`Seeking': a key activity for new family carers of stroke survivors

Brereton, Louise; Nolan, Mike

doi:10.1046/j.1365-2702.2002.00564.x

Cited by 83 publications

(117 citation statements)

References 33 publications

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“…90 -92 Caregiving can result in lifestyle changes 89,93 as well as physical, emotional, and financial problems. 90,94 -96 It was also reported that carers feel isolated, that their own needs are neglected, 91 and that family relationships can suffer. 96 Carers develop their own strategies including trying to increase their competence, 91 creating their own solutions for patient's functional loss, constructing their own sense of what recovery means, 97 and using their own spiritual beliefs and practices.…”

Section: Mckevitt Et Al Qualitative Studies Of Stroke: a Systematic Rmentioning

confidence: 99%

Qualitative Studies of Stroke

McKevitt

Redfern

Mold

et al. 2004

Stroke

211

204

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Background and Purpose-Qualitative studies are increasingly used to investigate social processes and phenomena influencing health behaviors and service provision. We aimed to identify the scope of published qualitative studies of stroke, consider their relevance to development and delivery of services for people with stroke, and make recommendations for future work. Methods-Literature review of published articles was identified by systematically searching online literature databases using keywords from the start of each database until 2002. Articles were reviewed by 2 authors, using a standardized matrix for data extraction. The 2003 European Stroke Initiative recommendations for stroke management were used to categorize the literature for consideration of its contribution to stroke research. Results-We included 95 articles. Their empirical contribution includes an emphasis on recording the "human" experience of stroke; identification of needs as perceived by patients and their families, differences in priorities between patients and professionals, and barriers to best-quality care. We identified 12 papers that were specifically undertaken to develop or evaluate interventions. Conclusions-Qualitative studies have addressed a wide range of issues related to the impact of stroke on individuals and caregivers, and to the organization and delivery of services. Significant problems remain in ensuring the delivery of best-quality stroke care, which such studies have the potential to address. Maximizing this potential requires greater collaboration between nonclinical and clinical scientists, service providers, and users to formulate research questions of interest as well as new research strategies, such as meta-analysis, to pool qualitative research findings and multisited investigations. Key Words: qualitative research Ⅲ caregivers Ⅲ delivery of health care Ⅲ evaluation studies Ⅲ quality of health care Ⅲ stroke T he relevance of social science research for medical practice has long been recognized. 1 Studies conducted using qualitative methods, which are drawn from the social sciences, are now commonly advocated and used in health and healthcare research. 2 The aim of qualitative research is to understand social processes and behaviors (such as responses to disease or the organization of health services) in natural rather than experimental settings, and from the perspective of participants. Specific methods used include unstructured or semistructured interviews, focus group interviews, and ethnographic observation. These methods tend to generate textual rather than numerical data, and their analysis entails identifying meanings and developing concepts, but not measuring frequency. Studies using a variety of qualitative research methods have investigated social factors that influence the delivery and uptake of a wide range of health services.Qualitative research is undertaken by researchers from a variety of disciplines, and reports may be published in journals not widely read outside the discipline concerned. The aim...

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Section: Mckevitt Et Al Qualitative Studies Of Stroke: a Systematic Rmentioning

confidence: 99%

Qualitative Studies of Stroke

McKevitt

Redfern

Mold

et al. 2004

Stroke

211

204

View full text Add to dashboard Cite

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“…It is easier to endure waiting once one knows what one is waiting for and why [5,20] . The importance of informing the family has also been found in earlier studies [6,23] .…”

Section: Analysis Of the Research Results And Improving The Informatimentioning

confidence: 57%

Information availability for the families of stroke patients at an emergency department: A training intervention study

Virtanen¹,

Paavilainen²,

Aalto³

et al. 2013

Clinical Nursing Studies

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In this study, the information availability for the families of stroke patients at an emergency department (ED) is described and how a training intervention for the staff can change this is studied. The material for the study was collected by using a survey questionnaire given to stroke patients and their families in two university hospital EDs from 2006-2008. The first set of material (n=85) was collected before the training intervention and the second set (n=72) after the intervention.The first survey examined stroke patients' and their families' experience of the information availability at the two EDs. After the first survey, a training intervention was conducted where one of the two EDs functioned as the intervention ED and the other one functioned as the control ED. After this, a new survey was carried out for the stroke patients and their family members at both the intervention ED and the control ED. This article discusses the family members' experiences of information availability before and after the training intervention.In the family members' experience, the information availability was best realized regarding keeping them informed about issues and tests, staff treatment and issues relating to the information availability for the family member the patient informed. The worst realized components of information availability were related to discussing symptoms, the patient instructions received and informing about medication and IV therapy.In the training the staff of the intervention ED received information on background factors, risk factors and symptoms of strokes and different treatment forms. The training also discussed the role of the family member as the patient's supporter when healing and/or coping with the disease. In addition to the training, the intervention ED adopted new written instructions designed for stroke patients and their family.According to the results, the effect of the educational intervention was not statistically significant when comparing the intervention emergency department and the control emergency department, although the information availability was seen to have improved for each component when analysed separately. The interaction effect term is positive in each of the nine components of information availability, which indicates that there has been more positive development at the intervention emergency department than at the control emergency department.Among the background factors, waiting time at the emergency department, waiting time before a doctor arrived to examine the patient and whether the doctor arrived soon enough were connected to the information availability experienced by stroke patients' family members. www.sciedupress.com/cns Clinical Nursing Studies, 2013, Vol. 1, No. 4 Published by Sciedu Press 57The results support the idea that an intervention can have a positive effect on the information availability as perceived by the families of stroke patients.

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“…[12] However, the support and assistance provided by health and social services for the families are often insufficient or not suited to experienced needs. [22,23] A family systems nursing intervention, such as FamHC, has the potential to be a way of supporting families' needs, but this still has to be evaluated from various perspectives. It has previously been shown that family systems nursing interventions can lead to family responses such as improved understanding and capability, enhanced coping, caring more about each other and the family, improved family and individual emotional well-being, improvement in interactions within and outside family, and healthier individual behaviour.…”

Section: Family Supportmentioning

confidence: 99%

Responses after participating in Family Health Conversations in families with a family member who has suffered a stroke: A mixed methods research study

Sundin¹,

Bäckström²,

Lindh³

et al. 2016

Clinical Nursing Studies

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Background: It has been proposed that support for families in which a family member has suffered a stroke should involve the whole family system. Aim: The aim was to evaluate the responses of Family Health Conversation (FamHC) in families with a member under the age of 65 who has been diagnosed with stroke. Methods: In this mixed methods research study, families were included in an intervention group and in a control group. For both groups pre-and post-intervention quantitative data was collected and for the intervention group, qualitative data was collected post-intervention. Underlying theoretical propositions and the two data sets were then integrated. Results: Family health measured as "the general atmosphere of the interaction of the family" had improved in the intervention group when compared to the control group. The intervention families, moreover, described how they had become more cooperative, their communication had improved, they had become more confident with their situation and also when planning for the future when comparing to before the FamHC. Conclusions: Based on the empirical results supporting the theoretical proposition underlying FamHC, we conclude that it works as intended, and the evidence for the theoretical proposition is thereby strengthened. This paper contributes to the scientific evidence concerning FamHC. With the available evidence, RNs are suggested to consider changing practice so as to work in a more family-centred way to support families living with ill-health. Implementing FamHC can be one way of undertaking such supportive work.

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`Seeking': a key activity for new family carers of stroke survivors

Cited by 83 publications

References 33 publications

Qualitative Studies of Stroke

Qualitative Studies of Stroke

Information availability for the families of stroke patients at an emergency department: A training intervention study

Responses after participating in Family Health Conversations in families with a family member who has suffered a stroke: A mixed methods research study

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