Selling your soul to the devil: an autoethnography of pain, pleasure and the quest for a child

Neville-Jan, Ann

doi:10.1080/0968759042000181758

Cited by 23 publications

(10 citation statements)

References 22 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…That said, there are scholars that have produced them (Murphy 1990;Smith 1999;Sparkes 2002). For example, Neville-Jan (2004) presented an autoethnography in the form of a quest narrative (Frank 1995) linked as a self-reflexive text to her research on children and adults with spina bifida. To give a flavour of what her autoethnography looks like consider the following abbreviated vignette that describes part of her journey for a quest for a child.…”

Section: Showing the Whats And Hows: Storytellers Creative Analytic mentioning

confidence: 98%

Narrative and its potential contribution to disability studies

Smith

Sparkes

2007

Disability & Society

172

View full text Add to dashboard Cite

BrettSmith b.m.smith@canterbury.ac.uk This article seeks to expand our understanding of narrative and the analysis of stories researchers invite and collect in the domain of disability studies. What narrative inquiry is and various reasons why researchers might opt to choose to turn to narratives are highlighted. Painting with broad strokes, narrative analysis is then considered before a typology of different ways in which stories can be analysed is offered. Illuminated by the typology are two contrasting standpoints on narrative analysis (storyteller and story analyst) and three specific methods (structural, performative, and autoethnographic creative analytic practices) that each standpoint might use to analyse the whats and hows of stories. The article closes by suggesting that researchers might consider using a variety of analyses in order to assist us to understand the complexities of the social world in diverse ways.

show abstract

Section: Showing the Whats And Hows: Storytellers Creative Analytic mentioning

confidence: 98%

Narrative and its potential contribution to disability studies

Smith

Sparkes

2007

Disability & Society

172

View full text Add to dashboard Cite

show abstract

“…However, the context and personal experience of being disabled affect which dimension is foregrounded (Hughes and Paterson 1997;Neville-Jan 2004;Shakespeare 2006Shakespeare , 2004Shakespeare and Watson 1997;Watson 2012;Thomas 1999). The following analyses will discuss how the children's experiences from attending consultations elucidate the relation between biomedical and social dimensions of disability.…”

Section: Theoretical Frameworkmentioning

confidence: 99%

‘I want them to see that I feel normal’: three children’s experiences from attending consultations in paediatric rehabilitation

Bekken

2014

Disability & Society

View full text Add to dashboard Cite

Points of interest1. The article presents children's experiences of taking part in consultations at a paediatric rehabilitation unit. 2. The children describe how they are involved, and what they find important to talk about during a consultation. 3. The results demonstrate how disability in this context holds to a biomedical understanding, while the children request more focus on how they participate in activities and manage their social life. 4. The article illustrates the importance of listening to children's experiences to see their competence. Abstract This article describes and analyses three children's experiences of taking part in consultations at a paediatric rehabilitation unit in Norway. The analyses focus on how the children express themselves through social life experiences during the consultation. It is This is a postprint-version of the article published as: Bekken, W. (2014). 'I want them to see that I feel normal': three children's experiences from attending consultations in paediatric rehabilitation. Disability & Society, 29(5), 778-791. discussed how the children apply their embodied knowledge and experience in identifying themselves as normal, and what challenges this identification during a consultation. The analyses emphasize what the children's experiences can mean, and how these experiences represent professional practice and structural constraints in paediatric rehabilitation. By investigating the child's embodied knowledge during consultations, a focus on biomedical issues may overshadow the child's own perceptions of issues related to functioning in everyday life. The children's descriptions are relevant for advocating children's participation in matters concerning their own lives, and for disabled children's participation in decision-making more specifically.

show abstract

“…So far, the surgery has decreased the need for a shunt at birth (Bruner et al, 1999). Neville-Jan, 2004), I used autoethnography to connect the personal experience of pain more directly with political action.…”

Section: Into the 21st Centurymentioning

confidence: 99%

“…For me, as a researcher studying adults with spina bifida, a group of which I am a member, autoethnography provides a means for me to connect my self-as-researcher and self-as-research participant. In previous articles, I have used my personal experiences of living with spina bifida to question the dominant discourses about pain (Neville-Jan, 2003) and about sexuality (Neville-Jan, 2004). Autoethnography as a means to understand the lived experience of disability fits within Kielhofner's (2004Kielhofner's ( , 2005 recommendations for research in occupational therapy that incorporates disability studies.…”

mentioning

confidence: 99%

The Problem With Prevention: The Case of Spina Bifida

Neville-Jan

2005

The American Journal of Occupational Therapy

View full text Add to dashboard Cite

In this paper, I present a viewpoint about prevention and spina bifida that is not usually expressed within the occupational therapy literature. Using an autoethnographic account, I convey my experiences as a person with impairments from spina bifida in order to problematize current preventive efforts undertaken to eradicate this birth defect. This self-reflexive account connects my personal experiences to historical and medical views about spina bifida. The messages inherent in preventive efforts are discussed from a disability rights perspective. Occupational therapists are challenged to examine their attitudes toward disability, act as advocates in their practice, and, in a more informed manner, support or contest policy initiatives.

show abstract

Selling your soul to the devil: an autoethnography of pain, pleasure and the quest for a child

Cited by 23 publications

References 22 publications

Narrative and its potential contribution to disability studies

Narrative and its potential contribution to disability studies

‘I want them to see that I feel normal’: three children’s experiences from attending consultations in paediatric rehabilitation

The Problem With Prevention: The Case of Spina Bifida

Contact Info

Product

Resources

About