Seeking help for peritoneal dialysis‐associated peritonitis: Patients’ and families’ intentions and actions. A mixed methods study

Baillie, Jessica; Gill, Paul; Courtenay, Molly

doi:10.1111/jan.14969

Cited by 2 publications

(4 citation statements)

References 36 publications

(93 reference statements)

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“…This is concerning within the context of PD management as the current study demonstrates that peritonitis is associated with stigma. Seeking appropriate help for suspected peritonitis is an important aspect of safely managing PD at home (Baillie et al, 2021). Help‐seeking is a complex process and challenges in relation to peritonitis have been identified in the three antecedents to help‐seeking behaviour (Cornally & McCarthy, 2011): recognising peritonitis, deciding to act and selecting a source of help (Baillie et al, 2021).…”

Section: Discussionmentioning

confidence: 99%

“…Seeking appropriate help for suspected peritonitis is an important aspect of safely managing PD at home (Baillie et al, 2021). Help‐seeking is a complex process and challenges in relation to peritonitis have been identified in the three antecedents to help‐seeking behaviour (Cornally & McCarthy, 2011): recognising peritonitis, deciding to act and selecting a source of help (Baillie et al, 2021). Suspected peritonitis requires urgent assessment (Salzer, 2018) and prompt treatment initiation (Li et al, 2022), and delays in seeking help thus delay timely commencement of essential treatment.…”

Section: Discussionmentioning

confidence: 99%

“…A structured questionnaire (content in Table 1) was developed specifically for the study (see Baillie et al, 2018; 2021 for further details). Multiple choice and dichotomous yes/no questions were used, with the option for free‐text comments, which is standard in knowledge questionnaires (Rattray & Jones, 2005).…”

Section: Methodsmentioning

confidence: 99%

“…recognising peritonitis, deciding to act and selecting a source of help PERCEPTIONS OF PERITONITIS STIGMA | 147 (Baillie et al, 2021). Suspected peritonitis requires urgent assessment (Salzer, 2018) and prompt treatment initiation (Li et al, 2022), and delays in seeking help thus delay timely commencement of essential treatment.…”

Section: Help-seekingmentioning

confidence: 99%

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Perceptions of peritonitis risk, prevention, diagnosis and stigma: Findings from a mixed methods study with patients and relatives using peritoneal dialysis

Baillie

Gill

Courtenay

2023

Journal of Renal Care

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Background: Peritonitis is the main treatment-related complication of peritoneal dialysis and a primary concern for patients and their relatives. Therefore, understanding their perceptions of peritonitis is important.Objectives: To explore patients' and relatives' perceptions of peritoneal dialysisassociated peritonitis risk, prevention measures and experiences of diagnosis, and experience of perceived stigma.Design: A sequential mixed methods study design was used, including a questionnaire and semi-structured interviews.Participants: Patients using peritoneal dialysis and relatives (n = 75) from six National Health Service organisations from the United Kingdom.Measurements: A structured questionnaire was administered with patients and relatives (n = 75) using peritoneal dialysis; data were analysed using descriptive statistics. Thirty questionnaire respondents were then purposively sampled and interviewed in-depth; data were analysed thematically. Data were collected 2017−2018. Ethical and governance approvals were gained.Results: Qualitative and quantitative analyses were integrated and three themes presented:• Perceptions of risk: participants assessed their risk of developing peritonitis and possible implications on their health and relatives. Participants felt greatly responsible for preventing infection.• Preventing peritonitis: participants reported similar and some differing measures to minimise their risk of developing peritonitis. Participants wanted to be seen as "clean".• Diagnosis of peritonitis: peritonitis diagnosis was embarrassing and stigmatising for many individuals. This was influenced by the response of healthcare professionals and the cause of peritonitis.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Help-seekingmentioning

confidence: 99%

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Perceptions of peritonitis risk, prevention, diagnosis and stigma: Findings from a mixed methods study with patients and relatives using peritoneal dialysis

Baillie

Gill

Courtenay

2023

Journal of Renal Care

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Understanding the urgent and emergency care navigation work undertaken by people with cancer and their informal caregivers: a conceptually framed scoping review

Defty

Wagland²,

Richardson³

2023

Emerg Cancer Care

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Background People with cancer frequently use urgent and emergency care. Reviews of research have focussed on the incidence and predictors of service use in this population, rather than how people make decisions about which service to access. Understanding what factors influence these choices will inform ways in which we might enable people with cancer to effectively access services. Aims (1) Describe research undertaken about choices made by people with cancer about routes to access urgent and emergency care; (2) characterise decisions made by patients and informal caregivers to use certain services, with specific reference to work involved in navigating access; and (3) identify research priorities. Methods Scoping review of qualitative and mixed methods studies. Electronic database searches (AMED, CINAHL, Embase, MEDLINE, PsycInfo) and ‘berrypicking’ identified 18 papers. Study, participant, and service characteristics were mapped, and Turnbull et al.’s Model of Urgent Care Help-seeking informed a directed qualitative content analysis. Results Studies have involved people with advanced cancer to the relative exclusion of people with curable disease, receiving anticancer treatment, and who are multi-morbid. Six subcategories of navigation work were identified: (1) making decisions with, and seeking help from, specialists, (2) seeking safety, (3) positioning to access desired treatment, (4) negotiating tortuous pathways to help, (5) making decisions in collaboration with caregivers, and (6) managing isolation from services and social networks. Conclusion There are significant knowledge gaps and a need for more research, particularly studies of how different patient groups prepare for potential deterioration and make sense of systems of urgent and emergency care.

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Seeking help for peritoneal dialysis‐associated peritonitis: Patients’ and families’ intentions and actions. A mixed methods study

Abstract: This is an open access article under the terms of the Creat ive Commo ns Attri bution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.

Cited by 2 publications

References 36 publications

Perceptions of peritonitis risk, prevention, diagnosis and stigma: Findings from a mixed methods study with patients and relatives using peritoneal dialysis

Perceptions of peritonitis risk, prevention, diagnosis and stigma: Findings from a mixed methods study with patients and relatives using peritoneal dialysis

Understanding the urgent and emergency care navigation work undertaken by people with cancer and their informal caregivers: a conceptually framed scoping review

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