Service users' experience of receiving bad news about their mental health

Gallagher, Ann; Arber, Anne; Chaplin, Rob; Quirk, Alan

doi:10.3109/09638230903469137

Cited by 25 publications

(27 citation statements)

References 10 publications

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“…In another qualitative study, participants expressed the need to trust service providers when providing new information such as a new mental health diagnosis (Gallagher et al . ).…”

Section: Building Relationships Through Participation In Carementioning

confidence: 97%

Mental health service users' experiences of mental health care: an integrative literature review

Newman

O’Reilly

Lee

et al. 2015

Psychiatric Ment Health Nurs

135

109

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Accessible summary A number of studies have highlighted issues around the relationship between service users and providers. The recovery model is predominant in mental health as is the recognition of the importance of person‐centred practice. The authors completed an in‐depth search of the literature to answer the question: What are service users' experiences of the mental health service? Three key themes emerged: acknowledging a mental health problem and seeking help; building relationships through participation in care; and working towards continuity of care. The review adds to the current body of knowledge by providing greater detail into the importance of relationships between service users and providers and how these may impact on the delivery of care in the mental health service. The overarching theme that emerged was the importance of the relationship between the service user and provider as a basis for interaction and support. This review has specific implications for mental health nursing. Despite the recognition made in policy documents for change, issues with stigma, poor attitudes and communication persist. There is a need for a fundamental shift in the provider–service user relationship to facilitate true service‐user engagement in their care. Abstract The aim of this integrative literature review was to identify mental health service users' experiences of services. The rationale for this review was based on the growing emphasis and requirements for health services to deliver care and support, which recognizes the preferences of individuals. Contemporary models of mental health care strive to promote inclusion and empowerment. This review seeks to add to our current understanding of how service users experience care and support in order to determine to what extent the principles of contemporary models of mental health care are embedded in practice. A robust search of Web of Science, the Cochrane Database, Science Direct, EBSCO host (Academic Search Complete, MEDLINE, CINAHL Plus Full‐Text), PsycINFO, PsycARTICLES, Social Sciences Full Text and the United Kingdom and Ireland Reference Centre for data published between 1 January 2008 and 31 December 2012 was completed. The initial search retrieved 272 609 papers. The authors used a staged approach and the application of predetermined inclusion/exclusion criteria, thus the numbers of papers for inclusion were reduced to 34. Data extraction, quality assessment and thematic analysis were completed for the included studies. Satisfaction with the mental health service was moderately good. However, accessing services could be difficult because of a lack of knowledge and the stigma surrounding mental health. Large surveys document moderate satisfaction ratings; however, feelings of fear regarding how services function and the lack of treatment choice remain. The main finding from this review is while people may express satisfaction with mental health services, there are still issues around three main themes: acknowledging a mental health problem and seekin...

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“…In another qualitative study, participants expressed the need to trust service providers when providing new information such as a new mental health diagnosis (Gallagher et al . ).…”

Section: Building Relationships Through Participation In Carementioning

confidence: 97%

Mental health service users' experiences of mental health care: an integrative literature review

Newman

O’Reilly

Lee

et al. 2015

Psychiatric Ment Health Nurs

135

109

View full text Add to dashboard Cite

show abstract

“…After receiving a diagnosis, individuals experienced a range of different reactions; including relief, viewing the diagnosis as validating or helpful to treatment, experiencing uncertainty or rejecting the diagnosis as it pathologised issues or did not help individuals make sense of their situation (Buston, 2002;Gallagher et al, 2010;Lewis, 1995;Wisdom & Green, 2004). Two studies reported that clinicians not diagnosing resulted in the individual experiencing a sense of doubt regarding the validity of the challenges they faced (Lewis, 1995) or feelings of distress due to the perception that they were not believed (Buston, 2002).…”

Section: Impact Of a Diagnosismentioning

confidence: 94%

“…Two studies reported that clinicians not diagnosing resulted in the individual experiencing a sense of doubt regarding the validity of the challenges they faced (Lewis, 1995) or feelings of distress due to the perception that they were not believed (Buston, 2002). Poor communication at the time of diagnosis was confusing, as were multiple diagnoses (Gallagher et al, 2010). Although many service users did not believe excessive stigma was associated with receiving psychiatric treatment (Greenwood et al, 2000), anxiety about stigma was reported as a reaction to diagnostic news (Gallagher et al, 2010).…”

Section: Impact Of a Diagnosismentioning

confidence: 96%

“…Although many service users did not believe excessive stigma was associated with receiving psychiatric treatment (Greenwood et al, 2000), anxiety about stigma was reported as a reaction to diagnostic news (Gallagher et al, 2010). Due to stigma-related concerns, individuals felt the diagnosis could impact on their social identity (Lewis, 1995), their relationships with others (Magliano et al, 2008;Thornicroft et al, 2009) and their willingness to share diagnostic information with others (Gallagher et al, 2010). Furthermore, it may cause strong sense of shame due to their cultural beliefs (Hwang, 2008) or could lead to drop out from treatment (Seedat et al, 2002).…”

Section: Impact Of a Diagnosismentioning

confidence: 99%

“…Grounded theory studies lacked sufficient detail regarding checking methods to establish rigor (Buston, 2002;Gallagher et al, 2010;Hwang, 2008) and sample data to comfortably reach saturation (Gallagher et al, 2010;Hwang, 2008) as per recommendations on achieving maximum variation in data (Kuzel, 1992).…”

Section: Qualitative Research (Seven Studies)mentioning

confidence: 99%

See 2 more Smart Citations

Communication of a mental health diagnosis: a systematic synthesis and narrative review

Milton

Mullan

2014

Journal of Mental Health

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This review highlights a gap in the system of communication between clinicians and service-users. To assist clinicians to talk effectively with individuals about their mental health, communication protocols and training need to be further developed and assessed. Such developments would benefit from well-designed randomised controlled trial protocols, should incorporate service-users' preferences and address stigma-related concerns.

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Different communication strategies for disclosing a diagnosis of schizophrenia and related disorders

Farooq¹,

Johal²,

Naeem³

2015

Cochrane Database of Systematic Reviews

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Service users' experience of receiving bad news about their mental health

Cited by 25 publications

References 10 publications

Mental health service users' experiences of mental health care: an integrative literature review

Mental health service users' experiences of mental health care: an integrative literature review

Communication of a mental health diagnosis: a systematic synthesis and narrative review

Different communication strategies for disclosing a diagnosis of schizophrenia and related disorders

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