Self-management of Epilepsy

Epilepsy control during an epidemic: emerging approaches and a new management framework

“…These abilities include management of both medical and nonmedical issues such as emotion or role changing [12]. Luedke et al summarized six aspects of selfmanagement for PWEs based on a systematic review, which are knowledge acquisition, problem solving, medication management, health behavior changing, symptom monitoring, and safety promotion [13]. PWEs have educational needs on two major classes of information for self-management.…”

“…PWEs have educational needs on two major classes of information for self-management. The first is predesigned knowledge on epilepsy and related issues while the second being a practical guide to self-management of other conditions, especially the psychosocial therapy, and applying it in PWEs [13]. The predesigned epilepsy-specific program largely involves basic knowledge on epilepsy, medication management, and problem-solving suggestions, while psychosocial therapy mainly focuses on health behaviors and related knowledge.…”

“…Approaches to deliver self-management knowledge can also be influenced by the epidemic. Face-to-face training, including group design, is the major method of teaching for PWE self-management, which is usually conducted for 4 to 41 h [13]. However, it is unclear during an epidemic that whether these trainings are still available and to what extent can they reach PWEs.…”

Self‐management for adults with epilepsy: Aggregate Managing Epilepsy Well Network findings on depressive symptoms

“…For example, both CBT and epilepsy self-management interventions include a focus on improving emotional regulation and the development of personal coping strategies that address solving current problems. 16,17 Although there is still a relative paucity of randomized controlled trials (RCTs) focused on epilepsy self-management interventions, 18 the CDC-supported MEW Network website describes evidence-based epilepsy self-management intervention such as the HOBSCOTCH (Home-Based Self-Management and Cognitive Training Changes Lives) approach intended to improve cognitive problems in adults with epilepsy and the TIME (Targeted Self-Management for Epilepsy and Mental Illness) approach targeting adults with epilepsy and comorbid mental health conditions, as well as emerging research for self-management interventions that are still in development. 8 Given the MEW Network's focus on depression comorbidity, a number of sites conducting RCTs in epilepsy self-management interventions have the PHQ-9 as a primary or secondary outcome.…”

“…Given the critical need for managing depressive symptoms in epilepsy and the limited benefit with standardized psychological approaches such as CBT, 17 this aggregate analysis was conducted to address the broad question of whether a curriculum-driven epilepsy self-management intervention can improve depression outcomes in people with epilepsy. compared to controls at visit 2 (P < .0001) and visit 3 (P = .0002).…”