Self-reported treatment adherence in inflammatory bowel disease in Indian patients

Bhatt, Jay; Patil, Samir; Joshi, Anand; Abraham, Philip; Desai, Devendra

doi:10.1007/s12664-009-0050-z

Cited by 24 publications

(23 citation statements)

References 19 publications

(15 reference statements)

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“…However, patient-estimated adherence rates over the past 7 days were lower. Similar to rates observed in previous observational data [6,7,11,12,14,16-20], these low adherence rates are troublesome, given that poor adherence with 5-ASA therapy is linked to an increased risk of flare and higher medical costs [11-13,21]. In turn, increased disease activity can also result in deterioration of patient quality of life [2,22-24].…”

Section: Discussionsupporting

confidence: 68%

Perception gaps between patients with ulcerative colitis and healthcare professionals: an online survey

et al. 2012

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BackgroundThe purpose of this study was to examine the differing perspectives and perceptual gaps relating to ulcerative colitis (UC) symptoms and their management between patients and healthcare professionals (HCPs).MethodsStructured, cross-sectional, Web-based questionnaires designed to assess a variety of disease indices were completed by adult patients with UC and HCPs involved in the care of patients with UC from Canada, France, Germany, Ireland, Spain, and the United Kingdom.ResultsSurveys were completed by 775 patients, 475 physicians, and 50 nurses. Patient self-reported classification of disease severity revealed generally greater severity (mild, 32%; moderate, 53%) compared with physician and nurse estimates of UC severity among their caseloads (mild, 52% and 49%; moderate, 34% and 37%, respectively). Patients reported that an average of 5.5 (standard deviation, 11.0) flares (self-defined) occurred over the past year, compared with 3.4 and 3.8 flares per year estimated by physicians and nurses. Perceived flare triggers differed between patients (stress ranked first) and HCPs (natural disease course ranked first). Fifty-five percent of patients stated that UC symptoms over the past year had affected their quality of life, while physicians and nurses estimated that 35% to 37% of patients would have a reduced quality of life over the same period. Patients ranked urgency and pain as the most bothersome symptoms, while physicians and nurses ranked urgency and stool frequency highest. About half of patients (47%) defined remission as experiencing no symptoms; by comparison, 62% to 63% of HCPs defined remission as requiring the complete absence of symptoms. HCPs (doctors/nurses in general practice and/or hospital) were regarded by patients as their main source of UC information by 72%; however, 59% reported not arranging regular visits to see their HCPs.ConclusionsThis large survey identified important differences between patients' and HCPs' perceptions of the impact of UC symptoms on patients' lives. Notably, HCPs may underestimate the effect of specific UC symptoms on patients and may fail to recognize issues that are important to patients.

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Section: Discussionsupporting

confidence: 68%

Perception gaps between patients with ulcerative colitis and healthcare professionals: an online survey

et al. 2012

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“…In addition to the use of complementary therapy there is a tendency towards significantly low levels of adherence to 5-aminosalicylic acid treatment among patients of South Asian origin. This has been reported in studies both from India61 and the UK 62…”

Section: Inflammatory Bowel Diseasesupporting

confidence: 65%

Gastroenterology and the provision of care to Panjabi patients in the UK: Table 1

Mayberry

Farrukh

2012

Frontline Gastroenterol

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SummaryPanjabi is spoken by 1.3 million people in the UK. It is the second most common language used in the country and is the fi rst choice of 75% of Panjabis. It is becoming more common. For many patients it forms part of the barrier which limits access to gastrointestinal services. The provision of appropriate support services is woeful and yet seldom leads to formal complaints. This review considers the impact of gastrointestinal disorders on the Panjabi community and assesses some of the interventions that could be developed to ensure equity of care.

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“…Disease duration, location and activity as well as a recent diagnosis and infrequent visits to physician were related to noncompliance (4,9). In addition, drug-related factors such as type of drugs, burden of drug regimens, multiple therapies, and complicated dosage regimens increased the risk of forgetfulness (2,4,10). The first studies investigating IBD patient's information needs in the 70's to 90's showed concerns focused on aetiology, symptoms, diet, and on 6 therapies and their related risks and benefits (11)(12)(13)(14)(15).…”

Section: Introductionmentioning

confidence: 99%

Patients' information-seeking activity is associated with treatment compliance in inflammatory bowel disease patients

Pittet

Rogler

Mottet

et al. 2014

Scandinavian Journal of Gastroenterology

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BACKGROUND: Despite the chronic and relapsing nature of inflammatory bowel diseases (IBD), at least 30% to 45% of the patients are noncompliant to treatment. IBD patients often seek information about their disease. AIM: To examine the association between information-seeking activity and treatment compliance among IBD patients. To compare information sources and concerns between compliant and noncompliant patients. METHODS: We used data from the Swiss IBD cohort study, and from a qualitative survey conducted to assess information sources and concerns. Crude and adjusted odds ratios (OR) for noncompliance were calculated. Differences in the proportions of information sources and concerns were compared between compliant and noncompliant patients. RESULTS: A total of 512 patients were included. About 18% (n = 99) of patients were reported to be noncompliant to drug treatment and two-thirds (n = 353) were information seekers. The OR for noncompliance among information seekers was 2.44 (95%CI: 1.34-4.41) after adjustment for confounders and major risk factors. General practitioners were 15.2% more often consulted (p = 0.019) among compliant patients, as were books and television (+13.1%; p = 0.048), whereas no difference in proportions was observed for sources such as internet or gastroenterologists. Information on tips for disease management were 14.2% more often sought among noncompliant patients (p = 0.028). No difference was observed for concerns on research and development on IBD or therapies. CONCLUSION: In Switzerland, IBD patients noncompliant to treatment were more often seeking disease-related information than compliant patients. Daily management of symptoms and disease seemed to be an important concern of those patients.

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Self-reported treatment adherence in inflammatory bowel disease in Indian patients

Abstract: Over 80% of patients with IBD in this survey were non-adherent to medical treatment; forgetfulness was mentioned as the most common cause. Non-adherent patients were more likely to relapse. Patients need to be educated regarding the need for adherence to treatment in IBD.

Cited by 24 publications

References 19 publications

Perception gaps between patients with ulcerative colitis and healthcare professionals: an online survey

Perception gaps between patients with ulcerative colitis and healthcare professionals: an online survey

Gastroenterology and the provision of care to Panjabi patients in the UK: Table 1

Patients' information-seeking activity is associated with treatment compliance in inflammatory bowel disease patients

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