Self‐compassion and psychological distress in parents of young people and adults with intellectual and developmental disabilities

Robinson, Suzanne; Hastings, Richard P.; Weiss, Jonathan A.; Pagavathsing, Jaffni; Lunsky, Yona

doi:10.1111/jar.12423

Cited by 39 publications

(48 citation statements)

References 24 publications

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“…Parents of children with autism who have greater self-compassion reported greater life satisfaction and hope and less depression and parental stress (Neff and Faso, 2014). An association has also been found between greater self-compassion and lower levels of stress and depression among parents of adults with intellectual or developmental disability (Robinson et al, 2018). CMBIs may increase acceptance of experiences of guilt, resentment, and fatigue related to prolonged caregiving, particularly when such interventions include a focus on self-compassion and normalize caregiving challenges through the sharing of experiences in group interventions.…”

Section: Compassion and Mindfulness In Parentingmentioning

confidence: 99%

“…Understandably, a child’s illness or disability may be experienced as traumatic by parents, challenging their sense of efficacy, fairness, identity, and beliefs about the world. Parents can feel overwhelmed when faced with the daily tasks of caregiving, responding to their child’s behavior and needs, and the feeling that there is no end in sight (Robinson et al, 2018). These circumstances can fatigue the family system and result in cycles of emotional distress, anxiety, and depression, leaving family members at risk for burnout (Hamlyn-Wright et al, 2007).…”

Section: Parent Capacities Cultivated Through Participation In Cmbismentioning

confidence: 99%

See 1 more Smart Citation

The Role of Compassion and Mindfulness in Building Parental Resilience When Caring for Children With Chronic Conditions: A Conceptual Model

2019

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Compassion- and mindfulness-based interventions (CMBIs) and therapies hold promise to support parent resilience by enabling adaptive stress appraisal and coping, mindful parenting, and perhaps crucially, self-compassion. These contemplative modalities have recently been expanded to parents of children with chronic illness, building on successful applications for adults facing stress, chronic pain, or mental illness, and for healthcare professionals in response to caregiver burnout resulting from their work. The design and adaptation of interventions and therapies require a conceptual model of parent resilience in the context of childhood chronic illness that integrates mindfulness and compassion. The objective of this paper is to propose and describe such a model. First, we review the need for parent support interventions for this population. Second, we introduce a Model of Compassion, Mindfulness, and Resilience in Parental Caregiving. We highlight the mindful parenting approaches, guiding theories for adaptive coping, and family resilience frameworks that informed our model. Third, we describe a case of a parent to illustrate a practical application model. Finally, we outline future directions for intervention development and research to examine the impact of CMBIs on parent resilience.

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Section: Compassion and Mindfulness In Parentingmentioning

confidence: 99%

Section: Parent Capacities Cultivated Through Participation In Cmbismentioning

confidence: 99%

The Role of Compassion and Mindfulness in Building Parental Resilience When Caring for Children With Chronic Conditions: A Conceptual Model

2019

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“…As recommended by Roca-de Bes et al ( 2011 ), if psychotherapy is used for parents of triplets, intervention targeting these emotions may be particularly effective. For example, self-compassion interventions have been reported effective addressing stress, anxiety and emotional exhaustion in parents (Mitchell et al, 2018 ; Robinson et al, 2018 ; Sirois et al, 2019 ). Considering their limited time, online intervention may be more feasible (e.g., Michell et al, 2018 ).…”

Section: Discussionmentioning

confidence: 99%

Qualitative Investigation into Pre- and Post-Natal Experience of Parents of Triplets

2021

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Although parents of triplets experience substantial mental distress, research about this increasing population has primarily focused on physical health risks of triplets and mothers, failing to capture the subjective wellbeing of parents. Accordingly, this study aimed to understand first-hand experience of parents of triplets, using thematic analysis of semi-structured interviews participated by eight parents (four couples: Age M = 48.63, SD = 10.61 years). Six themes were identified: (1) Negative and (2) Positive experiences of raising triplets prenatally and postnatally, (3) Social, psychological, and material support, (4) Experiences and challenges specific to mothers and (5) fathers, and (6) Advice for future parents. These themes suggest that being reassured and accepting support from others are particularly essential in reducing stress and anxiety. Self-compassion interventions were recommended to support the wellbeing of parents of triplets. Our findings will help parents of triplets, their social circles, and healthcare workers to develop effective approaches to reduce the mental health difficulties that this under-researched population experiences.

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“…Additionally, limited studies have explored the lived experience of parents with children with ASD. The potential benefits of self-compassion in parents of children with ASD (Bohadana et al, 2019;Neff and Faso, 2014;Torbet et al, 2019;Wong et al, 2016), and in other populations has been highlighted (Neff, 2003;Neff et al, 2007;Neff, & McGehee, 2010;Pauley & McPherson, 2009;Robinson et al, 2018). However, qualitative research on selfcompassion in parents of children with ASD is essential to understand the richness of experiences and insights into real-life challenges in the context of parenting a child with ASD.…”

Section: Summary and Rationale For The Current Studymentioning

confidence: 99%

Self-Compassion in Mothers of Children with Autism Spectrum Disorder: A Qualitative Analysis

Bohadana

Morrissey

Paynter

2020

J Autism Dev Disord

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Emerging quantitative research found self-compassion to be a unique predictor of parental stress in parents of children with ASD above other predictors. However, research on the lived experience of self-compassion in families of children with ASD is limited. Using a qualitative thematic analysis approach, nineteen mothers of children with ASD with a mean age of 39.19 years (SD = 3.56, Range = 31.00 -50.00 years) were interviewed about their lived experiences of stress and self-compassion. Themes derived from interviews include: the impact and causes of stress, benefits of self-compassion, barriers to self-compassion, and aids to self-compassion. The findings deepen our understanding of the experience of self-compassion in this population.Limitations and future directions are discussed. Keywords: Qualitative, self-compassion, parenting, mothers of children with ASD, parent stress.Autism Spectrum Disorder is characterised by persistent impairments in social interactions and communication across different contexts, as well as restricted, repetitive behaviour, activities, or interests (American Psychiatric Association, 2013). ASD is a neurodevelopmental disorder affecting 0.74% of children under the age of seven in Australia (Bent, Dissanayake, & Barbaro, 2015) or approximately one in 160 children more globally (Elsabbagh et al., 2012). Parents of children with ASD report higher levels of stress than parents of typically developing children, children with intellectual disabilities, children with Down Syndrome, children

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Self‐compassion and psychological distress in parents of young people and adults with intellectual and developmental disabilities

Abstract: Self-compassion may offer resiliency against these parenting challenges.

Cited by 39 publications

References 24 publications

The Role of Compassion and Mindfulness in Building Parental Resilience When Caring for Children With Chronic Conditions: A Conceptual Model

The Role of Compassion and Mindfulness in Building Parental Resilience When Caring for Children With Chronic Conditions: A Conceptual Model

Qualitative Investigation into Pre- and Post-Natal Experience of Parents of Triplets

Self-Compassion in Mothers of Children with Autism Spectrum Disorder: A Qualitative Analysis

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