Self-Advocacy During the Medical Encounter

Wiltshire, Jacqueline; Cronin, Kate; Sarto, Gloria E.; Brown, Roger

doi:10.1097/01.mlr.0000196975.52557.b7

Cited by 78 publications

(38 citation statements)

References 38 publications

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“…For example, more than 8 in 10 (83%) of US Latinos obtain health information from the media, and 79% of those who do so act on that information (Livingston, Minushkin, & Cohn, 2008). Other studies have demonstrated significant positive effects of information-seeking from the media on health behaviors (Ramirez, Freres, Martinez, et al, 2013), improved doctor-patient communication (Rooks, Wiltshire, Elder, et al, 2012), and uncertainty management (Wiltshire, Cronin, Sarto, & Brown, 2006). …”

Section: Introductionmentioning

confidence: 99%

Mapping the Health Information Landscape in a Rural, Culturally Diverse Region: Implications for Interventions to Reduce Information Inequality

2017

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The media is an important source of health information, especially critical in rural communities with geographically-dispersed populations that are harder to reach through other channels. Yet health information is unequally distributed; these information disparities are compounded in rural areas, which may contribute to health disparities. We identify and describe health-related news in a culturally-diverse rural California county characterized by high levels of poverty, unemployment, low educational attainment, and over half of Mexican-origin. We conducted a census of all available print news sources and then used content analysis to identify and characterize all health information printed in a 6-month study period. A total of 570 health-related articles were published. Five newspapers accounted for more than 80% of published health-related articles (n=466); only one targeted the majority Latino population. The most common topic was access to health care/insurance/policy (33%), followed by diet/nutrition (13%), infectious disease (10%), and general prevention (9%). Just over one-quarter of health-related articles included useful information. Differences across newspaper types existed: independent newspapers reported more on health-related events compared with chain newspapers, and both ethnic-targeted newspapers and independently-published papers were more likely to include useful information compared with chain newspapers. While this region suffers from high rates of obesity and diabetes, there were relatively few articles on obesity and diabetes themselves, or linking behavioral risk factors with these conditions. One area we found absent from coverage pertained to the numerous environmental health threats prevalent in this heavily polluted, agricultural area (just 40 articles discussed environmental health threats). We also discovered that coverage of social determinants of health was lacking (just 24 of the 570 health articles), which was notable in a region that suffers extreme economic, educational, and health disparities. This analysis of a rural region’s local news coverage of health issues demonstrates significant opportunity to engage with rural local media, particularly ethnic media, to disseminate health information. Such a strategy holds considerable promise to advance public health goals using a multilevel approach: From an individual perspective, improving the amount and utility of the information can inform and educate publics in areas with otherwise low levels of health information access. From a policy perspective, improving coverage of the social determinants of health could shape public opinion to support policies that improve health.

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Section: Introductionmentioning

confidence: 99%

Mapping the Health Information Landscape in a Rural, Culturally Diverse Region: Implications for Interventions to Reduce Information Inequality

2017

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“…Cancer care education and self-advocacy skills sets can enable cancer survivors to overcome unique barriers (e.g., discrimination and stigmatization) [29], fostering self-care, symptom management and coping [30]. However, the effectiveness of self-advocacy depends greatly upon the survivor’s level of empowerment [22] and is affected by various factors, including personal characteristics and technical skills, the complexity of the patient’s illness [29, 31, 32], and availability and utilization of various forms of support [28].…”

Section: Self-advocacymentioning

confidence: 99%

“…However, the effectiveness of self-advocacy depends greatly upon the survivor’s level of empowerment [22] and is affected by various factors, including personal characteristics and technical skills, the complexity of the patient’s illness [29, 31, 32], and availability and utilization of various forms of support [28]. Therefore, in addition to self-advocacy education and training, some cancer patients and survivors may benefit from broader empowerment strategies and support.…”

Section: Self-advocacymentioning

confidence: 99%

Nurturing Advocacy Inclusion to Bring Health Equity in Breast Cancer Among African–American Women

Ashing

Miller

Mitchell

et al. 2014

Breast Cancer Manag.

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Summary This paper will present the multiple roles and the impact of cancer advocates. The emerging literature provides evidence for the consideration and integration of African American BC survivors as advocates in practice, policy and research relevant to cancer prevention and control. We present a practical outline for organizational assessment for the inclusion of advocates in these arenas. This assessment can be conducted by all levels of partners, including community advocacy and scientific organizations.

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“…Self advocacy has been conceptualized as the efforts of survivors to engage their own health experiences and overlaps with constructs such as healthcare-related self-efficacy and proactive postures [15-17]. Self-advocacy has been associated with improved cancer-related care outcomes among African American patients [17-21], potentially due to increased awareness of and responses to intrapersonal, interpersonal and systemic factors affecting them specifically (e.g., own distrust; discriminatory experiences with their providers), as conceptualized by social cognitive theories [22].…”

Section: Introductionmentioning

confidence: 99%

“…Self-advocacy has been associated with improved cancer-related care outcomes among African American patients [17-21], potentially due to increased awareness of and responses to intrapersonal, interpersonal and systemic factors affecting them specifically (e.g., own distrust; discriminatory experiences with their providers), as conceptualized by social cognitive theories [22]. Community/interpersonal advocacy has been conceptualized as the efforts of individuals and organizations to optimize cancer care experiences of specific patients with whom they are connected and overlaps with skill building, self-management, and navigation strategies [14,23].…”

Section: Introductionmentioning

confidence: 99%

Medical advocacy among African-American women diagnosed with breast cancer: from recipient to resource

Molina

Scherman

Constant

et al. 2016

Support Care Cancer

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Purpose Medical advocacy at multiple levels (self, community/interpersonal, national/public health interest) may be helpful to address the disproportionate burden of breast cancer African American women encounter. Little however is known about the interplay of medical advocacy at different levels. Methods We analyzed qualitative data from two studies focused on the psychosocial experiences of breast cancer among 38 African American women living in Western Washington State. Results Emergent themes suggested that survivors received community/interpersonal advocacy from different members of social networks in the form of social support (appraisal, emotional, informational, instrumental). Survivors indicated that receiving this advocacy was associated with greater self advocacy in terms of their own care experiences as well as greater community/interpersonal advocacy on their part as resources to other women diagnosed with breast cancer, their family, friends, and larger communities. Conclusion Our findings suggest that community/interpersonal advocacy, including providing different types of support, may lead to improved self advocacy as well as health-protective impacts for the networks in which survivors are embedded. Future quantitative research is warranted to support these findings and assess how this interplay is associated with improved outcomes among this marginalized and resilient population.

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Self-Advocacy During the Medical Encounter

Abstract: Although health information was associated with self-advocacy, black women were less likely to self-advocate. Further research is needed to better understand factors that impede black women from self-advocating.

Cited by 78 publications

References 38 publications

Mapping the Health Information Landscape in a Rural, Culturally Diverse Region: Implications for Interventions to Reduce Information Inequality

Mapping the Health Information Landscape in a Rural, Culturally Diverse Region: Implications for Interventions to Reduce Information Inequality

Nurturing Advocacy Inclusion to Bring Health Equity in Breast Cancer Among African–American Women

Medical advocacy among African-American women diagnosed with breast cancer: from recipient to resource

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