Self-management and health care transition: Trials, tribulations and triumphs

Abstract

The acquisition of self-management knowledge and skills is a complex process that extends far beyond learning the fundamental skills of daily condition management.

Survey of US pediatric nurses’ role in health care transition planning: Focus on assessment of self-management abilities of youth and young adults with long-term conditions

“…For pediatric providers, new imperatives and improvements for service delivery have arisen-namely, the development, implementation, and evaluation of health care transition service models that are focused on goal-directed outcomes for YYA. YYA-centered outcomes of health care transition planning (HCTP) include preparation of YYA to support transfer of care to adult providers, independence in self-management, achievement of developmental milestones associated with emerging adulthood, and improvements in health literacy (Betz, 2017a(Betz, , 2017bBetz et al, 2016;Fair et al, 2018;Sattoe et al, 2017;Suris and Akre, 2015).…”

“…Self-management is an essential competency for YYA with long-term conditions to achieve as they transfer their health care services to adult providers and transition to adulthood. Selfmanagement can be conceptualized as a gateway to independence and productivity in other aspects of the YYA life such as socializing with friends, engaging in team sports, and accessing community resources (Betz, 2017a;Betz and Coyne, 2020;Klassen et al, 2015;Sawin, 2017;Sawin et al, 2020;Van Staa et al, 2020). To illustrate, an adolescent with spina bifida who has not achieved independence in performing continuous intermittent catheterization would be severely limited in engaging in typical peer-socialization activities after school or on weekends (Betz, 2017a).…”

“…Selfmanagement can be conceptualized as a gateway to independence and productivity in other aspects of the YYA life such as socializing with friends, engaging in team sports, and accessing community resources (Betz, 2017a;Betz and Coyne, 2020;Klassen et al, 2015;Sawin, 2017;Sawin et al, 2020;Van Staa et al, 2020). To illustrate, an adolescent with spina bifida who has not achieved independence in performing continuous intermittent catheterization would be severely limited in engaging in typical peer-socialization activities after school or on weekends (Betz, 2017a). Its importance as a component of long-term condition management is evidenced by investigations conducted to discover the extent to which YYA have developed self-management abilities (SMA) and both the knowledge and barriers that impede or facilitate their acquisition of SMA (Coyne et al, 2017a(Coyne et al, , 2017bCrosby et al, 2017;Klassen et al, 2015;Ladouceur et al, 2017;Psihogios et al, 2015;Pyatak et al, 2017;Smith et al, 2011).…”

2023 updates to the spina bifida transition to adult care guidelines1

“…Descriptive articles summarized various strategies to address structured transition for SB. Betz described perspectives on fostering comprehensive self-management competencies as part of transition, particularly regarding navigating relationships, the community, and adult health care [ 46 ]. Seeley and Lindeke described a quality improvement pediatric nurse care coordination intervention that improved TRAQ scores [ 2 ].…”

Behavioral Dilemmas and Support Requirements of Self-Management for Chinese Adolescents with Epilepsy During Transition Readiness: A Mixed-Methods Study

“… 14 The key in home and community-based treatment (HCT) for adolescents with chronic diseases is their overall self-management, which not only strengthens the depth, diversity, and scope of HCT, but also contributes to the early development of self-management ability in the transition readiness of adolescents with chronic diseases. 15 , 16 Moreover, as transition service platforms in China are not yet developed, there is little systematic support for studying transition services across the HCT spectrum. A self-management intervention involves a microscopic interaction between AWEs and their families that can meet the transitional needs of adolescents and families with chronic diseases under conditions of limited medical resources, and it can potentially reduce service costs.…”