Sex, support and society: a journey to reclaiming sexuality for individuals living with paraplegia in Cape Town, South Africa

Thurston, Charlotte; Blom, L.; Conradsson, David; Joseph, Conran

doi:10.1038/s41393-020-00558-5

Cited by 4 publications

(9 citation statements)

References 29 publications

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“…The 38 studies were conducted in the United States (Christian et al, 2020; Fritz et al, 2015; Hohmann, 1966; Leibowitz, 2005; Leibowitz & Stanton, 2007; McAlonan, 1996; Money, 1960; Richards et al, 1997; Tepper et al, 2001), Australia (Beckwith & Yau, 2013; Parker & Yau, 2012; Seddon et al, 2018; Warren et al, 2018), Canada (Cramp et al, 2014; Kathnelson et al, 2020a, 2020b; Morozowski & Roughley, 2020; Osborne et al, 2023), Greece (Sakellariou, 2006, 2012; Sakellariou & Algado, 2006; Sakellariou & Sawada, 2006), South Africa (Basson et al, 2003; Robinson et al, 2011; Thurston et al, 2021), the United Kingdom (Barrett et al, 2023; Nevin & Melby, 2022; Thrussell et al, 2018), India (Sharma, 2022; Sunilkumar et al, 2015), China (Li & Yau, 2006), Finland (Angel & Kroll, 2020), Hong Kong (Pearson & Klook, 1989), Iran (Maasoumi et al, 2017), Malaysia (Rahman et al, 2019), Turkey, (Taylan et al, 2022), Spain (Touil-Satour & Leyva-Moral, 2022), and Sweden (Westgren & Levi, 1999). The studies were published between 1960 and January 2023.…”

Section: Resultsmentioning

confidence: 99%

“…The first descriptive theme highlighted that positive sexual experience with SCI was facilitated by sexual activity itself. Participants across studies referred to opportunities to gain sexual experience (Beckwith & Yau, 2013; Christian et al, 2020; McAlonan, 1996; Thrussell et al, 2018), the process of reestablishing their sex life (Angel & Kroll, 2020; Leibowitz & Stanton, 2007; Richards et al, 1997; Sakellariou, 2006; Seddon et al, 2018; Tepper et al, 2001; Thrussell et al, 2018; Thurston et al, 2021; Touil-Satour & Leyva-Moral, 2022), and the art of problem solving (Beckwith & Yau, 2013; Thrussell et al, 2018) to determine alternative ways of sexual expression (described in more detail in the next theme).…”

Section: Resultsmentioning

confidence: 99%

See 1 more Smart Citation

Sex-positive sexuality post-spinal cord injury: A systematic review and qualitative metasynthesis.

Ireland,

Pebdani,

Heck

et al. 2024

Rehabilitation Psychology

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Sex-positive sexuality post-spinal cord injury: A systematic review and qualitative metasynthesis.

Ireland,

Pebdani,

Heck

et al. 2024

Rehabilitation Psychology

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“…The presence of chronic pain after SCI is not related to sexual function, and most women do not lose their ability to ovulate, menstruate, and have children after SCI [64]. Education on sexuality after SCI is an important aspect of rehabilitation, which is not always emphasized in the South African health system [65]. Family and social support after SCI is important and is associated with positive outcomes, such as reduced pain severity, increased participation in prescribed exercises, and higher satisfaction in physical functioning [1,7,66,67].…”

Section: Discussionmentioning

confidence: 99%

Exploring the Experience of Living with Pain after Spinal Cord Injury: A Qualitative Study

Mashola,

Korkie,

Mothabeng

2024

Behavioural Neurology

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A spinal cord injury is a life-changing experience that results in functional limitations and an increased risk of secondary health conditions. People with spinal cord injury identify pain as the most devastating health problem following their injury that not only affects their social life but their mental well-being as well. This study is aimed at exploring the lived experience of living with pain by community-dwelling manual wheelchair users with spinal cord injuries. An explorative qualitative design was used to explore their experiences. In-depth interviews were recorded and transcribed, and the data were analysed using inductive thematic content analysis in the MAXQDA v2020. Fifteen manual wheelchair users with paraplegia participated in this study, and four themes were identified from their experience of living with pain: pain constantly lurks, pain is worse than the direct consequences of the SCI, pain is restrictive, and life continues despite the pain. Categories and subcategories included the participants being one with the pain; pain interfering with sleep; feelings of anger, isolation, and suicidal ideation; and uncertainties about what the future holds living with pain. Living with pain after SCI is a challenging feat, and effective management of pain is necessary to improve not only functioning and mobility but also mental health and life satisfaction.

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“…Online Support Delivery Participants with SCI reported using online resources for emotional support, problem focused support, and to reduce social isolation [66,107,108]. In another SCI study, participants were satisfied with the educational videos and with video chat features to connect with a peer remotely [98].…”

Section: Intervention Contentmentioning

confidence: 99%

“…Community-Related Considerations Peer support was a common unmet need among trauma survivors [64,71,108,[127][128][129][130]. A survey of community organizations that provided peer support revealed that the programs were operating with fewer than the desired number of peer mentors and that they did not collect outcome data due to a lack of resources and knowledge of which outcomes to collect [131].…”

Section: Outer Setting and Implementation Processmentioning

confidence: 99%

Peer support for traumatic injury survivors: a scoping review

Wasilewski

Rios

Simpson

et al. 2022

Disability and Rehabilitation

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Purpose: Peers are uniquely able to draw on their lived experiences to support trauma survivors' recovery. By understanding the functions and outcomes of peer support and the factors that impact implementation, evidence can be mobilized to enhance its application and uptake into standard practice. As such, we aimed to review the literature on peer support for trauma survivors to: Examine the role of peer support in recovery; Describe the nature and extent of peer support; Examine the influence of peer support on health and well-being; and Identify the barriers and facilitators to developing and implementing peer support.Methods: Scoping review methodology as outlined by Arksey and O'Malley.Results: Ninety-three articles were reviewed. Peer support was highlighted as an important component of care for trauma survivors and provided hope and guidance for the future postinjury. Most peer support programs were offered in the community and provided one-on-one support from peer mentors using various modalities. Interventions were successful when they involved knowledgeable peer mentors and maintained participant engagement. Prior negative experiences and stigma/privacy concerns deterred trauma survivors from participating.Conclusions: Peer support fulfills several functions throughout trauma survivors' recovery that may not otherwise be met within existing health care systems.

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Sex, support and society: a journey to reclaiming sexuality for individuals living with paraplegia in Cape Town, South Africa

Cited by 4 publications

References 29 publications

Sex-positive sexuality post-spinal cord injury: A systematic review and qualitative metasynthesis.

Sex-positive sexuality post-spinal cord injury: A systematic review and qualitative metasynthesis.

Exploring the Experience of Living with Pain after Spinal Cord Injury: A Qualitative Study

Peer support for traumatic injury survivors: a scoping review

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