Self-rated health aspects among persons living with chronic obstructive pulmonary disease

Abstract

PurposeTo describe a cohort of chronic obstructive pulmonary disease (COPD) patients and perform a within-group comparison regarding self-management activation, social provision, and health status.Patients and methodsA cross-sectional survey including 116 persons.ResultsThe sample comprised 65 men and 38 women, mean age 69 years. Fourteen percent reported very high impact of COPD on their health; 19% had received pulmonary rehabilitation offers, 39% had been offered self-management education, and 64% had acute hospital admissions due to COPD complications in the past year. Persons with COPD Assessment Test (CAT) scores ≥30 reported significantly poorer self-management activation and significantly lower social provision than those reporting CAT scores <30. Number of COPD years had no significant influence on COPD health care consultations or self-management activation.ConclusionPersons with COPD reported decreasing social provision with increasing COPD years and poorer health status. Although COPD is a progressive disease, health status and self-management activation did not vary with number of COPD years. Those living with a very high COPD impact on health reported significantly lower self-management activation but fewer acute hospital admissions.Practice implicationsCOPD patients’ need for pulmonary rehabilitation, self-management support, and social support should be assessed and appropriate services offered throughout the disease trajectory.

Symptom burden and self-management in persons with chronic obstructive pulmonary disease

“…During the past decade, various studies investigated the relationships between demographic and clinical characteristics and self-management among persons with chronic diseases, including COPD. 10 – 14 The findings have indicated that age, 10 , 11 being female, 12 educational achievement, 10 , 12 social support, 10 and physical health 12 are positively associated with self-management, whereas no associations are found with self-management and lung function, dyspnea, body mass index, and hospitalization. 13 In addition, those with a very high symptom burden have been found to score significantly lower on self-management.…”

“… 13 In addition, those with a very high symptom burden have been found to score significantly lower on self-management. 14 These studies, though, have employed self-management as an umbrella term and did not specifically explore the different domains of self-management.…”

“…Some studies 10 – 14 have examined the relationships between demographic and clinical characteristics, symptom burden, and the overall experience of self-management in persons with COPD. However, to date, no studies have specified different self-management domains and investigated the relationships among demographic and clinical characteristics, symptom burden, and different self-management domains in persons with COPD.…”

Current Status of the Application of the Empowerment Theory in Patients with Chronic Obstructive Pulmonary Disease

“…Studies indicated that relevant factors mainly include psychological factors (such as not wanting to face the occurrence or aggravation of the disease), no experience in coping with the disease, and lack of external support, but external support is also proposed as a contributing factor [50] [51] [52]. Mullerova et al [53] concluded that high expectations of disease, poor health, and low satisfaction with health care workers are also barriers.…”

Forsking med brukarar kan gi forbetra kvalitet på kols-tenester

“…Medforskarane var sterkt involverte i utviklinga av det siste skjemaet, og prosjektgruppa testa alle skjemaa ved å fylle dei ut sjølve. Forskarane gjorde statistiske analysar, og alle var med på å velje ut funn til publisering og utforming av publikasjon (21). Forskarane laga førsteutkast til tekst på norsk, og dette vart presentert og diskutert på prosjektmøte der brukarane kom med kommentarar og innspel.…”