Self‐reported impact of developmental stuttering across the lifespan

Boyce, Jessica O; Jackson, Victoria E.; Reyk, Olivia van; Parker, Richard; Vogel, Adam P.; Eising, Else; Horton, Sarah E.; Gillespie, Nathan A.; Scheffer, Ingrid E.; Amor, David J.; Hildebrand, Michael S.; Fisher, Simon E.; Martin, Nicholas G.; Reilly, Sheena; Bahlo, Melanie; Morgan, Angela

doi:10.1111/dmcn.15211

Cited by 11 publications

(6 citation statements)

References 49 publications

(117 reference statements)

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“…geneticsofstutteringstudy.org.au). We invited 1,071 participants from the Australian arm of this cohort with a selfreported history of stuttering described in the work of Boyce et al (2022) for deep phenotypic characterization.…”

Section: Participantsmentioning

confidence: 99%

“…Participants self-enrolled through the website (http://www.geneticsofstutteringstudy. org.au), where they provided their consent and completed survey questions (Boyce et al, 2022).…”

Section: Participantsmentioning

confidence: 99%

“…Around 70% of children who begin to stutter will recover, either naturally or with intervention (Franken et al, 2018;Yairi et al, 1996), and lifetime population prevalence of stuttering is estimated at 1% worldwide (Craig & Tran, 2005). Stuttering severity appears to decrease with increasing age (Boyce et al, 2022); however, stuttering can still have a profound effect on quality of life, including reduced educational and vocational attainment (Gerlach et al, 2018;McAllister et al, 2012), increased incidence of bullying and social rejection (Langevin et al, 2009), and increased anxiety-related mental health issues in children and adults (Briley et al, 2021;Iverach et al, 2016Iverach et al, , 2009.…”

Section: Introductionmentioning

confidence: 99%

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Self-Reported Stuttering Severity Is Accurate: Informing Methods for Large-Scale Data Collection in Stuttering

Horton,

Jackson,

Boyce

et al. 2023

J Speech Lang Hear Res

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Purpose: To our knowledge, there are no data examining the agreement between self-reported and clinician-rated stuttering severity. In the era of big data, self-reported ratings have great potential utility for large-scale data collection, where cost and time preclude in-depth assessment by a clinician. Equally, there is increasing emphasis on the need to recognize an individual's experience of their own condition. Here, we examined the agreement between self-reported stuttering severity compared to clinician ratings during a speech assessment. As a secondary objective, we determined whether self-reported stuttering severity correlated with an individual's subjective impact of stuttering. Method: Speech-language pathologists conducted face-to-face speech assessments with 195 participants (137 males) aged 5–84 years, recruited from a cohort of people with self-reported stuttering. Stuttering severity was rated on a 10-point scale by the participant and by two speech-language pathologists. Participants also completed the Overall Assessment of the Subjective Experience of Stuttering (OASES). Clinician and participant ratings were compared. The association between stuttering severity and the OASES scores was examined. Results: There was a strong positive correlation between speech-language pathologist and participant-reported ratings of stuttering severity. Participant-reported stuttering severity correlated weakly with the four OASES domains and with the OASES overall impact score. Conclusions: Participants were able to accurately rate their stuttering severity during a speech assessment using a simple one-item question. This finding indicates that self-report stuttering severity is a suitable method for large-scale data collection. Findings also support the collection of self-report subjective experience data using questionnaires, such as the OASES, which add vital information about the participants' experience of stuttering that is not captured by overt speech severity ratings alone.

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Section: Participantsmentioning

confidence: 99%

“…Participants self-enrolled through the website (http://www.geneticsofstutteringstudy. org.au), where they provided their consent and completed survey questions (Boyce et al, 2022).…”

Section: Participantsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Self-Reported Stuttering Severity Is Accurate: Informing Methods for Large-Scale Data Collection in Stuttering

Horton,

Jackson,

Boyce

et al. 2023

J Speech Lang Hear Res

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“…The covert consequences range from shame and frustration to social anxiety. Stuttering can severely limit the scope of interpersonal verbal communication and set up barriers that impact education and employment outcomes [ 7 ].…”

Section: Introductionmentioning

confidence: 99%

Knowns and unknowns about the neurobiology of stuttering

Neef,

Chang

2024

PLoS Biol

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Stuttering occurs in early childhood during a dynamic phase of brain and behavioral development. The latest studies examining children at ages close to this critical developmental period have identified early brain alterations that are most likely linked to stuttering, while spontaneous recovery appears related to increased inter-area connectivity. By contrast, therapy-driven improvement in adults is associated with a functional reorganization within and beyond the speech network. The etiology of stuttering, however, remains enigmatic. This Unsolved Mystery highlights critical questions and points to neuroimaging findings that could inspire future research to uncover how genetics, interacting neural hierarchies, social context, and reward circuitry contribute to the many facets of stuttering.

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“…Boyce et al 2 sought to assess the impact of stuttering based on a variety of self‐report measures. Consistent with prior studies, 3 they found that individuals who stutter exhibit their own unique phenotype reflecting their unique personal characteristics and experiences with stuttering.…”

mentioning

confidence: 99%