Self-care and multiple sclerosis: A view from two cultures

McLaughlin, Judith; Zeeberg, I.

doi:10.1016/0277-9536(93)90263-4

Cited by 50 publications

(41 citation statements)

References 22 publications

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“…A study showed that self-care was an important factor for patients in performing their activities of daily living and they needed adequate self-care agency to be able to perform these activities of daily living [52] and adults with type 2 diabetes stressed in another study that they needed instrumental help for their self-care behaviors [53]. Similar to the result of our study, other studies have also reported that the relationship between self-care agency, quality of life and activities of daily living is significant in patients with chronic diseases [54] [55]. It was found in the present study that the patients had sufficient self-care agency to be able to perform their activities of daily living.…”

Section: Discussionsupporting

confidence: 88%

Effect of Activities of Daily Living on Self-Care Agency in Individuals with Type 2 Diabetes

Istek¹,

Karakurt²

2016

JDM

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Background: Diabetes mellitus continues to be a global health problem with increasing importance across the world by affecting the activities of daily living and self-care ability of patients due to its incidence and troubles caused by it. The present study aims at determining the effect of activities of daily living of patients with type 2 diabetes mellitus on their self-care agency. Methods: The population of this descriptive study consisted of patients with type 2 diabetes mellitus who were being treated at the internal medicine clinic of a provincial state hospital between July 2014 and November 2015 and its sample consisted of 150 diabetic patients who volunteered to take part in the study and who were open to communication. A personal information form, the Activities of Daily Living (ADL) Scale, the Instrumental Activities of Daily Living (IADL) Scale and the Self-Care Ability Scale (CAS) were used as data collecting tools. The data were analyzed using descriptive statistics (numbers, percentages, mean, standard deviation, mean rank and frequencies), the Shapiro-Wilk, KruskalWallis Variance Analysis, Mann-Whitney U test and Cronbach's alpha formula and correlation analysis. Results: Approximately 97.3% of the patients with type 2 diabetes stated that they were independent in ADL and 75.3% of them in IADL. The patients' mean self-care ability score was found to be 83.85 ± 17.87 ADL and IADL were found to be affected by age, marital status, education, duration of disease, willingness to receive further education, and presence of another disease besides diabetes. There was a significant correlation between the self-care agency score and marital status, education, duration of disease, willingness to receive further education, presence of another disease besides diabetes, regular checking of blood sugar and compliance with diet. A significant positive correlation was found between the patients' activities of daily living and their self-care agency. Conclusion: The patients' activities of daily living were found to affect their self-care agency. The personal and disease-related characteristics of patients should be identified so that their self-care behaviors can be increased.

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Section: Discussionsupporting

confidence: 88%

Effect of Activities of Daily Living on Self-Care Agency in Individuals with Type 2 Diabetes

Istek¹,

Karakurt²

2016

JDM

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“…Respondents described employing techniques for maintaining both normalcy and independence for as long as possible (McLaughlin et al 1993). However, dwindling self-management could contribute to isolation and uncertainty in the long term and ultimately 'diminish returns' for the required effort (May et al 2014).…”

Section: Discussionmentioning

confidence: 99%

A qualitative investigation of lay perspectives of diagnosis and self-management strategies employed by people with progressive multiple sclerosis

2016

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Abstract:This paper explores how people with progressive Multiple Sclerosis (MS) give meaning to their experiences. It builds upon the self-management literature, which has captured the tension between the desire for retaining normalcy and the increasing burden of self-management associated with chronic disease progression. This repeat interview study is empirically grounded in twenty eight interviews with fourteen people with progressive MS. We identified gender differences in diagnosis-seeking which impacted upon subsequent sense-making. Male respondents found a diagnosis of MS difficult to come to terms with, and an enduring sense of loss or anger could inhibit further sense-making. A diagnosis of MS was more difficult to obtain for women respondents, and any sense of certainty that diagnosis provided framed their subsequent sense-making strategies. The complex sequelae of MS require that self-management strategies are both contextual and timely; although even the most accomplished selfmanagers can lose their sense of self with neurodegeneration. Disease progression can be associated with suicidal ideation, suggesting the need for greater dialogue to ensure that people with MS are adequately supported to fulfil their quality of life at all stages of neurodegeneration. These lay perspectives emphasise the articulation of affect rather than the rendering of a medical diagnosis, although diagnosis may provide a degree of certainty in the short term. The ethos of self-management ensures people attempt to retain their sense of 'normality' and existent social roles for as long as possible, but this ethos can negate both ones' ability to selfmanage and the management of self.http://mc.manuscriptcentral.com/health Health: an interdisciplinary journal for the social study of health, Illness and medicine This repeat interview study is empirically grounded in twenty eight interviews with fourteen people with progressive MS. We identified gender differences in diagnosisseeking which impacted upon subsequent sense-making. Male respondents found a diagnosis of MS difficult to come to terms with, and an enduring sense of loss or anger could inhibit further sense-making. A diagnosis of MS was more difficult to obtain for women respondents, and any sense of certainty that diagnosis provided framed their subsequent sense-making strategies. The complex sequelae of MS require that self-management strategies are both contextual and timely; although even the most accomplished self-managers can lose their sense of self with neurodegeneration. Disease progression can be associated with suicidal ideation, suggesting the need for greater dialogue to ensure that people with MS are adequately supported to fulfil their quality of life at all stages of neurodegeneration.These lay perspectives emphasise the articulation of affect rather than the rendering of a medical diagnosis, although diagnosis may provide a degree of certainty in the short term. The ethos of self-management ensures people attempt to retain their sense of 'normality' an...

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“…This is particularly important as it is known that people with MS who engage in MS support groups might not be representative of the wider MS population. These people have been found to be generally accepting of their MS, already supported and actively seek information [41].…”

Section: Strengths and Limitationsmentioning

confidence: 99%

Physical activity and exercise priorities in community dwelling people with multiple sclerosis: a Delphi study

Stennett

Souza

Norris

2017

Disability and Rehabilitation

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Aims: Exercise and physical activity have been found to be beneficial in managing disabilities caused by multiple sclerosis. Despite the known benefits, many people with multiple sclerosis are inactive. This study aimed to identify the prioritised exercise and physical activity practices of people with multiple sclerosis living in the community and the reasons why they are engaged in these activities. Methods: A four Round Delphi questionnaire scoped and determined consensus of priorities for the top 10 exercise and physical activities and the reasons why people with multiple sclerosis (n ¼ 101) are engaged in these activities. Data were analysed using content analysis, descriptive statistics, and nonparametric tests. Results: The top 10 exercise and physical activity practices and the top 10 reasons why people with multiple sclerosis (n ¼ 70) engaged in these activities were identified and prioritised. Consensus was achieved for the exercise and physical activities (W ¼ 0.744, p < .0001) and for the reasons they engaged in exercise and physical activity (W ¼ 0.723, p < .0001). Conclusion:The exercise and physical activity practices and the reasons people with multiple sclerosis engaged in exercise and physical activity were diverse. These self-selected activities and reasons highlighted that people with multiple sclerosis might conceptualise exercise and physical activity in ways that may not be fully appreciated or understood by health professionals. Considerations of the views of people with multiple sclerosis may be essential if the goal of increasing physical activity in this population is to be achieved. ä IMPLICATIONS FOR REHABILITATIONHealth professionals should work collaboratively with people with multiple sclerosis to understand how they prioritise activities, the underlying reasons for their prioritisations and embed these into rehabilitation programmes. Health professionals should utilise activities prioritised by people with multiple sclerosis in the community as a way to support, promote, and sustain exercise and physical activity in this population. Rehabilitation interventions should include both the activities people with multiple sclerosis prioritise and the reasons why they engage in exercise and physical activity as another option for increasing physical activity levels and reducing sedentary behaviours. ARTICLE HISTORY

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Self-care and multiple sclerosis: A view from two cultures

Cited by 50 publications

References 22 publications

Effect of Activities of Daily Living on Self-Care Agency in Individuals with Type 2 Diabetes

Effect of Activities of Daily Living on Self-Care Agency in Individuals with Type 2 Diabetes

A qualitative investigation of lay perspectives of diagnosis and self-management strategies employed by people with progressive multiple sclerosis

Physical activity and exercise priorities in community dwelling people with multiple sclerosis: a Delphi study

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