a 'natural' physiological decline in sexual interest. 11 This is inconsistent with findings in able-bodied women, which show that satisfaction with sexual life increases with age.…”

Section: Psychosocial Factors Influencing Sexual Rehabilitationmentioning

confidence: 99%

“…15 It may also be more difficult for SCI women to find sexual partners than able-bodied women. 35 One study in Sweden revealed that women with regular partners are less likely to receive sexual counselling during their rehabilitation than single women and, therefore, subsequently experience a decline in sexual activity and satisfaction post injury. 34 This may have detrimental effects on the woman's overall quality of life, as we may assume that a healthy sexual life is important in sustaining a marriage.…”

Section: Psychosocial Factors Influencing Sexual Rehabilitationmentioning

confidence: 99%

“…42 Following a SCI, the SCI partner frequently becomes more dependent on the non-injured partner, who must often take on responsibility as the main carer. 35 Care giving may change the balance of power in a relationship 35,38 and can be detrimental to sexual adjustment. 46 However, for lasting relationships, there appears to be no difference between satisfaction in pre-injury and post-injury relationships.…”

Section: Psychosocial Factors Influencing Sexual Rehabilitationmentioning

confidence: 99%

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Sexual rehabilitation of women with a spinal cord injury

Forsythe¹,

Horsewell²

2005

Spinal Cord

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Results: The literature focuses on the effect of neurological change on women's ability to achieve sexual arousal and orgasm. Urinary and bowel incontinence, spasticity, vaginal lubrication and autonomic dysreflexia are the physical consequences of SCI that appear to have most impact on sexual activity. More recent studies have acknowledged that psychosocial factors such as age and partnership status may also affect the successful sexual rehabilitation. Discussions with women with SCI in Denmark and Sweden on their reactions to information and counselling offered during rehabilitation revealed an overwhelming need for the exchange of information and experience with other women with SCI, and a desire for opportunities for counselling after initial rehabilitation. Conclusion: Successful sexual rehabilitation of women with SCI demands a holistic approach that considers individual neurological, physical and psychosocial circumstances. Peer-counselling could make a significant contribution to the sexual rehabilitation of women with SCI.

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Section: Psychosocial Factors Influencing Sexual Rehabilitationsupporting

confidence: 80%

Section: Psychosocial Factors Influencing Sexual Rehabilitationmentioning

confidence: 99%

Section: Psychosocial Factors Influencing Sexual Rehabilitationmentioning

confidence: 99%

Section: Psychosocial Factors Influencing Sexual Rehabilitationmentioning

confidence: 99%

See 2 more Smart Citations

Sexual rehabilitation of women with a spinal cord injury

Forsythe¹,

Horsewell²

2005

Spinal Cord

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“…However previous research of persons with SCI has documented a strong emphasis on the emotional and intimate experiences related to a satisfying sexual relationship. 13,44 Social relationships, the label applied to Factor 2 appears to best relate to participation within the disablement model. Five of the eight items in this factor come from the social and economic domain of the original QLI.…”

Section: Structural Component Domainsmentioning

confidence: 99%

Measuring quality of life of persons with spinal cord injury: external and structural validity

May

Warren

2002

Spinal Cord

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Study design: Measurement evaluation of the external and structural components of validity. Objectives: To examine the relationships between quality of life (QOL) as measured by the spinal cord injury (SCI) version of the Ferrans and Powers Quality of Life Index (QLI) and other constructs represented within the model of disablement; and to examine the domains and scoring model of the QLI by exploring item and overall score/section score relationships. Setting: Community, Alberta, Canada. Methods: A convenience sample of 98 individuals with SCI living in the community completed the QLI and measures representing the model of disablement including the ASIA motor index, Functional Independence Measure, Reintegration to Normal Living index, Rosenberg's Self-Esteem Scale and Rotter's Internal ± External Locus of Control scale. Results: Four of the ®ve a priori hypotheses were supported. Locus of control was not signi®cantly related to QOL as expected. Factor analysis resulted in a ®ve-factor structure that di ered from the four-domain model of the original QLI. Scoring relationships indicated that both the satisfaction and importance ratings contribute to the overall score, although not equally. Conclusion: There is support for the external component of validity although further examination regarding locus of control for persons with SCI is warranted. The structural component of validity requires further investigation to elucidate the domains of the SCI version of the QLI and the contribution of the importance scores.

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Development of an online registry for adults with arthrogryposis multiplex congenita: A protocol paper

Sawatzky

Dahan‐Oliel

Davison

et al. 2019

American J of Med Genetics Pt C

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Arthrogryposis multiplex congenita (AMC) is considered a rare disorder resulting in multiple congenital contractures in two or more areas. Considerable literature is available on managing the contractures during an affected child's development but little information is available to those managing these ongoing issues in adulthood. Due to the heterogeneity etiological factors and presentation of AMC, and the small sample sizes of previous studies, it has been difficult to generalize results to the adult population. This current study presents the several steps taken to create an international AMC database for adults to populate with their own data over time. The methods included a scoping review of the literature for valid and reliable outcome measures used for AMC, a Delphi methodology to create the database with a team of clinicians, researchers and patients, a Beta testing of the database, and a final launch of the Adult AMC Registry. This registry includes 48 nonstandardized questions and 12 standardized questionnaires. It takes 35-45 min for a participant to complete. A shorter version will be created for participants to complete for years 2 and 3, followed by this longer version every 4 years. The protocol for referring English-speaking patients and access to the registry is provided.

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Sexual adjustment and quality of relationships in spinal paraplegia: A controlled study

Cited by 103 publications

References 14 publications

Sexual rehabilitation of women with a spinal cord injury

Sexual rehabilitation of women with a spinal cord injury

Measuring quality of life of persons with spinal cord injury: external and structural validity

Development of an online registry for adults with arthrogryposis multiplex congenita: A protocol paper

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