Self‐care of patient and caregiver DyAds in multiple chronic conditions: A LongITudinal studY (<scp>SODALITY</scp>) protocol

Maria, Maddalena De; Vellone, Ercole; Ausili, Davide; Alvaro, Rosaria; Mauro, Stefania Di; Piredda, Michela; Marinis, Maria Grazia De; Matarese, Maria

doi:10.1111/jan.13834

Cited by 27 publications

(22 citation statements)

References 90 publications

(136 reference statements)

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“…Indeed, the aim of this review was to identify the instruments that evaluate self-care behaviors (maintenance, monitoring, management) rather than assessing confidence in self-care ( 90 ). However, future quantitative studies could investigate the confidence aspect since the process of self−care implies that self−care confidence (in patients and caregivers) influences the entire process of self−care across the three dimensions of self−care maintenance, monitoring, and management ( 91 ).…”

Section: Discussionmentioning

confidence: 99%

Instruments Measuring Self-Care in Children and Young Adults With Chronic Conditions: A Systematic Review

et al. 2022

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Children and young adults (CYAs) with chronic conditions need to engage in self-care to improve their quality of life. This study aimed to retrieve the literature on instruments to assess self-care in CYAs living with chronic conditions and evaluate the psychometric proprieties of the instruments retrieved. A systematic literature review was conducted on six databases to identify peer-reviewed papers that described or used an evaluation instrument of self-care in CYAs with chronic conditions. Twenty-three articles describing 11 instruments of self-care were identified. Five instruments (45.45%) were developed for specific diseases, while six (54.54%) for various chronic illnesses. Most of the instruments were focused on treatment adherence within self-care maintenance (i.e., behaviors to maintain illness stability), excluding the monitoring of clinical parameters or the management of exacerbations. This review provides an overview of available instruments that measure self-care in CYAs with chronic conditions, which health professionals could use for patient education.

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Section: Discussionmentioning

confidence: 99%

Instruments Measuring Self-Care in Children and Young Adults With Chronic Conditions: A Systematic Review

et al. 2022

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“…completely not able to answer the study questionnaires) were excluded (Ausili et al, 2017). The third dataset was baseline data of a longitudinal study conducted to assess self-care in inpatients and outpatients with chronic conditions and their family caregivers enrolled in Southern and Central Italy (De Maria et al, 2018). The patient inclusion criteria were age 65 years and older, a diagnosis of DM, COPD, or HF and at least one other chronic illness, and ability to provide informed consent.…”

Section: Study Populationmentioning

confidence: 99%

“…The patient inclusion criteria were age 65 years and older, a diagnosis of DM, COPD, or HF and at least one other chronic illness, and ability to provide informed consent. Exclusion criteria were a diagnosis of cancer or dementia (De Maria et al, 2018). The total Italian sample included 784 patients with chronic diseases.…”

Section: Study Populationmentioning

confidence: 99%

Cross-cultural assessment of the Self-Care of Chronic Illness Inventory: A psychometric evaluation

Strömberg

Ausili

Vellone

et al. 2021

International Journal of Nursing Studies

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Background. Self-care refers to behaviors that individuals adopt to prevent or maintain the stability of an illness (self-care maintenance), to monitor signs and symptoms (self-care monitoring), and to respond to signs and symptoms of an illness exacerbation (self-care management). A generic measure of self-care, the Self-Care of Chronic Illness Inventory, based on the Theory of Self-Care of Chronic Illness, was developed for use in individuals with any number and type of chronic conditions.Objective. The current study investigated the measurement equivalence of the Self-Care of Chronic Illness Inventory in individuals from three different cultural groups. We were interested in determining if Italians, Swedes, and Americans interpret the measure in a conceptually similar way. Methods. This cross-sectional study enrolled 1,629 patients, 784 recruited in Italy, 438 in Sweden and 407 in the United States. Self-care (self-care maintenance, self-care monitoring and self-care management) was measured with the Self-Care of Chronic Illness Inventory. A multi-group confirmatory factor analytic approach was used to assess the equivalence of the measures across the three countries. Configural, metric, scalar and strict invariance were tested through a series of nested models where increasingly stringent equality constraints were posited.Results. Participants were mostly males (54.3%), older adults (68.9%) and had at least two chronic conditions. Results indicated that three out of four measurement equivalence levels were partially or totally supported in all three of the Self-Care of Chronic Illness Inventory scales. The partial scalar invariance level was reached for self-care maintenance [χ 2 (50) = 63.

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“…The patients and caregivers included in the present study were a subsample of an ongoing longitudinal study SODALITY—self‐care of patient and caregiver dyads in MCCs: a longitudinal study—(De Maria et al, 2019) investigating the self‐care of older MCC patient‐and‐caregiver dyads in Italy. Patients' inclusion criteria were being aged 65 years and over and having at least two chronic conditions.…”

Section: The Studymentioning

confidence: 99%

Self‐care of patients with multiple chronic conditions and their caregivers during the COVID‐19 pandemic: A qualitative descriptive study

Ferro

Vellone

Ausili

et al. 2021

Journal of Advanced Nursing

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Aims Explore the self‐care experiences of patients with multiple chronic conditions (MCCs) and caregivers' contributions to patient self‐care during COVID‐19 pandemic. Design A descriptive qualitative design was used. The COREQ checklist was used for study reporting. Methods Individual semi‐structured interviews were used to collect data from patients with MCCs and caregivers selected from the dataset of an ongoing longitudinal study. Data analysis was performed through deductive thematic analysis. The middle‐range theory of self‐care of chronic illness, which entails the three dimensions of self‐care maintenance, monitoring and management, was used as a theoretical framework to guide data collection and analysis. Results A total of 16 patients and 25 caregivers were interviewed from May to June 2020. The participants were mainly women, with a mean age for patients of 76.25 years and caregivers of 45.76 years; the caregivers were mainly the patients' children (72%). During the pandemic, some patients reported remaining unchanged in their self‐care maintenance, monitoring and management behaviours, others intensified their behaviours, and others decreased them. Caregivers played an important role in protecting patients from the risk of contagion COVID‐19 and in ensuring patients' self‐care of chronic diseases through direct and indirect interventions. Conclusions Critical events can modify the self‐care experiences of chronically ill patients and caregivers' contributions, leading to maintenance, increase or decrease of self‐care and contributions to self‐care behaviours. Impact Patients with MCCs and their caregivers can react in different ways in their performances of self‐care and contribution to patients' self‐care behaviours when ordinary daily life is disrupted; therefore, nurses should assess such performances during critical events to identify the individuals at risk of reduced self‐care and promote the most suitable healthcare services (e.g. eHealth) to implement individualised interventions.

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Self‐care of patient and caregiver DyAds in multiple chronic conditions: A LongITudinal studY (SODALITY) protocol

Abstract: The results of this study will inform clinical practice and research by identifying variables that are modifiable and therefore amenable to interventions.

Cited by 27 publications

References 90 publications

Instruments Measuring Self-Care in Children and Young Adults With Chronic Conditions: A Systematic Review

Instruments Measuring Self-Care in Children and Young Adults With Chronic Conditions: A Systematic Review

Cross-cultural assessment of the Self-Care of Chronic Illness Inventory: A psychometric evaluation

Self‐care of patients with multiple chronic conditions and their caregivers during the COVID‐19 pandemic: A qualitative descriptive study

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