Self-reported Pediatric Measures of Physical Activity, Sedentary Behavior, and Strength Impact for PROMIS

Tucker, Carole A.; Bevans, Katherine B.; Teneralli, Rachel E.; Smith, Ashley Wilder; Bowles, Heather R.; Forrest, Christopher B.

doi:10.1097/pep.0000000000000073

Cited by 24 publications

(18 citation statements)

References 22 publications

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“…Prior work supports the psychometric properties of the original PROMIS domains for use in children with SCD . Recognizing the need for additional domains that address pain and physical functioning in children with chronic disease, investigators developed new PROMIS domains to assess pain behavior, pain quality, physical stress experience, physical activity, and strength impact . These domains are relevant to children with SCD who commonly experience fatigue and acute and chronic pain.…”

Section: Introductionmentioning

confidence: 99%

Use of the new pediatric PROMIS measures of pain and physical experiences for children with sickle cell disease

Singh

Dasgupta

Simpson

et al. 2019

Pediatric Blood & Cancer

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Background There are new pediatric domains to measure patients’ pain and physical experiences in the Patient‐Reported Outcomes Measurement Information System (PROMIS). The objective of this study was to establish the psychometric properties of these domains for children with sickle cell disease (SCD). Procedure We conducted a cross‐sectional analysis of PROMIS assessments of children with SCD recruited from a pediatric tertiary care clinic. Validity of the new PROMIS domains was determined by comparing scores between known groups and describing their correlations with previously validated PROMIS measures. Cronbach's alpha and item response theory (IRT) reliability were used to assess internal consistency reliability. Agreement between parent‐proxy and child self‐report was determined for all domains. Results Our study included 164 subjects, of whom 117 were eligible to self‐report. The mean T‐scores for physical stress experience, strength impact, pain behavior, and pain quality sensory scores were significantly different between children who used pain medications in the prior week and those who did not. There were also differences in T‐scores across children reporting mild, moderate, and severe pain on the pain intensity scale. All measures had Cronbach's alpha and IRT reliability > 0.80. The percentage of agreement between child and parent‐proxy PROMIS domains ranged from 36% to 60% depending on the domain. Conclusions The new PROMIS domains of physical stress experience, strength impact, pain behavior, and pain quality sensory domains are valid and reliable for children with SCD. The low–moderate agreement between parent‐proxy and child self‐report scores support the complementary information provided by the two perspectives.

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Section: Introductionmentioning

confidence: 99%

Use of the new pediatric PROMIS measures of pain and physical experiences for children with sickle cell disease

Singh

Dasgupta

Simpson

et al. 2019

Pediatric Blood & Cancer

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“…Within the 87 articles, 162 studies were conducted, with 103 assessing construct validity, 50 test–retest reliability, and nine measurement error. Four of the included questionnaires were assessed by two of the included studies, i.e., the 3-Day Physical Activity Recall (3DPARecall) [ 19 , 20 ], the Activity Questionnaire for Adults and Adolescents (AQuAA) [ 21 , 22 ], the Oxford Physical Activity Questionnaire (OPAQ) [ 23 , 24 ], and a physical activity, sedentary behavior, and strength questionnaire [ 25 , 26 ]. Furthermore, two of the questionnaires were assessed by three of the included studies, i.e., the Physical Activity Questionnaire for Older Children (PAQ-C) [ 27 – 29 ], and the Previous Day Physical Activity Recall (PDPAR) [ 30 – 32 ].…”

Section: Resultsmentioning

confidence: 99%

“…Six of the included questionnaires were qualitatively assessed on content validity, one of which was assessed by two studies [ 25 , 26 , 34 – 37 ]. Studies used cognitive interviews, semi-structured interviews, and focus groups with children and adolescents and/or experts (e.g., researchers in the field of sports medicine, pediatrics, and measurement) to assess the comprehensibility, relevance of items, and comprehensiveness of the questionnaires.…”

Section: Resultsmentioning

confidence: 99%

An Updated Systematic Review of Childhood Physical Activity Questionnaires

et al. 2018

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Background and ObjectiveThis review is an update of a previous review published in 2010, and aims to summarize the available studies on the measurement properties of physical activity questionnaires for young people under the age of 18 years.MethodsSystematic literature searches were carried out using the online PubMed, EMBASE, and SPORTDiscus databases up to 2018. Articles had to evaluate at least one of the measurement properties of a questionnaire measuring at least the duration or frequency of children’s physical activity, and be published in the English language. The standardized COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) checklist was used for the quality assessment of the studies.ResultsThis review yielded 87 articles on 89 different questionnaires. Within the 87 articles, 162 studies were conducted: 103 studies assessed construct validity, 50 assessed test–retest reliability, and nine assessed measurement error. Of these studies, 38% were of poor methodological quality and 49% of fair methodological quality. A questionnaire with acceptable validity was found only for adolescents, i.e., the Greek version of the 3-Day Physical Activity Record. Questionnaires with acceptable test–retest reliability were found in all age categories, i.e., preschoolers, children, and adolescents.ConclusionUnfortunately, no questionnaires were identified with conclusive evidence for both acceptable validity and reliability, partly due to the low methodological quality of the studies. This evidence is urgently needed, as current research and practice are using physical activity questionnaires of unknown validity and reliability. Therefore, recommendations for high-quality studies on measurement properties of physical activity questionnaires were formulated in the discussion.PROSPERO Registration NumberCRD42016038695.Electronic supplementary materialThe online version of this article (10.1007/s40279-018-0987-0) contains supplementary material, which is available to authorized users.

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“…The following activities were performed to develop item pools that mapped to our previously identified conceptual framework 1 (see Table 2 in our companion manuscript) for each of our 3 domains (PA, SB and Strength). The items then were used in cognitive interviews, and underwent translatability and comprehensibility review to ensure each item’s meaning and responses were clear to children (Figure).…”

Section: Methodsmentioning

confidence: 99%

“…The development of outcomes instruments should be based on a conceptual framework that is consistent with the intended use, current available knowledge from experts and the literature, and also reflects the respondents’, in this case children’s, perception and understanding of the underlying concept. In the previous paper, 1 we reported on development of child-informed domain frameworks for 3 health related PA concepts – PA, SB and strengthening behaviors (Strength). In this paper, we report the development and refinement of item pools for each of these concepts, the next stage in the development of self-report measures of PA, SB and Strength.…”

Section: Introductionmentioning

confidence: 99%

Self-reported Pediatric Measures of Physical Activity, Sedentary Behavior, and Strength Impact for PROMIS

Tucker

Bevans

Teneralli

et al. 2014

Pediatric Physical Therapy

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Background Children's activity level is commonly assessed in clinical research, but rigorous assessment tools for children are scarce. Our objectives were to improve pediatric activity self-report measures using qualitative methods to develop item pools that measure these concepts. Methods Based on the items generated from our conceptual framework development, we applied cognitive interviews and comprehensibility reviews to ensure children readily understood the items. Results Our methods resulted in 129 unique items, physical activity (80 items), sedentary behaviors (23 items), and strengthening activities (26 items), that were comprehensible to children between the ages of 8 – 18 years. Comprehensibility review resulted in the deletion of 4 items. Conclusions The resultant item pools reflect children's experiences and understanding of the concepts of physical activity, sedentary behavior and strengthening activities. The item pools will undergo calibration using item response theory to support computer adaptive test administration of self and proxy reported outcomes.

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Self-reported Pediatric Measures of Physical Activity, Sedentary Behavior, and Strength Impact for PROMIS

Cited by 24 publications

References 22 publications

Use of the new pediatric PROMIS measures of pain and physical experiences for children with sickle cell disease

Use of the new pediatric PROMIS measures of pain and physical experiences for children with sickle cell disease

An Updated Systematic Review of Childhood Physical Activity Questionnaires

Self-reported Pediatric Measures of Physical Activity, Sedentary Behavior, and Strength Impact for PROMIS

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