Self-initiated coping with Tourette’s syndrome: Effect of tic suppression on QOL

Matsuda, Natsumi; Kono, Toshiaki; Nonaka, Michio; Fujio, Miyuki; Kano, Yukiko

doi:10.1016/j.braindev.2015.08.006

Cited by 20 publications

(24 citation statements)

References 27 publications

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“…Improvement of tics would alleviate tic-related impairment of life, and then improve global functioning. In a previous study, subjective satisfaction with tic control was positively correlated with life satisfaction and QOL (15). If tic control results in improvement of tics, increased life satisfaction might have a positive impact on global functioning.…”

Section: Discussionmentioning

confidence: 73%

Changes in Sensory Phenomena, Tics, Obsessive–Compulsive Symptoms, and Global Functioning of Tourette Syndrome: A Follow-Up After Four Years

et al. 2020

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Sensory phenomena and related features of Tourette syndrome are related to poorer quality of life. Therefore, sensory phenomena might also have a negative impact on global functioning. However, the influence of sensory phenomena, tics, and obsessivecompulsive symptoms (OCS) on global functioning after several years of usual treatment has not been investigated. Twenty out of 45 Japanese patients with Tourette syndrome who had previously undergone an evaluation of these clinical features were assessed again after an average of four years. We conducted a panel of assessments for premonitory urges, broader sensory phenomena, tic severity, OCS, and global functioning. Based on Pearson's correlation coefficient, current global functioning was significantly negatively correlated with previous tics and marginally negatively correlated with previous broader sensory phenomena. Current global functioning was marginally correlated with change in tics. Change in global functioning was significantly correlated with change in OCS and marginally correlated with change in premonitory urges. Due to the small sample size, it was not possible to use a multiple regression analysis to conclude that sensory phenomena, tics, and OCS predict global functioning in adolescents and adults with TS. However, it was suggested that further investigation of this relationship would be meaningful.

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Section: Discussionmentioning

confidence: 73%

Changes in Sensory Phenomena, Tics, Obsessive–Compulsive Symptoms, and Global Functioning of Tourette Syndrome: A Follow-Up After Four Years

et al. 2020

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“…Although most tic patients frequently try to suppress tics, they find suppressing them uncomfortable and distracting. However, those patients who are more satisfied with their ability to suppress their tics also report a higher quality of life 5 .…”

Section: Resultsmentioning

confidence: 99%

Tourette syndrome research highlights 2015

Richards

Black

2016

F1000Res

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We present selected highlights from research that appeared during 2015 on Tourette syndrome and other tic disorders. Topics include phenomenology, comorbidities, developmental course, genetics, animal models, neuroimaging, electrophysiology, pharmacology, and treatment. We briefly summarize articles whose results we believe may lead to new treatments, additional research or modifications in current models of TS.

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“…For example, the study of Crabtree et al (2010) illustrated how individuals with mental illness might distance themselves from the stigmatised group to avoid negative consequences for their self-esteem. However, tic suppression has been reported to be a distracting, demanding and attentionconsuming task that can create post-suppression discomfort and it is often of limited duration (Cutler et al 2009;Matsuda et al 2016). A substantive amount of literature also suggests that identity-concealment may lead to worse mental health outcomes, including greater levels of anxiety, depression and lower selfesteem (see Quinn et al 2014).…”

Section: Defensive Behavioural Strategies To Cope With the Stigma Of mentioning

confidence: 99%

“Tourette’s Is a Lonely Place”: an Interpretative Phenomenological Analysis of the Personal Experience and Identity of Adults with Tourette’s Syndrome

2019

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Research suggests that adults with Tourette's syndrome (TS) may face unique challenges in their everyday life due to their condition. To date, however, only a limited number of studies exist in relation to their life experiences and conception of identity. This study, which we believe to be the first of its kind, aimed to expand the literature by 'giving voice' to this population, and to evaluate the social and personal cost of living with TS during adulthood. Semi-structured interviews were conducted with sixteen adults with Tourette's that focused on how they negotiated their identity and experiences. Transcripts of recorded interviews were subjected to interpretative phenomenological analysis. Three superordinate themes emerged: a) "Incorporating Tourette's syndrome into self" revealed two divergent ways in which TS was merged into the participants' selfidentity, either by reconciling with it or fighting against it; b) "Interpersonal interaction" covered issues relating to negative and supportive ties as a result of their condition; and finally, c) "The solitude of Tourette's syndrome" described the loneliness that stems from the condition. The current findings suggest that the experience of the participants is a multidimensional one related to self-identity threat, social withdraw, and self-stigma. Implications for clinical practice on the topic are discussed.

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Self-initiated coping with Tourette’s syndrome: Effect of tic suppression on QOL

Cited by 20 publications

References 27 publications

Changes in Sensory Phenomena, Tics, Obsessive–Compulsive Symptoms, and Global Functioning of Tourette Syndrome: A Follow-Up After Four Years

Changes in Sensory Phenomena, Tics, Obsessive–Compulsive Symptoms, and Global Functioning of Tourette Syndrome: A Follow-Up After Four Years

Tourette syndrome research highlights 2015

“Tourette’s Is a Lonely Place”: an Interpretative Phenomenological Analysis of the Personal Experience and Identity of Adults with Tourette’s Syndrome

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