„Selten Gehörte“ für partizipative Gesundheitsforschung gewinnen: Herausforderungen und Strategien

Schaefer, Ina; Kümpers, Susanne; Cook, Tina

doi:10.1007/s00103-020-03269-7

Cited by 37 publications

(7 citation statements)

References 33 publications

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“…People who had undergone specialized, long-term rehabilitation for adults with an acquired brain injury in the past five years and lived in Berlin were invited to be co-researchers in this study. At the time of the study, the first author (TB) and her colleague (JK) were working as occupational therapists in the rehabilitation center and thus had the opportunity to involve these “seldom heard” [ 65 ] (p. 163) individuals in the research project.…”

Section: Methodsmentioning

confidence: 99%

“Back into Life—With a Power Wheelchair”: Learning from People with Severe Stroke through a Participatory Photovoice Study in a Metropolitan Area in Germany

Böttger

Dennhardt

Knape³

et al. 2022

IJERPH

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Severe stroke leads to permanent changes in everyday life. Many stroke survivors depend on support in community mobility (CM). This leads to restrictions and limited social participation. A power wheelchair (PWC) can enable independent CM and reduce such restrictions. This participatory study focused on how people with severe stroke experience their CM in a PWC in Berlin/Germany and what changes they want to initiate. A research team of five severe stroke survivors and two occupational therapists examined the question using photovoice. Stroke survivors took photos of their environment, presented, discussed, and analyzed them at group meetings to identify themes, and disseminated their findings at exhibitions and congresses. The photos emphasize the significance of and unique relationship to the PWC for the self-determined expression of personal freedom. As a complex, individualized construct, CM requires an accessible environment and diverse planning strategies by PWC users to arrive at their destination and overcome suddenly occurring obstacles. Desired changes stress CM independent of external help, increased social esteem, and active involvement in the provision of assistive devices. Voices of severe stroke survivors need to be heard more in healthcare and research to ensure the possibility of equal social participation.

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Section: Methodsmentioning

confidence: 99%

“Back into Life—With a Power Wheelchair”: Learning from People with Severe Stroke through a Participatory Photovoice Study in a Metropolitan Area in Germany

Böttger

Dennhardt

Knape³

et al. 2022

IJERPH

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“…Optimizing PIM with the PHR approach requires the availability of resources (e.g., time, skills, and staff) and an appropriate access to the end-user group [59,60]. In our case, both were available.…”

Section: Strengths and Limitationsmentioning

confidence: 98%

Optimizing Patient Information Material for a New Psycho-Oncological Care Program Using a Participatory Health Research Approach in Germany

Krieger

Salm

Dresen

et al. 2022

IJERPH

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High-quality patient information material (PIM) is essential for patients´ informed decision-making, and its quality may influence a care program’s acceptance. In the new psycho-oncological care program, isPO, the initial PIM was developed top-down and required optimization. In this paper, we report on the process and experiences of optimizing PIM’s quality bottom-up by applying a Participatory Health Research (PHR) approach. Cancer-patient representatives of the national peer-support group contributed as co-researchers as part of the optimization team. A mixed-methods design was chosen. First, the quality of the initially utilized PIM was assessed with the newly designed user-friendly instrument UPIM-Check. Next, three Participatory Action Research loops were conducted, including cancers survivors and isPO service providers. The initial isPO PIM’s were assed to be of low quality, limited usability and incomplete. Bottom-up generated optimization suggestions led to the improvement of two initially used PIMs (leaflet, patient information folder) and the design of two new PIMs (poster, study information overview). The optimized PIM facilitates isPO service providers’ care provision and helps newly diagnosed cancer patients in understanding and accepting the new program. PIM optimization benefited from applying PHR. The patient representatives’ contribution and active patient engagement were central for quality assessment and designing needs-driven, mature and complete PIM.

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“…Genauer betrachtet jedoch stoßen diese Klient_innen auf Barrieren im Hilfezugang und sind in diesem Sinne weniger "hard to reach" als vielmehr "selten gehört" (vgl. Schaefer et al 2021) oder in "ethical loneliness" (Stauffer 2015). Brackertz (2007)…”

Section: Beispiele Aus Der Praxisunclassified

Der Preis der Psychotherapie – Argumente für eine Wiederbelebung der sozialen Perspektive im psychotherapeutischen Denken und Handeln

Gahleitner

Giertz²,

Caspari

et al. 2022

Psychotherapie Forum

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ZusammenfassungDurch die Einführung der Richtlinienpsychotherapie in Deutschland im Jahr 1998 wurde eine psychotherapeutische Regelversorgung etabliert, die psychische Problemlagen auf der eindimensionalen Grundlage der ICD ohne Einbeziehung von wichtigen Konzepten wie Lebenswelt, Sozialraum oder Ressourcenorientierung betrachtet. Gesellschaftliche Einflüsse auf psychische Gesundheit und Krankheit spielen nur eine marginale Rolle. Die Behandlung ist ausschließlich von einer spezifischen ICD-Diagnose abhängig, alternative Behandlungsansätze sind aus der Regelversorgung systematisch ausgeschlossen. Effektivitätsnachweise sind strikt an RCT-Studien gekoppelt. Dadurch werden Patient_innen mit komplexen psychischen Problemlagen von der psychotherapeutischen Versorgung nur marginal erfasst. Neben einer kritischen Analyse zur aktuellen psychotherapeutischen Versorgung in Deutschland arbeiten die Autor_innen die Folgen dieser Entwicklung am Beispiel von gewaltbetroffenen Patient_innen und onkologischen Patient_innen heraus. Im Anschluss diskutieren sie notwendige Veränderungen innerhalb der Praxis und Profession der Psychotherapie.

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„Selten Gehörte“ für partizipative Gesundheitsforschung gewinnen: Herausforderungen und Strategien

Cited by 37 publications

References 33 publications

“Back into Life—With a Power Wheelchair”: Learning from People with Severe Stroke through a Participatory Photovoice Study in a Metropolitan Area in Germany

“Back into Life—With a Power Wheelchair”: Learning from People with Severe Stroke through a Participatory Photovoice Study in a Metropolitan Area in Germany

Optimizing Patient Information Material for a New Psycho-Oncological Care Program Using a Participatory Health Research Approach in Germany

Der Preis der Psychotherapie – Argumente für eine Wiederbelebung der sozialen Perspektive im psychotherapeutischen Denken und Handeln

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