Service Preferences Among Family Caregivers of the Terminally Ill

Brazil, Kevin; Bédard, Michel; Krueger, Paul; Abernathy, Tom; Lohfeld, Lynne; Willison, Kathleen

doi:10.1089/jpm.2005.8.69

Cited by 49 publications

(44 citation statements)

References 25 publications

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“…Caregivers have been found to be family members, female, usually the daughter or wife of the elderly person receiving care, and aged between 50 and 60 years, according to Brazilian 23,24 and international studies 14,25,26 . The majority of caregivers have an unfinished elementary education 4,23 -25 , are unemployed or dedicate themselves solely to domestic activities 24 .…”

Section: Discussionmentioning

confidence: 99%

“…The rural population has been described as suffering due to the distance from health equipment 12 , while the high crime rates, dense, populous and polluted environments that are typical of urban areas increase the risk of health problems 13 . There are often no differences between urban and rural caregivers, making it difficult to characterize the epidemiological profile of these specific populations 14,15 .…”

Section: Introductionmentioning

confidence: 99%

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Health profile of family caregivers of the elderly and its association with variables of care: a rural study

Brígola

Luchesi

Rossetti

et al. 2017

Rev. bras. geriatr. gerontol.

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Objective: to analyze the profile of a population of caregivers from a city in a rural area of the state of São Paulo, Brazil, and identify their health complaints and the characteristics of care provided. Method: a prospective cross-sectional study was performed based on a domicile survey of 99 caregivers and their elderly care recipients. Information about the profile, context of care and health complaints of the caregivers was collected. The caregivers responded to the Zarit Burden Inventory and the Geriatric Depression Scale-15 and the elderly underwent a cognition and functionality assessment. The chi-squared test with odds ratio (OR) was performed to test associations. Result: the majority of the caregivers were women (n=76), elderly (n=83), with a median age 65.8 (±10.4) years and 4.9 (±4.2) years of formal schooling. The most frequent health complaints were pain, systemic hypertension, insomnia, back problems and vision problems. The elderly care recipients were men (n=75), with an average age of 72.0 (±8.2) years. Analysis of associations revealed that caregivers who received emotional support had a lower chance of being highly overburdened (OR=0.37; CI95% 0.15-0.90). Caring for over five years was associated with arthritis (OR=2.50; CI95% 1.0-6.56). Caring of an elderly person with cognitive impairment was strongly associated with peripheral vascular diseases (OR=2.70; CI95% 1.11-6.85) and other diseases (OR=6.94; CI95% 1.43-33.63). Conclusion: A better understanding of the reality of care in rural and remote areas and the identification of factors related to the health care of caregivers provides better care management for the elderly and caregivers, who themselves are aging.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Health profile of family caregivers of the elderly and its association with variables of care: a rural study

Brígola

Luchesi

Rossetti

et al. 2017

Rev. bras. geriatr. gerontol.

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“…[6][7][8][9] Furthermore, despite earlier studies identifying considerable dissatisfaction with symptom control in a primary care setting, 3,10 satisfaction with GPs was still rated high 3 and relatives valued the involvement of GPs. 11,12 All in all, it suggests that good palliative care amounts to more than simply a certain degree of symptom control.…”

Section: Introductionmentioning

confidence: 99%

Associations between home death and GP involvement in palliative cancer care

et al. 2009

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BackgroundMost cancer patients die at institutions despite their wish for home death. GP-related factors may be crucial in attaining home death. AimTo describe cancer patients in palliative care at home and examine associations between home death and GP involvement in the palliative pathway. Design of studyPopulation-based, combined register and questionnaire study. SettingAarhus County, Denmark. MethodPatient-specific questionnaires were sent to GPs of 599 cancer patients who died during a 9-month period in 2006. The 333 cases that were included comprised information on sociodemography and GP-related issues; for example knowledge of the patient, unplanned home visits, GPs providing their private phone number, and contact with relatives. Register data were collected on patients' age, sex, cancer diagnosis, place of death, and number of GP home visits. Associations with home death were analysed in a multivariable regression model with prevalence ratios (PR) as a measure of association.

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“…Caring for a terminally ill relative can be a very stressful time for the caregiver [56] and caring for a terminally ill loved one involves both physical and mental burdens [17]. Where caregivers' often bear an un-measurable emotional burden for their work, where sadness, guilt, anger, resentment and a sense of inadequacy are common and understandable reactions [57,58]. Some of the common physical effects of caring reported in this study included fatigue, lack of sleep, exhaustion and burnout.…”

Section: Discussionmentioning

confidence: 99%

“…However, further support is required for example a caregivers' support group. Where carers' would be able to discuss their role and issues important to them with other carers in a safe environment and enable them to recognise that they were not alone in their situation and that other carers were facing similar problems [15,58]. Caregivers' support groups can also have an educational focus to support caregivers' prevent against feelings of powerlessness and helplessness, including after the death of the patient [30,62].…”

Section: Discussionmentioning

confidence: 99%

Family caregivers’ perceptions of an Irish palliative day-care unit: A qualitative descriptive study

Reidy¹,

Me²,

Doody³

2018

Nurs Palliat Care

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Aim and objectives: To describe family caregiver's perceptions of a palliative day-care service.Background: An emphasis on homecare for patients with advanced disease has meant that family caregivers' have greater responsibilities. Caregivers' can become vulnerable, prone to exhaustion, fatigue, anxiety, sleeplessness, weight loss, burnout, social isolation and general deterioration in health. Palliative day-care can alleviate carer stress and burden by providing care and supporting carers. Little evidence exists of caregivers' perceptions of palliative day-care units.

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Service Preferences Among Family Caregivers of the Terminally Ill

Abstract: The findings reported in this paper provide important insights into caregiver perceptions of valued services when caring for a terminally ill family member. These finding also highlight the stability of caregiver service perceptions over time and into bereavement.

Cited by 49 publications

References 25 publications

Health profile of family caregivers of the elderly and its association with variables of care: a rural study

Health profile of family caregivers of the elderly and its association with variables of care: a rural study

Associations between home death and GP involvement in palliative cancer care

Family caregivers’ perceptions of an Irish palliative day-care unit: A qualitative descriptive study

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