Secure and scalable deduplication of horizontally partitioned health data for privacy-preserving distributed statistical computation

ObjectivesThe objectives of this study were to describe the methods used to assess the quality of linkage between records of babies’ birth registration and hospital birth records, and to evaluate the potential bias that may be introduced because of these methods.Design/settingData from the civil registration and the notification of births previously linked by the Office for National Statistics (ONS) had been further linked to birth records from the Hospital Episode Statistics (HES) for babies born in England. We developed a deterministic, six-stage algorithm to assess the quality of this linkage.ParticipantsAll 1 170 790 live, singleton births, occurring in National Health Service hospitals in England between 1 January 2005 and 31 December 2006.Primary outcome measureThe primary outcome was the number of successful links between ONS birth records and HES birth records. Rates of successful linkage were calculated for the cohort and the characteristics associated with unsuccessful linkage were identified.ResultsApproximately 92% (1 074 572) of the birth registration records were successfully linked with a HES birth record. Data quality and completeness were somewhat poorer in HES birth records compared with linked birth registration and birth notification records. The quality assurance algorithms identified 1456 incorrect linkages (<1%). Compared with the linked dataset, birth records were more likely to be unlinked if babies were of white ethnic origin; born to unmarried mothers; born in East England, London, North West England or the West Midlands; or born in March.ConclusionsIt is possible to link administrative datasets to create large cohorts, allowing researchers to explore important questions about exposures and childhood outcomes. Missing data, coding errors and inconsistencies mean it is important that the quality of linkage is assessed prior to analysis.

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“…The latter can be more effective when dealing with complex records, such as those with a lot of missing data or coding errors. 15 16 …”

Section: Discussionmentioning

confidence: 99%

Linkage of maternity hospital episode statistics birth records to birth registration and notification records for births in England 2005–2006: quality assurance of linkage

2020

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“…A number of systems combine self-management and telemonitoring [ 20 , 103 ]. Most of them focus on enabling patients to self-assess their status (see Sect.…”

Section: Existing Devices and Technologies Suitable For The Remote Anmentioning

confidence: 99%

Continuous remote monitoring of COPD patients—justification and explanation of the requirements and a survey of the available technologies

Tomašić

Trobec

et al. 2018

Med Biol Eng Comput

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Remote patient monitoring should reduce mortality rates, improve care, and reduce costs. We present an overview of the available technologies for the remote monitoring of chronic obstructive pulmonary disease (COPD) patients, together with the most important medical information regarding COPD in a language that is adapted for engineers. Our aim is to bridge the gap between the technical and medical worlds and to facilitate and motivate future research in the field. We also present a justification, motivation, and explanation of how to monitor the most important parameters for COPD patients, together with pointers for the challenges that remain. Additionally, we propose and justify the importance of electrocardiograms (ECGs) and the arterial carbon dioxide partial pressure (PaCO2) as two crucial physiological parameters that have not been used so far to any great extent in the monitoring of COPD patients. We cover four possibilities for the remote monitoring of COPD patients: continuous monitoring during normal daily activities for the prediction and early detection of exacerbations and life-threatening events, monitoring during the home treatment of mild exacerbations, monitoring oxygen therapy applications, and monitoring exercise. We also present and discuss the current approaches to decision support at remote locations and list the normal and pathological values/ranges for all the relevant physiological parameters. The paper concludes with our insights into the future developments and remaining challenges for improvements to continuous remote monitoring systems. Graphical abstractᅟ

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“…The protocol proposed in [83] achieved better scalability using third partyaided computation model. In general, these protocols exchange messages that have smaller sizes the protocols proposed in [78][79][80].…”

Section: Privacy-preserving Record Linkagementioning

confidence: 99%

“…Multi-party [81][82][83] and two-party [84] protocols are also proposed for deterministic record linkage based on Bloom filter. In these protocols, each data custodian encodes its identifiers as a Bloom filter, and the data custodians use different mechanisms to securely compute the intersection between their Bloom filters.…”

Section: Privacy-preserving Record Linkagementioning

confidence: 99%

A Survey of Privacy-Preserving Techniques for Reuse of Distributed Health Data (Preprint)

Yigzaw¹,

Berntsen²,

Hartvigsen³

et al. 2018

Preprint

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Background: Large amounts of detailed electronic health data are being collected. Reuse of these data has enormous potential for scientific discoveries that enables the improvement of healthcare systems' effectiveness, efficiency, and quality of care. However, health data reuse should protect the privacy interests of the stakeholders (i.e., patients and healthcare providers) and promote public good through research. This is particularly challenging when the data are distributed across several data custodians.

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Secure and scalable deduplication of horizontally partitioned health data for privacy-preserving distributed statistical computation

Cited by 80 publications

References 59 publications

Linkage of maternity hospital episode statistics birth records to birth registration and notification records for births in England 2005–2006: quality assurance of linkage

Linkage of maternity hospital episode statistics birth records to birth registration and notification records for births in England 2005–2006: quality assurance of linkage

Continuous remote monitoring of COPD patients—justification and explanation of the requirements and a survey of the available technologies

A Survey of Privacy-Preserving Techniques for Reuse of Distributed Health Data (Preprint)

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