Self-organizing knowledge management might improve the quality of person-centered dementia care: A qualitative study

Gall, Dominik; Preßler, Jan; Hurtienne, Jörn; Latoschik, Marc Erich

doi:10.1016/j.ijmedinf.2020.104132

Cited by 7 publications

(9 citation statements)

References 35 publications

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“…The studies evaluated the effects of participatory health technologies on clinical outcomes, including health, well-being, quality of life (17/32, 53%), user experiences (12/32, 38%), and self-management (7/32, 22%). Approximately one-third (12/32, 38%) of studies evaluated effects on partnerships by describing the content, experiences, and nature of collaboration [ 39 , 48 , 51 , 56 ]; the distribution of tasks and responsibilities [ 42 ]; patient-professional relationships [ 51 , 54 ]; engagements of patients and family caregivers [ 41 , 45 , 46 ]; and the perceived quality of collaborations [ 45 , 46 ]. Other effects that were evaluated included access to care and waiting times [ 49 ], continuity of care [ 47 ], and health care costs [ 34 , 52 ].…”

Section: Resultsmentioning

confidence: 99%

“…Most commonly, communication was facilitated through asynchronous text-based information exchanges between users; however, some studies also implemented audio- or video-based communication. In some studies, team-based communication between multiple users (including patients, caregivers, care team members, and allied health professionals) was also supported, enabling patients and caregivers to communicate with multiple care team members and care team members to interact with each other [ 46 , 47 , 49 ]. This communication feature contributed to rapport building [ 40 ] and improved patient-professional relationships among young and adult patients [ 44 , 54 , 60 ].…”

Section: Resultsmentioning

confidence: 99%

“…In addition to interactions between patients and health care professionals, participatory health technologies supported collaboration with allied professionals [33,34,36,39] or technical staff [40,41]. Caregivers were identified as users in some studies in which the patients were children [37,[42][43][44][45], cognitively impaired [46], or in palliative care [47]. We identified 3% (1/32) of studies in which patients who did not meet these criteria had the option to invite their families and friends to be users of participatory health technology [48].…”

Section: Context Of Usementioning

confidence: 99%

“…Level of care [33][34][35][36][37][38][39][40]42,46,[48][49][50][51][52][53][54][55][56] Primary care [32,39,40,[42][43][44][45]47,49,52,[55][56][57][58][59][60][61][62][63] Secondary care [39,41,43,44,58,60,64,65] Tertiary care Type of chronic condition [35,38,51,53,55,57,…”

Section: References Characteristicmentioning

confidence: 99%

See 3 more Smart Citations

Digital Health Technologies Enabling Partnerships in Chronic Care Management: Scoping Review

Wannheden¹,

Åberg-Wennerholm²,

Dahlberg³

et al. 2022

J Med Internet Res

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Background An increasing number of patients expect and want to play a greater role in their treatment and care decisions. This emphasizes the need to adopt collaborative health care practices, which implies collaboration among interprofessional health care teams and patients, their families, caregivers, and communities. In recent years, digital health technologies that support self-care and collaboration between the community and health care providers (ie, participatory health technologies) have received increasing attention. However, knowledge regarding the features of such technologies that support effective patient-professional partnerships is still limited. Objective This study aimed to map and assess published studies on participatory health technologies intended to support partnerships among patients, caregivers, and health care professionals in chronic care, focusing specifically on identifying the main features of these technologies. Methods A scoping review covering scientific publications in English between January 2008 and December 2020 was performed. We searched PubMed and Web of Science databases. Peer-reviewed qualitative, quantitative, and mixed methods studies that evaluated digital health technologies for patient-professional partnerships in chronic care settings were included. The data were charted and analyzed thematically. The PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews) checklist was used. Results This review included 32 studies, reported in 34 papers. The topic of participatory health technologies experienced a slightly increasing trend across publication years, with most papers originating from the United States and Norway. Diabetes and cardiovascular diseases were the most common conditions addressed. Of the 32 studies, 12 (38%) evaluated the influence of participatory health technologies on partnerships, mostly with positive outcomes, although we also identified how partnership relationships and the nature of collaborative work could be challenged when the roles and expectations between users were unclear. Six common features of participatory health technologies were identified: patient-professional communication, self-monitoring, tailored self-care support, self-care education, care planning, and community forums for peer-to-peer interactions. Conclusions Our findings emphasize the importance of clarifying mutual expectations and carefully considering the implications that the introduction of participatory health technologies may have on the work of patients and health care professionals, both individually and in collaboration. A knowledge gap remains regarding the use of participatory health technologies to effectively support patient-professional partnerships in chronic care management.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Context Of Usementioning

confidence: 99%

Section: References Characteristicmentioning

confidence: 99%

See 2 more Smart Citations

Digital Health Technologies Enabling Partnerships in Chronic Care Management: Scoping Review

Wannheden¹,

Åberg-Wennerholm²,

Dahlberg³

et al. 2022

J Med Internet Res

View full text Add to dashboard Cite

show abstract

“…Making use of their personal information in conversation helps PWD feel that they enable them to retain consciousness of their self-identity [42, 49,52]. Finally, providing options to PWD enables them to feel that they are in control of their lives [19,31,38,45,47]; moreover, it improves their quality of life [45,50,[53][54][55](Figure 2).…”

Section: ) Consequencesmentioning

confidence: 99%

Personhood Communication with Persons with Dementia: Concept Analysis

Kim

Song

2021

J Korean Gerontol Nurs

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Purpose: This paper aimed to clarify the meaning of personhood communication with persons with dementia, by identifying its attributes.Methods: Walker and Avant’s concept analysis method was employed. A literature review was performed using salient medical and health databases such as PubMed, Embase, and CINAHL between 1988 to June 2020. The literature review employed keywords such as “personhood”, “communication”, and “dementia”.Results: Personhood communication with persons with dementia is defined as providing social interaction based on their residual capacities, with adjustments being made in light of their remaining communication abilities, attentiveness to their emotions and respect for their individuality being shown, and decision-making rights being maintained.Conclusion: At the core of personhood communication is respect for persons with dementia and the goal of enabling them to be valid members of society. Further research is needed on the development of educational programs that impart the attributes of personhood communication with persons with dementia.

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“It’s Another Feather in My Hat”-Exploring Factors Influencing the Adoption of Apps With People Living With Dementia

et al. 2023

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Introduction With the growing interest and availability of mobile applications (apps) for people living with dementia, it is desirable to have a broader insight into how technology adoption may be further improved. This paper aims to explore the factors influencing adoption of mobile applications for people living with dementia. Methods The recruitment of participants was facilitated through a dementia advocacy group of people living with dementia. A focus group design was applied to elicit discussion and to explore divergent views on the topic. The data was analysed using thematic analysis. Findings The 15 individuals who participated in this study comprised of seven women and eight men within the age range of 60-90 years. This study reports key findings pertaining to the views and experiences of using mobile apps. Data analysis revealed the following four distinct themes; (Theme 1: Living with dementia)-“That’s the difficulty there even with apps or anything else.” (Theme 2: Motivation)- “It makes me feel good. I feel a little with it [laughs], that its not all gone in there” (Theme 3: Fears and Concerns)- “Can somebody else get into your personal memories?” (Theme 4- Support)– “So it’s important that we have that support”. Together these themes encapsulate the most influential aspects, as highlighted by the participants influencing the acceptance and adoption of apps. Conclusion This paper explores the barriers and facilitators to app acceptance and adoption. This includes the importance of “feel good moments” and positive experiences, challenges associated with living with dementia, the importance of ongoing support, and security of the user’s information. This study adds to what is already known by capturing the views and experiences of people living with dementia in relation to the factors influencing the adoption of apps.

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Self-organizing knowledge management might improve the quality of person-centered dementia care: A qualitative study

Cited by 7 publications

References 35 publications

Digital Health Technologies Enabling Partnerships in Chronic Care Management: Scoping Review

Digital Health Technologies Enabling Partnerships in Chronic Care Management: Scoping Review

Personhood Communication with Persons with Dementia: Concept Analysis

“It’s Another Feather in My Hat”-Exploring Factors Influencing the Adoption of Apps With People Living With Dementia

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