Abstract:Increasing numbers of children and young people experience long-term physical and mental ill health and how well they and their families manage their health and wellbeing is likely to influence their health in adulthood and their future life chances. This paper examines the evidence about 'what works' in supporting self-care in relation to children/young people with physical and mental health conditions. This is based on two systematic reviews and on research evaluating different selfsupport programmes that ha… Show more
“…Additionally, the complexity and severity of long-term health conditions, such as leukemia and congenital heart disease, continue increasing, especially in children who bear the greatest burden of these chronic diseases. Furthermore, the majority of these children are likely to have a lifetime of managing their long-term conditions, which may affect their health outcomes in adulthood as well as their future opportunities and quality of life ( 11 ).…”
BackgroundThere is limited knowledge regarding the perceived participation of children with long-term health conditions in everyday activities. Children may have perceptions that differ from those of their primary caregivers. It is unclear whether children and caregivers rate their participation in everyday situations in the same way.ObjectivesWe aimed to explore the level of agreement pertaining to perceived participation (attendance and involvement) and examine whether differences exist in the rank order of activities selected as the three most important between reports from children with long-term health conditions and their primary caregivers.MethodsThe simplified Chinese version of the Picture My Participation (PMP-C; Simplified) was used in an interview with children with long-term health conditions; meanwhile, their primary caregivers finished the questionnaire independently. Data were analyzed using Wilcoxon tests, weighted kappa values, and Spearman's rank order correlation.ResultsChildren with long-term health conditions reported significantly lower attendance scores for six activity items (p < 0.05) and higher involvement scores for two activity items (p < 0.05) than their primary caregivers did. An overall slight to fair agreement in perceived participation was found at the child–caregiver dyad level, though differences in dyads were observed. A strong correlation was identified between the rank order of the most important activities for both groups (r = 0.81).ConclusionsDifferences may exist between the perceived participation of children with long-term health conditions, as reported by primary caregivers and the children themselves. The findings highlight that children with long-term health conditions exhibit unique views with respect to their perceived participation and have to be asked regarding their perceptions themselves.
“…Additionally, the complexity and severity of long-term health conditions, such as leukemia and congenital heart disease, continue increasing, especially in children who bear the greatest burden of these chronic diseases. Furthermore, the majority of these children are likely to have a lifetime of managing their long-term conditions, which may affect their health outcomes in adulthood as well as their future opportunities and quality of life ( 11 ).…”
BackgroundThere is limited knowledge regarding the perceived participation of children with long-term health conditions in everyday activities. Children may have perceptions that differ from those of their primary caregivers. It is unclear whether children and caregivers rate their participation in everyday situations in the same way.ObjectivesWe aimed to explore the level of agreement pertaining to perceived participation (attendance and involvement) and examine whether differences exist in the rank order of activities selected as the three most important between reports from children with long-term health conditions and their primary caregivers.MethodsThe simplified Chinese version of the Picture My Participation (PMP-C; Simplified) was used in an interview with children with long-term health conditions; meanwhile, their primary caregivers finished the questionnaire independently. Data were analyzed using Wilcoxon tests, weighted kappa values, and Spearman's rank order correlation.ResultsChildren with long-term health conditions reported significantly lower attendance scores for six activity items (p < 0.05) and higher involvement scores for two activity items (p < 0.05) than their primary caregivers did. An overall slight to fair agreement in perceived participation was found at the child–caregiver dyad level, though differences in dyads were observed. A strong correlation was identified between the rank order of the most important activities for both groups (r = 0.81).ConclusionsDifferences may exist between the perceived participation of children with long-term health conditions, as reported by primary caregivers and the children themselves. The findings highlight that children with long-term health conditions exhibit unique views with respect to their perceived participation and have to be asked regarding their perceptions themselves.
“…Como parte dos cuidados de si, que podem ser ensinados aos estudantes e aos profissionais da escola, incluem-se: perceber em si mesmo sinais de ansiedade e depressão, buscar auxílio com rede de suporte social, procurar informações, consultar assistência psicológica e outros serviços profissionais (Kirk & Pryjmachuk, 2016). É necessário estar atento a indicações de necessidade de auxílio imediato do outro.…”
O processo de avaliação de curso por parte dos participantes é importante. O objetivo deste estudo é avaliar as percepções de profissionais da educação acerca do curso “Acolhimento em saúde mental”, que faz parte do Programa Formativo online "Mycelium: (re)construindo conexões na educação”. Houve 55 concluintes que responderam ao formulário de avaliação com 16 perguntas objetivas em escala Likert e duas questões abertas. Os participantes eram profissionais da Educação e/ou estudantes de licenciatura e/ou de Pedagogia, cuja média de idade foi 35 anos (DP 10.8); 46 eram do gênero feminino, 8 masculino e um não binário; residiam principalmente no Paraná (71%). Cerca de 98% dos participantes afirmaram ter alterado práticas profissionais e/ou refletido sobre o tema e/ou obtido novas informações. Três a cada quatro participantes responderam que recomendariam o curso para outros docentes. Dentre os comentários sobre o curso, a categoria ‘Parabenizações e elogios vagos’ foi a mais prevalente (13). Assim, o curso obteve uma boa aceitação social, sendo importante estudos futuros quanto a sua eficácia e possibilidade de disseminação.
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