Self‐report instruments for measuring patient dignity: A psychometric systematic review

Lam, Le‐Trinh; Chang, Hsin Yi; Natashia, Dhea; Lai, Wei‐Shu; Yen, Miaofen

doi:10.1111/jan.15436

Cited by 6 publications

(10 citation statements)

References 58 publications

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“…The resulting 15-item PROM with a 5-factor structure covers the major factors that affect hospitalized older adults' dignity as discussed in the literature, including shared decision-making, HCP-patient communication, patient autonomy, patient privacy and respectful care (Kerr et al, 2020;Nouri et al, 2017;Šaňáková & Čáp, 2019;. Previous systematic reviews of dignity-related PROMs have identified the Inpatient Dignity Scale (IPDS) (Ota et al, 2019) and the Patient Dignity Inventory (PDI) (Chochinov et al, 2008) as the most valid and reliable measures for measuring patients' dignity during acute hospitalization (Fuseini, Redley et al, 2023;Lam et al, 2022).…”

Section: Discussionmentioning

confidence: 99%

“…that have not been captured by previous dignity-related measures (Karimi et al, 2019; TA B L E 3 Results of exploratory factor analysis. (Fuseini, Redley et al, 2023;Lam et al, 2022). Another unique contribution of the HOADS to the advancement of knowledge on dignity for older adults is the identification of PROM items that are unique to the Ghanaian and African contexts.…”

Section: Discussionmentioning

confidence: 99%

“…Previous systematic reviews of dignity‐related PROMs have identified the Inpatient Dignity Scale (IPDS) (Ota et al, 2019) and the Patient Dignity Inventory (PDI) (Chochinov et al, 2008) as the most valid and reliable measures for measuring patients' dignity during acute hospitalization (Fuseini, Redley et al, 2023; Lam et al, 2022). Compared with these measures, the factor structure of the HOADS shared some resemblance with the IPDS (Ota et al, 2019), but was incongruent with the PDI (Chochinov et al, 2008).…”

Section: Discussionmentioning

confidence: 99%

“…the Dignity Importance and Observance Scale) (Karimi et al, 2019) with subdomains such as Privacy, Communication, and Autonomy. These previous PROMs were developed without strict adherence to standard methodological quality guidelines and, therefore, cannot be regarded as valid and reliable PROMs (Fuseini, Redley et al, 2023; Lam et al, 2022). Another unique contribution of the HOADS to the advancement of knowledge on dignity for older adults is the identification of PROM items that are unique to the Ghanaian and African contexts.…”

Section: Discussionmentioning

confidence: 99%

“…These PROMs were the 6‐item Patient Dignity Survey Tool developed in the UK (Tauber‐Gilmore, Norton, et al, 2018), and the 41‐item Dignity Importance and Observance Scale that was developed in Iran (Karimi et al, 2019). However, a critical appraisal of the methodological quality of these PROMs revealed that they did not meet standard criteria as valid and reliable measures for measuring dignity in hospitalized older adults due to insufficient quality of evidence for content validity and other relevant measurement properties (Fuseini, Redley et al, 2023; Lam et al, 2022). For example, besides the fact that, the 41‐item Dignity Importance and Observance Scale (Karimi et al, 2019) is too long for the older adult population, conceptualization of the PROM was mainly informed by a review of evidence in the literature and expert opinions without the involvement of older adults (Fuseini, Redley et al, 2023).…”

Section: Introductionmentioning

confidence: 99%

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Development and psychometric validation of the hospitalized older adults' dignity scale for measuring dignity during acute hospitalization

Fuseini

Mohebbi

Redley

et al. 2023

Journal of Advanced Nursing

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AimTo develop and validate a culturally appropriate patient‐reported outcome measure for measuring dignity for older adults during acute hospitalization.DesignA three‐phased exploratory sequential mixed‐method design was used.MethodsDomains were identified and items were generated from findings of a recent qualitative study, two systematic reviews and grey literature. Content validity evaluation and pre‐testing were undertaken using standard instrument development techniques. Two‐hundred and seventy hospitalized older adults were surveyed to test construct and convergent validity, internal consistency reliability and test–retest reliability of the measure. Analysis was performed using Statistical Package for the Social Sciences, version 25. The STROBE checklist was used to document reporting of the study.ResultsWe established the 15‐item Hospitalized Older Adults' Dignity Scale (HOADS) that has a 5‐factor structure: shared decision‐making (3 items); healthcare professional‐patient communication (3 items); patient autonomy (4 items); patient privacy (2 items); respectful care (3 items). Excellent content validity, adequate construct and convergent validity, acceptable internal consistency reliability and good test–retest reliability were demonstrated.ConclusionWe established the HOADS is a valid and reliable scale to measure dignity for older adults during acute hospitalization. Future studies using confirmatory factor analysis are needed to corroborate the dimensionality of the factor structure and external validity of the scale. Routine use of the scale may inform the development of strategies to improve dignity‐related care in the future.ImpactThe development and validation of the HOADS will provide nurses and other healthcare professionals with a feasible and reliable scale for measuring older adults' dignity during acute hospitalization. The HOADS advances the conceptual understanding of dignity in hospitalized older adults by including additional constructs that have not been captured in previous dignity‐related measures for older adults (i.e. shared decision‐making and respectful care). The factor structure of the HOADS, therefore, includes five domains of dignity and offers a new opportunity for nurses and other healthcare professionals to better understand the nuances of dignity for older adults during acute hospitalization. For example, the HOADS enables nurses to identify differences in levels of dignity based on contextual factors and to use this information to guide the implementation of strategies that promote dignified care.Patient or Public ContributionPatients were involved in the generation of items for the scale. Their perspectives and the perspectives of experts were sought in determining the relevance of each item of the scale to patients' dignity.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Development and psychometric validation of the hospitalized older adults' dignity scale for measuring dignity during acute hospitalization

Fuseini

Mohebbi

Redley

et al. 2023

Journal of Advanced Nursing

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Dignity in Medicine: Definition, Assessment and Therapy

Grassi,

Nanni,

Riba

et al. 2024

Curr Psychiatry Rep

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Purpose of Review Over the last 20 years, dignity and dignity-conserving care have become the center of investigation, in many areas of medicine, including palliative care, oncology, neurology, geriatrics, and psychiatry. We summarized peer-reviewed literature and examined the definition, conceptualization of dignity, potential problems, and suggested interventions. Recent Findings We performed a review utilizing several databases, including the most relevant studies in full journal articles, investigating the problems of dignity in medicine. It emerged that dignity is a multifactorial construct and that dignity-preserving care should be at the center of the health organization. Dignity should be also regularly assessed through the tools currently available in clinical practice. Among dignity intervention, besides dignity models of care, dignity intervention, such as dignity therapy (DT), life review and reminiscence therapy, have a role in maintaining both the extrinsic (preserved when health care professionals treat the patient with respect, meeting physical and emotional needs, honors the patient’s wishes, and makes attempts to maintain privacy and confidentiality) and intrinsic dignity (preserved when the patient has appropriate self-esteem, is able to exercise autonomy and has a sense of hope and meaning). Summary Unified trends across diverse medical contexts highlight the need for a holistic, patient-centered approach in healthcare settings. Challenges compromising dignity are pervasive, underscoring the importance of interventions and systematic efforts to address these issues. Future research and interventions should prioritize the multifaceted nature of dignity, striving to create healthcare environments that foster compassion, respect, and dignity across all medical settings.

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