Self-Reported Abdominal Symptoms in Relation to Health Status in Adult Patients With Familial Adenomatous Polyposis

Fritzell, Kaisa; Björk, Jan; Hultcrantz, Rolf; Wettergren, Lena

doi:10.1007/dcr.0b013e3182147fbe

Cited by 3 publications

(3 citation statements)

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“…It has previously been reported that patients with FAP are in need of psychological support due to FAP-specific distress [25] and a higher Non-specialized care = 0, specialized care = 1. number of abdominal symptoms has been found to be related to poor physical and mental health [23]. This is why patients with FAP may benefit from health care providers who focus not only on cancer prevention but also view FAP as a chronic illness and include the patients' illness experiences [26], self-care [27], quality of life [23], and adherence [28] in their care. Measuring quality of care is a well-known methodological challenge, as patients generally report high levels of quality of care [8,20] independently of care received and questionnaires used.…”

Section: Discussionmentioning

confidence: 98%

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Patients with genetic cancer undergoing surveillance at a specialized clinic rate the quality of their care better than patients at non-specialized clinics

Fritzell

Björk

Sprangers

et al. 2012

Scandinavian Journal of Gastroenterology

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Section: Discussionmentioning

confidence: 98%

“…The ASQ includes 21 items measuring the presence of abdominal symptoms over the three preceding months. The ASQ is regarded as a valid measure of abdominal symptoms in patients with FAP [23]. A mean of 7 (SD 4.61; range 1-18) symptoms has previously been reported in the present sample [23].…”

Section: Methodsmentioning

confidence: 97%

Patients with genetic cancer undergoing surveillance at a specialized clinic rate the quality of their care better than patients at non-specialized clinics

Fritzell

Björk

Sprangers

et al. 2012

Scandinavian Journal of Gastroenterology

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“…Patients with the hereditary colorectal cancer syndrome familial adenomatous polyposis (FAP) experience several symptoms that may affect physical and mental health . FAP requires prophylactic removal of the colon, followed by life‐long endoscopic surveillance.…”

Section: Introductionmentioning

confidence: 99%

The role of illness perceptions in adherence to surveillance in patients with familial adenomatous polyposis (FAP)

et al. 2015

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Objective The aim of the study was to examine patients' beliefs about having familial adenomatous polyposis (FAP), a hereditary colorectal cancer syndrome, and how these beliefs are associated with adherence to endoscopic surveillance. Methods Adult patients diagnosed with FAP on the national Swedish polyposis register who had undergone prophylactic colorectal surgery (n 209, response rate 76%) completed the Illness Perception Questionnaire (IPQ). Logistic regression analysis was used to investigate the relationships between illness perceptions and adherence, when controlling for demographic and clinical factors. Results FAP was less distressing in men and those with fewer symptoms, reporting less serious consequences and more coherent understanding of FAP. Non‐adherence (14%) to surveillance was associated with being older, having undergone surgery less recently and no history of malignancy. Patients' beliefs about their FAP were able to explain unique variance in non‐adherence, in particular those who believed FAP was less distressing. Conclusions Patients who were non‐adherent to endoscopic surveillance had more positive perceptions about their FAP and, in particular, were less emotionally affected compared to those who adhered. As non‐adherence implies a greater risk of future malignancies, special efforts are required to effectively prevent cancer in all patients with FAP. Those who have lived with the condition for a long time, and are not troubled by gastrointestinal symptoms or worried about their FAP, may be in need of specific information and support. Further prospective research is required to examine emotional predictors and consequences of non‐adherence. Copyright © 2015 John Wiley & Sons, Ltd.

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Chemoprevention in patients with genetic risk of colorectal cancers

2012

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SUMMARY A number of genetic syndromes are known to convey a high risk of colorectal cancer. Current standards of medical practice for these patients involve genetic testing followed by screening and surgical procedures. Pharmaceutical therapies for any of these syndromes are limited in number and are generally not approved by any regulatory body for applications in these genetic groups. This review discusses advances in mechanistic understanding of the disease processes leading to the development of promising pharmaceutical therapies. Clinical trials of potential chemotherapeutic agents must focus on the reduction of disease-related events, including cancer and cancer-related mortality, in patients with genetic syndromes.

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Self-Reported Abdominal Symptoms in Relation to Health Status in Adult Patients With Familial Adenomatous Polyposis

Cited by 3 publications

References 20 publications

Patients with genetic cancer undergoing surveillance at a specialized clinic rate the quality of their care better than patients at non-specialized clinics

Patients with genetic cancer undergoing surveillance at a specialized clinic rate the quality of their care better than patients at non-specialized clinics

The role of illness perceptions in adherence to surveillance in patients with familial adenomatous polyposis (FAP)

Chemoprevention in patients with genetic risk of colorectal cancers

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