Self-Management Strategies for Coping with Adverse Symptoms in Persons Living with HIV with HIV Associated Non-AIDS Conditions

Iribarren, Sarah J.; Siegel, Karolynn; Hirshfield, Sabina; Olender, Susan; Voss, Joachim; Krongold, Joseph; Luft, Heidi; Schnall, Rebecca

doi:10.1007/s10461-017-1786-6

Cited by 36 publications

(34 citation statements)

References 52 publications

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“…These results are reported elsewhere. (47) Participants were also asked whether they had any of the following HANA conditions: asthma, bronchitis, cardiovascular disease, COPD, diabetes, liver disease, osteoporosis, renal failure, and arthritis.…”

Section: Methodsmentioning

confidence: 99%

“…(21). (22) Consequently, Much of the research on the symptom experience among PLWH is dated,(23–31) restricted to single site studies,(32–35) and based on old symptom indexes. (28, 29, 33, 34, 36–40) Therefore, it is clear that the symptom experience of PLWH today needs to be understood in the context of cART, including once a day regimens, long-term adherence to ART medications, and age-related comorbidities as opposed to illness progression and toxicity associated with early ART regimens.…”

Section: Introductionmentioning

confidence: 99%

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Racial and socioeconomic disparities in the symptom reporting of persons living with HIV

et al. 2018

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Persons living with HIV (PLWH) today can survive decades with the disease, making the symptom experience much more relevant to their lifestyle and health outcomes. The goal of the research reported here was to assess the symptom reporting of PLWH in the Unites States (US) in the combined antiretroviral therapy (cART) age of the epidemic. We conducted an anonymous online survey of symptomatic PLWH in the US and asked participants to report the frequency and intensity of 28 frequently occurring symptoms in the past 30 days. The relationship between symptom reporting and demographic factors was investigated using the adaptive least absolute shrinkage and selection operator (LASSO) method. Fatigue was the most frequently reported symptom in our study population. Those with the lowest income were more likely to report more burdensome symptoms. In comparison to other racial and ethnic groups, Black non-Hispanic participants were significantly more likely to report a lower symptom burden score for fatigue, depression, muscle aches, anxiety, difficulties with memory and concentration. There were no racial/ethnic differences in the burden of the symptoms related to sleep or neuropathy. Findings from this study present new evidence on the symptom reporting of PLWH in the US. Neuropathy continues to be a pervasive neurological symptom with no difference noted between racial/ethnic groups.

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Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Racial and socioeconomic disparities in the symptom reporting of persons living with HIV

et al. 2018

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“…Using a self-management program, PLWH can receive educational information in a variety of areas such as safe sex behaviors and adherence to the medication regimens. Furthermore, through a self-management program, motivation and contribution of PLWH for continuing the disease treatment will be increased ( 9 ). Based on similar articles, due to the effect of self-management on improving the treatment process, development of a self-management system of chronic conditions is necessary ( 10 – 12 ).…”

Section: Introductionmentioning

confidence: 99%

Common elements and features of a mobile-based self-management system for people living with HIV

et al. 2018

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BackgroundIn recent years, mobile-based applications have become important technologies to the delivery of healthcare around the world. Mobile-based self-management systems with standard features for providing, evaluating, and improving HIV care are significantly required in developing countries.ObjectiveTo determine the common elements of a mobile-based self-management system for people living with HIV (PLWH).MethodsThis cross-sectional study was done in two main phases in 2017. In the first phase, a review was conducted in relevant databases such as; PubMed, Scopus, Up To Date, and Web of Science. The keywords used to search for resources were as follows; Self-care, Self-management, Data elements, Minimum data set, Mobile application, Mobile health, and HIV/AIDS. In the second phase, the infectious diseases specialists and health information managers affiliated with Tehran University of Medical Sciences were consulted to score identified elements by a questionnaire. Frequency and mean of collected data were calculated using SPSS software (version 19).ResultsBy full-text reviewing of 9 related articles, the identified elements were justified in 3 main categories and 37 subcategories including: clinical data elements (17), technical capabilities (12) and demographic data elements (8). According to the findings, among the clinical category, 11 data elements were selected by the statistical population. Among the identified technical capabilities, 11 features were selected. Moreover, 6 data elements were selected as the demographic category.ConclusionWe obtained data elements and technical capabilities of a mobile-based self-management system for people living with HIV. Using these elements and features, designing of self-management system architecture will be possible. Self-management skills of PLWH and their communication with healthcare providers will improve by using this system.

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“…), and know how to handle side effects while managing any other health conditions and responsibilities. HIV‐related symptoms may present an additional set of challenges for self‐management (Iribarren et al., ). Barriers to obtain the information needed for effective self‐management in limited‐resource settings, such as the DR, are numerous, since services may be difficult to access, language and cultural differences and stigma are present, and patients’ limited educational backgrounds and low health literacy are likely to complicate healthcare interactions (Gebre, Forbes, & Peters, ; Rojas et al., ).…”

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confidence: 99%

“…Systematic reviews and frameworks of self‐management interventions for PLWH, or those with other chronic illnesses, may include techniques and skills that patients must master, but typically do not include specific health information topics (Millard et al., ; Swendeman et al., ). Other studies to guide HIV self‐management have focused on specific topics, such as possible symptoms and the strategies to manage them (Iribarren et al., ). However, the current literature provides little evidence of what information would be the most useful to PLWH living in limited‐resource settings to improve their self‐management behaviors.…”

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confidence: 99%

Priority Topics for Health Education to Support HIV Self‐Management in Limited‐Resource Settings

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Richards

Halpern³

et al. 2018

J of Nursing Scholarship

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Purpose The purpose of this study was to identify and prioritize the information that persons living with HIV (PLWH) in a limited‐resource setting need to effectively manage their health. Design and Methods A data sources triangulation method was used to compare data from three separate sources: (a) 107 interviews with Spanish‐speaking PLWH being seen at a healthcare clinic in the Dominican Republic (DR); (b) 40 interviews with Spanish‐speaking healthcare providers from the same clinic in the DR; and (c) an integrative literature review of English‐ and Spanish‐language articles that assessed the health information needs of PLWH in Latin America and the Caribbean. We compared information needs across sources and developed a prioritized list of the topics important to provide PLWH in a clinical setting. Findings Triangulation identified the most important topics for HIV‐related health education for PLWH as medication and adherence, followed by transmission, including risks and prevention strategies, mental health management, and knowledge of HIV in general. Conclusions The identification of evidence‐based health education priorities establishes a guide that healthcare providers may use to help PLWH effectively manage their health and creates a foundation from which further studies on improving clinical interactions may be generated. Clinical Relevance Using the priorities identified, nurses and other health educators can improve patient education, and consequently self‐management, by making evidence‐based choices about what information to provide to their patients.

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Self-Management Strategies for Coping with Adverse Symptoms in Persons Living with HIV with HIV Associated Non-AIDS Conditions

Cited by 36 publications

References 52 publications

Racial and socioeconomic disparities in the symptom reporting of persons living with HIV

Racial and socioeconomic disparities in the symptom reporting of persons living with HIV

Common elements and features of a mobile-based self-management system for people living with HIV

Priority Topics for Health Education to Support HIV Self‐Management in Limited‐Resource Settings

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