Self‐Concept in Youth with Congenital Facial Differences: Development and Recommendations for Medical Providers

Marik, Patricia; Hoag, Jennifer A.

doi:10.1111/j.1525-1470.2012.01758.x

Cited by 12 publications

(7 citation statements)

References 48 publications

(41 reference statements)

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“…In this study, parents reported that their children’s self-perception of “being different” started to develop in conjunction with the eruption of primary teeth and before or approaching three years of age. This finding supports the growing evidence from children’s developmental psychology that self-perceptions starts to develop as early as two to three years of age [26,30,31,32].…”

Section: Discussionsupporting

confidence: 88%

Parental Perception of Children Affected by Amelogenesis Imperfecta (AI) and Dentinogenesis Imperfecta (DI): A Qualitative Study

Alqadi

O’Connell

2018

Dentistry Journal

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This qualitative study was conducted to explore parental attitudes and values regarding aesthetics and treatment needs of children in primary dentition affected by AI and DI. A purposive sample of parents of young children attended two focus groups: mothers (n = 7) and fathers (n = 6). A topic guide with open-ended questions was formulated and standardised photographs showing primary teeth affected by varying severity of AI/DI and photographs of different aesthetic treatments were utilised to stimulate discussion. Data was audio-recorded and transcribed verbatim. A cross-sectional thematic analysis was performed which identified six main themes; the impact on affected children, the impact on parents, the life course of the disease, coping mechanisms, treatment need, and experience of treatment. Parents believed that young children were aware of their altered dental appearance. A feeling of guilt was evident among fathers affected by the same condition. Most parents sought dental treatment before starting school due to worries of bullying at school. Parents appeared to rely solely on the professional advice of the paediatric dentist in making all treatment related decisions. The personal experience of parents affected by AI/DI played a pivotal role in parent’s judgements of their children’s teeth and perceived need for treatment.

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Section: Discussionsupporting

confidence: 88%

Parental Perception of Children Affected by Amelogenesis Imperfecta (AI) and Dentinogenesis Imperfecta (DI): A Qualitative Study

Alqadi

O’Connell

2018

Dentistry Journal

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“…It may be because the teacher has to deal with dozens of students and has limited time and energy to take care of every student in the class. Contemporary adolescents commonly lack self-confidence due to their over-ambitious pursuits, resulting in a lower positive self-concept [ 57 ].…”

Section: Discussionmentioning

confidence: 99%

How adverse and benevolent childhood experiences influence depression and suicidal ideation in Chinese undergraduates: a latent class analysis

Tang

Wang

Pei

et al. 2023

Environ Health Prev Med

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Background: There has been minimal research on the role of benevolent childhood experiences (BCEs) and how such events may offer protection from the insidious effects of adverse childhood experiences (ACEs) or later in life.Objectives: This research aims to learn how BCEs and ACEs interact to affect adolescents' psychological distress. Methods: Cross-sectional survey was conducted in three cities (Xuzhou, Nanjing, and Wuhan) in China from March 2021 to May 2021. Latent class analysis (LCA) was used to classify the patterns of ACEs and BCEs. We adopted hierarchical multivariable regression to examine the influences of ACEs and BCEs on depression and suicidal ideation. Results: To explore the relationship between childhood experience and suicidal ideation and depression, LCA revealed three patterns of ACEs: (1) emotional abuse (10.57%); (2) high ACEs (0.55%); and (3) low ACEs classes (88.88%). Adolescents with emotional abuse (depression: OR = 3.82, 95%CI = 2.80-5.22, P < 0.001; suicidal ideation: OR = 5.766, 95%CI = 3.97-8.38, P < 0.001) and high ACEs class (suicidal ideation: OR = 5.93, 95%CI = 1.19-29.66, P < 0.05) had an increased risk of psychological distress (reference: low ACEs). LCA revealed four patterns of BCEs: (1) relationship support (14.54%); (2) low BCEs (4.85%); (3) high BCEs (55.34%); and (4) high quality of life classes (25.28%). Adolescents with a high quality of life (depression: OR = 0.09, 95%CI = 0.05-0.16, P < 0.001; suicidal ideation: OR = 0.22, 95%CI = 0.12-0.40, P < 0.001) and high BCEs (depression: OR = 0.05, 95%CI = 0.03-0.09, P < 0.001; suicidal ideation: OR = 0.15, 95%CI = 0.09-0.26, P < 0.001) protected the mental health of adolescents (reference: low BCEs). Conclusions: High ACEs and emotional abuse classes were significantly associated with poorer mental health symptoms, including suicidal ideation and depression. In contrast, high BCEs and high quality of life classes were associated with better mental health. These findings point out that it is more necessary to identify and support victims of ACEs, and it is urgent to increase BCEs in early childhood.

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“…For example, Marden et al [1964] defined a major anomaly as having "an adverse effect on either the function or social acceptability of the individual" and a minor anomaly as one that is "neither of medical nor cosmetic consequence to the patient." The self-image and social acceptability of individuals with morphologic anomalies are complex psychological and social issues [Marik and Hoag, 2012;Masnari et al, 2012], which should be distinguished from the medical or biological description of the anomaly. Given the enormous variation in social and personal attitudes toward physical differences, we were hesitant to include such concepts in our definitions.…”

Section: Anomaly Morphologicmentioning

confidence: 99%

Elements of morphology: General terms for congenital anomalies

Hennekam

Biesecker

Allanson

et al. 2013

American J of Med Genetics Pt A

123

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An international group of clinicians working in the field of dysmorphology has established a process for the standardization of terms used to describe human morphology. The goals are to standardize these terms and develop consensus regarding their definitions. This project will increase the usefulness and precision of descriptions of the human phenotype and facilitate reliable comparisons of phenotypic findings among clinicians and researchers in medicine, developmental biology, and genetics. Here we define and illustrate the general terms that describe congenital anomalies as related to human conditions.

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Self‐Concept in Youth with Congenital Facial Differences: Development and Recommendations for Medical Providers

Cited by 12 publications

References 48 publications

Parental Perception of Children Affected by Amelogenesis Imperfecta (AI) and Dentinogenesis Imperfecta (DI): A Qualitative Study

Parental Perception of Children Affected by Amelogenesis Imperfecta (AI) and Dentinogenesis Imperfecta (DI): A Qualitative Study

How adverse and benevolent childhood experiences influence depression and suicidal ideation in Chinese undergraduates: a latent class analysis

Elements of morphology: General terms for congenital anomalies

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