Self‐care support in paediatric patients with type 1 diabetes: bridging the gap between patient education and health promotion? A review

Pélicand, Julie; Fournier, Cécile; Rhun, Anne Le; Aujoulat, Isabelle

doi:10.1111/hex.12041

Cited by 21 publications

(25 citation statements)

References 49 publications

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“…In other words, healthcare providers should acknowledge and support their young patients' self-care needs in the three dimensions that were identified by Kickbusch (1989) as defining self-care in the broader perspective of health promotion (as opposed to narrow disease management and prevention): psychosocial life, general health, and responses to illness demands (Kickbusch, 1989). Whereas self-management usually refers to developing autonomy in managing one's condition and treatment in everyday life, self-care is a broader concept, which encompasses not only autonomous management of medical and treatment-related tasks, but also the capacity to attend to one's broader psychosocial needs (Pelicand, Fournier, Le Rhun, & Aujoulat, 2015). In other words, practitioners need to help people "take greater control of the non-medical determinants of their own health" (Herbert, Visser, & Green, 1995).…”

Section: Introductionmentioning

confidence: 99%

“…This is precisely the aim of clinical health promotion (Herbert et al, 1995). However, the results of a recent literature review in the field of pediatric diabetes show that most studies on self-care fail to address the psychosocial dimension of it (Pelicand et al, 2015). Parents should be encouraged to make consistent demands and provide consistent support not only with medical aspects, but also with regard to psychosocial issues (including relations with peers) that matter to their adolescent children.…”

Section: Introductionmentioning

confidence: 99%

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The Handbook of Salutogenesis

et al. 2017

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

The Handbook of Salutogenesis

et al. 2017

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“…Les approches couramment utilisées comprennent l'« observance au traitement » 10 , l'« autogestion de la maladie chronique » 11 (Aschemeier et al, 2008 ;Berry et al, 2006 ;Jedeloo et al, 2010 ;Pereira et al, 2008), ainsi que l'« autosoin », aussi traduit en français par « autogestion de la santé ». Dans le domaine du DT1 notamment, le discours sur l'autosoin (self-care) semble davantage orienté vers la maladie et la prévention des complications, que vers la promotion de la santé (Pelicand et al, 2013).…”

Section: Approches De Soins Couramment Utilisées Et Leurs Limitesunclassified

Le « prendre soin » de la santé (PSS) : une conception transdisciplinaire et inclusive de la pratique soignante et son intérêt pour améliorer les résultats de santé des jeunes aux prises avec le diabète

Charron

Tranchant

Briand

et al. 2014

rum

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La prévalence accrue des maladies chroniques, dont celles pour lesquelles la prévention est possible, met en relief certaines limites des perspectives de soins de santé couramment déployées. Nous soutenons qu’une meilleure compréhension du « prendre soin », qui ne se limite pas aux actes médicaux et infirmiers, ni à la science infirmière, est nécessaire pour améliorer les pratiques et les résultats de santé. Prendre soin de la santé (PSS), comprenant le « prendre soin de soi », est un concept plus large que l’observance du traitement et l’autogestion de la maladie ou de la santé. Cet article vise à explorer l’intérêt du PSS. Une recherche documentaire a été réalisée pour mieux cerner les particularités du PSS, en examinant les fondements philosophiques, théoriques et pratiques du « prendre soin » par rapport à d’autres approches, dont le caring, et aux défis rencontrés. La problématique de santé des jeunes diabétiques et de leur famille sert d’ancrage à la réflexion proposée. Pour cette problématique, entre autres, la recension des écrits suggère que le PSS est porteur de possibilités pour améliorer l’accompagnement et la qualité de vie des personnes atteintes et pour développer l’agir préventif.The rising prevalence of chronic diseases, including those that are preventable, underlines important limitations of the healthcare perspectives commonly used. We argue that a better understanding of “prendre soin” (caring), which is not limited to medical or nursing procedures, nor to nursing science, is necessary to improve health practices and outcomes. “Prendre soin de la santé” or PSS (taking care of health or caring), which includes “prendre soin de soi” (taking care of oneself or self-care), is a concept broader than compliance to treatment and disease or health management. This paper aims at exploring the interest of PSS for healthcare. A literature review was conducted to examine the philosophical, theoretical and practical underpinnings of “prendre soin” in relation to other approaches, including caring, and current challenges. The proposed analysis is situated within the context of diabetic youth and their families’ health care. For this particular situation and others, PSS carries possibilities for improving the assistance and quality of life of the persons affected and to foster prevention

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“…This is the fundamental concept behind how a closed loop BG monitoring and insulin-dispensing device would operate [6]. However, when a person with diabetes is solely responsible for these assessments, and the adjustments are based on just a few BG values from meals, it can be very challenging to achieve good BG control [7]. In reviewing BG data and trend patterns, providers and patients ideally collaborate to make decisions about the adequacy of dosing and timing of insulin, exercise, and diet, in order to educate the patient, incorporate important individual information, and tailor the best approach for each individual person.…”

Section: Introduction: Backgroundmentioning

confidence: 99%

Utilization of Blood Glucose Data in Patient Education

Kumah-Crystal

Mulvaney

2013

Curr Diab Rep

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Many studies have tested clinical and behavioral approaches for improving glycemic control in people with diabetes. We review research to identify how blood glucose (BG) values have been used in patient-focused clinical research and interventions. We sought to describe the frequency that BG values have been the focus of patient education research and to characterize the different methods to integrate BG into an intervention, the approaches implemented to support patient education and behavior change, and the nature of communication about BG values. Thirty-four eligible studies were identified that included patient education using BG values. Information regarding the study and intervention characteristics include: 1) Characteristics of the study sample, 2) How BG values were obtained, 3) Use of a graphical interface for BG values, 4) Use of a BG log, 5) BG interpretation and regimen adjustments, 6) Recommended actions to patient, 7) Modality of intervention, and 8) Intervention communication schedule. The review demonstrated that new BG technologies provide outstanding opportunities for greater access to BG data, and for patient support and intervention. However, it also indicated a need to improve and expand support for people with diabetes in their daily use of BG values to maintain and improve glycemic control. In order to make the most sustainable impact on behavior, generalizable skills such as problem solving need to be integrated into BG education.

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Self‐care support in paediatric patients with type 1 diabetes: bridging the gap between patient education and health promotion? A review

Abstract: Background This study examines how the term 'self-care' imported from health promotion has been used in the context of patient education interventions for paediatric patients with type 1 diabetes.

Cited by 21 publications

References 49 publications

The Handbook of Salutogenesis

The Handbook of Salutogenesis

Le « prendre soin » de la santé (PSS) : une conception transdisciplinaire et inclusive de la pratique soignante et son intérêt pour améliorer les résultats de santé des jeunes aux prises avec le diabète

Utilization of Blood Glucose Data in Patient Education

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