Self-determination in young adults with autism spectrum disorder

Cheak‐Zamora, Nancy; Maurer-Batjer, Anna; Malow, Beth A.; Coleman, Ann

doi:10.1177/1362361319877329

Cited by 35 publications

(13 citation statements)

References 32 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Our findings provide evidence for ways to better support decision-making in autistic adolescents and to promote positive psychological and behavioural outcomes in them. In previous studies, parents of autistic youth report low decision-making capacity in their children (Cheak-Zamora, Maurer-Batjer, Malow, & Coleman, 2019), and autistic people self-report avoidance in making decisions (Luke et al, 2012). However, our results revealed that, at least in an experimental task, autistic adolescents have the capacity to make decisions comparable to those of their TD peers.…”

Section: Discussioncontrasting

confidence: 54%

The Role of Decision-Making in Psychological Wellbeing and Risky Behaviours in Autistic Adolescents Without ADHD: Longitudinal Evidence from the UK Millennium Cohort Study

Hosozawa

Mandy

Cable

et al. 2020

J Autism Dev Disord

View full text Add to dashboard Cite

This study examined the development of decision-making and its association with psychological wellbeing and risky behaviours in adolescents with and without autism. Participants included 270 autistic and 9,713 typically developing adolescents. In both samples, those with a diagnosis of attention-deficit/hyperactivity disorder (ADHD) were excluded. Data came from the Millennium Cohort Study, a nationally representative population-based birth cohort. Decision-making was assessed using the Cambridge Gambling Task at ages 11 and 14. Psychological wellbeing (happiness, self-esteem, depressive symptoms and self-harm) and risky/antisocial behaviours were self-reported at age 14. After adjusting for sex, cognitive ability, spatial working memory, socioeconomic status and pubertal status, autistic adolescents showed comparable quality of decision-making to that of their peers at both ages but also a more deliberative decision-making style as they aged. Only in autistic adolescents was this decision-making style associated with positive outcomes.

show abstract

Section: Discussioncontrasting

confidence: 54%

The Role of Decision-Making in Psychological Wellbeing and Risky Behaviours in Autistic Adolescents Without ADHD: Longitudinal Evidence from the UK Millennium Cohort Study

Hosozawa

Mandy

Cable

et al. 2020

J Autism Dev Disord

View full text Add to dashboard Cite

show abstract

“…Researchers (e.g. Carter et al., 2013; Cheak-Zamora et al., 2020) have gathered data from parents or carers to assess self-determination of autistic adolescents and adults. A number of others have utilized social skill programs and interventions to increase the self-determination of adolescents and adults (Fullerton & Coyne, 1999; Held et al., 2004), although these have not assessed ways in which the individual has demonstrated self-determination prior to intervention.…”

Section: Introductionmentioning

confidence: 99%

What does success mean for autistic men? A narrative exploration of self-determination

Webster

Garvis

2020

Autism & Developmental Language Impairments

View full text Add to dashboard Cite

Background Studies involving autistic adults have often focused on negative outcomes and quality of life ratings. Aims This study provides a different viewpoint by examining the perspectives of autistic men who consider themselves to be successful. Methods Data were gathered from 10 men who shared their experiences and perceptions regarding their journey to achieve success. Self-determination theory provided a useful lens for examining the men’s narratives and understanding the factors that led to their success. Results Analysis of interviews revealed four main themes: (1) being my own self, (2) a competent professional, (3) solving problems in a neurotypical world, and (4) relating and connecting. These themes reflect the men’s perception of their own self-determination including their autonomy, competence, and relatedness with others. Conclusions The men’s sense of success was derived from their ability to achieve competence in their work, act without help or influence from others and demonstrate a high level of self-awareness and self-reflection. Despite this, many continued to experience difficulty in the social areas of their lives. Implications: These findings suggest that self-determination theory may present an alternative and more positive means of enacting support programs for autistic individuals, and males in particular.

show abstract

“…The results encourage further exploration of the scale’s validity in both populations (people with intellectual disability and people with SMD), and they also stimulate research in other populations (e.g., people with autism spectrum disorder or people with other special needs). Recent investigations have reported lower levels of self-determination in people with autism spectrum disorder (Cheak-Zamora et al, 2020; Chou et al, 2017), with self-determination and social inclusion identified as priority areas for intervention and research (Morán et al, 2019). Furthermore, the AUTODDIS scale will be useful for researchers who wish to ensure that the scale is effective in estimating the impact of practices aimed at promoting self-determination, stimulating the design of evidence-based practices, since evaluation requires evidence (Schalock, 2018).…”

Section: Discussionmentioning

confidence: 99%

Assessment of self-determination in mental health: A new application field of the AUTODDIS scale.

Bravo-Álvarez,

Vicente,

Coma-Roselló

et al. 2023

Psychiatric Rehabilitation Journal

View full text Add to dashboard Cite

Objective: Self-determination enhances well-being and quality of life. It is also considered a fundamental pillar in improving the efficacy of interventions used to treat people with severe mental disorders (SMD). Yet the assessment of self-determination in relation to mental health requires further research. The aim of this study was to analyze the adequacy and psychometric properties of the AUTODDIS scale in a Spanish population with SMD. Method: The scale was originally developed and validated to assess self-determination in people with intellectual disability. The scale was administered to a sample of 333 adults with SMD (M = 47.6 years, SD = 11.68), most of whom were receiving treatment in an outpatient setting or at long-stay care facilities in six specialized centers in Spain. Results: The quality of the items and the reliability of the scale and its subscales were analyzed. External validity was also explored, and confirmatory factor analysis was used to analyze the fit of the data to different models. The results indicate that the scale demonstrated sufficient evidence of reliability and validity, supporting the adequacy of its use in the field of mental health. Conclusions and Implications for Practice: The use of this scale as a tool to assess self-determination and its domains in the mental health field is warranted. The article also discusses the need for more research and assessment tools to facilitate decision making by clinical and organizational stakeholders in promoting self-determination.

show abstract

Self-determination in young adults with autism spectrum disorder

Cited by 35 publications

References 32 publications

The Role of Decision-Making in Psychological Wellbeing and Risky Behaviours in Autistic Adolescents Without ADHD: Longitudinal Evidence from the UK Millennium Cohort Study

The Role of Decision-Making in Psychological Wellbeing and Risky Behaviours in Autistic Adolescents Without ADHD: Longitudinal Evidence from the UK Millennium Cohort Study

What does success mean for autistic men? A narrative exploration of self-determination

Assessment of self-determination in mental health: A new application field of the AUTODDIS scale.

Contact Info

Product

Resources

About