Service user and carer involvement in mental health care safety: raising concerns and improving the safety of services

Berzins, Kathryn; Louch, Gemma; Brown, Mark; O’Hara, Jane; Baker, John

doi:10.1186/s12913-018-3455-5

Cited by 19 publications

(38 citation statements)

References 24 publications

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“…However, research shows that, in many situations, user involvement is inadequately integrated into health care for elderly [34,42]. There are several studies from hospitals and discharge processes to home care or mental health, but few empirical studies on user involvement are from public home care services [34,[42][43][44].…”

Section: User Involvementmentioning

confidence: 99%

‘They just came with the medication dispenser’- a qualitative study of elderly service users’ involvement and welfare technology in public home care services

Glomsås

Knutsen

Fossum

et al. 2021

BMC Health Serv Res

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Background Public home care for the elderly is a key area in relation to improving health care quality. It is an important political goal to increase elderly people’s involvement in their care and in the use of welfare technology. The aim of this study was to explore elderly service users’ experience of user involvement in the implementation and everyday use of welfare technology in public home care services. Method This qualitative study has an explorative and descriptive design. Sixteen interviews of service users were conducted in five different municipalities over a period of six months. The data were analysed using reflexive thematic analysis. Results Service users receiving public home care service are not a homogenous group, and the participants had different wishes and needs as regards user involvement and the use of welfare technology. The analysis led to four main themes: 1) diverse preferences as regards user involvement, 2) individual differences as regards information, knowledge and training, 3) feeling safe and getting help, and 4) a wish to stay at home for as long as possible. Conclusion The results indicated that user involvement was only to a limited extent an integral part of public home care services. Participants had varying insight into and interest in welfare technology, which was a challenge for user involvement. User involvement must be facilitated and implemented in a gentle way, highlighting autonomy and collaboration, and with the focus on respect, reciprocity and dialogue.

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Section: User Involvementmentioning

confidence: 99%

‘They just came with the medication dispenser’- a qualitative study of elderly service users’ involvement and welfare technology in public home care services

Glomsås

Knutsen

Fossum

et al. 2021

BMC Health Serv Res

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“…A systematic review of 38 studies on consumer and carer perspectives of services for individuals with BPD found that consumers and carers had different foci, including carers not receiving appropriate recognition from health professionals, and consumers describing the importance of their relationship with a health professional [40]. Exploring health professional perspectives may also be important because professional perspectives can differ from those of consumers with mental health problems and carers [42,43]. Multiple studies have investigated perspectives regarding peer support for mental health problems, and consumers and professionals have expressed different views regarding the consumer peer worker role description [16,17].…”

Section: Introductionmentioning

confidence: 99%

Using peer workers with lived experience to support the treatment of borderline personality disorder: a qualitative study of consumer, carer and clinician perspectives

Barr

Townsend

Grenyer

2020

bord personal disord emot dysregul

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Background: Peer support is a recovery oriented approach where consumers and carers are introduced to people with lived experience of the disorder who have recovered. Paid roles within health services for such consumer peer workers and carer peer workers (or 'specialists') are increasingly common. To date specific studies on such peer support for consumers with borderline personality disorder (BPD) and their carers has not been conducted. Methods: This qualitative study used interviews to explore perceptions and models of peer support for BPD from the perspectives of 12 consumers, 12 carers, and 12 mental health professionals. Participant responses were analyzed using reflexive thematic analysis within a phenomenological methodology. Results: All groups described how consumer peer workers may provide hope, connection, and validation to a consumer's lived experience. Offering both traditional mental health treatment plus peer support, and giving consumers choice regarding a consumer peer worker was welcomed. Differences in opinion were found regarding the consumer peer worker's role in relation to the mental health team, including whether consumer peer workers should access medical records. Perspectives differed regarding the consumer peer worker and carer peer worker positions, highlighting potential role confusion. Carers discussed the value of receiving support from carer peer workers and consumer peer workers. Mental health professionals described how consumer peer workers can experience workplace stigma and problems with boundary setting, and acknowledged a need for peer workers to be valued by having a duty of care and confidentiality code to follow and be offered supervision. Conclusions: Two models of peer support for BPD emerged: an integrated model where consumer peer workers work within the mental health team, and a complementary model where consumer peer workers are separate from the mental health team. Based on these findings we provide recommendations for services to help support such peer work for consumers with BPD and their carers.

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“…Given the lack of safety in acute mental health care there is a clear need for improvement but research in this area has reportedly lagged that in other areas of medicine [ 14 , 15 ] despite a long user movement history. Moreover, patients and providers reportedly disagree about which outcomes matter most in mental health safety [ 16 , 17 ].…”

Section: Introductionmentioning

confidence: 99%

To what extent are patients involved in researching safety in acute mental healthcare?

Brierley-Jones

Ramsey²,

Canvin

et al. 2022

Res Involv Engagem

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Background There is a growing need to involve patients in the development of patient safety interventions. Mental health services, despite their strong history of patient involvement, have been slow to develop patient safety interventions, particularly in inpatient settings. Methods A systematic search was undertaken of both academic and grey literature. Whilst no lay member of the team worked directly on the review, they were part of the project steering group which provided oversight throughout the review process. This included people with lived experience of mental health services. From a research perspective the main focus for lay members was in co-producing the digital technology, the key project output. Smits et al.’s (Res Involv Engagem 6:1–30, 2020) Involvement Matrix was used to taxonomise levels of patient involvement. Studies were included if they were set in any inpatient mental health care context regardless of design. The quality of all selected studies was appraised using Mixed Methods Appraisal Methodology (MMAT). Results Fifty-two studies were classified, synthesised and their levels of patient involvement in the research and development of patient safety interventions were taxonomised. Almost two-thirds of studies (n = 33) researched reducing restrictive practices. Only four studies reported engaging patients in the research process as decision-makers, with the remaining studies divided almost equally between engaging patients in the research process as partners, advisors and co-thinkers. Just under half of all studies engaged patients in just one stage of the research process. Conclusion Involvement of patients in researching patient safety and developing interventions in an inpatient mental health context seems diverse in its nature. Researchers need to both more fully consider and better describe their approaches to involving patients in safety research in inpatient mental health. Doing so will likely lead to the development of higher quality safety interventions.

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Service user and carer involvement in mental health care safety: raising concerns and improving the safety of services

Cited by 19 publications

References 24 publications

‘They just came with the medication dispenser’- a qualitative study of elderly service users’ involvement and welfare technology in public home care services

‘They just came with the medication dispenser’- a qualitative study of elderly service users’ involvement and welfare technology in public home care services

Using peer workers with lived experience to support the treatment of borderline personality disorder: a qualitative study of consumer, carer and clinician perspectives

To what extent are patients involved in researching safety in acute mental healthcare?

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