Service user perceptions of involvement in developing NICE mental health guidelines: A grounded theory study

Abstract

Service users reported making a useful contribution despite intrinsic barriers.

Service user involvement in mental health care: an evolutionary concept analysis

“…Russo and Stastny asserted that partnership should be evident in every project or initiative and not just claimed. For partnership working to be achieved, the view of ‘patient as expert’ or ‘expert by experience’ was considered important . Service users have a unique perspective on mental health care and are part of the process of care.…”

“…For partnership working to be achieved, the view of 'patient as expert' or 'expert by experience' was considered important. 5,31,[66][67][68][69][70] Service users have a unique perspective on mental health care and are part of the process of care. As such they have a personal knowledge of what it is like to experience and live with a particular mental health difficulty and to be a user of mental health services.…”

The mental health strategy for Europe: Why service user leadership in research is indispensable

“…There are increasing opportunities for mental health service users across Europe to be involved in a variety of ways in research and in related fields such as evaluation and monitoring (Rose & Lucas, 2007), and the development of treatment guidelines (Harding, Brown, Hayward & Pettinari, 2010), as well as growing acknowledgement by conventional mental health researchers of the importance of involving service users. However, service user involvement and leadership in research and evaluation activities are frequently hampered by inadequate funding, infrastructural and training support -and at times by outright hostility.…”

Experiences from the implementation of a comprehensive development plan for user involvement in a mental health hospital: A qualitative case study

“…Differences between health professionals, managers and user representatives in knowledge, language, culture, trust, time, resources, priority setting and power have been found to be important barriers towards involving user representatives (Haigh, 2008). Professional culture and norms could exclude service users from decision-making processes (Martin & Finn, 2011) and undermine the potential contribution of user representatives (Harding, Brown, Hayward & Pettinari, 2010). Organizational settings including both professionals and service user representatives also could become subject to external pressure on resources and effectiveness (Martin & Finn, 2011).…”