Section 4: Home monitoring and follow-up of home-ventilated children

Côté, Aurore

doi:10.1080/24745332.2018.1494978

Cited by 3 publications

(11 citation statements)

References 80 publications

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“…Following hospital discharge, the Canadian Thoracic Society recommends that "the first visit and the frequency of subsequent visits should be tailored to the child and family's need" (1), based on a consensus for pediatric home ventilation (4). They suggested, based on a review of the literature, that the first visit should occur within the first month and no later than 3 months after home discharge (1). Following the first visit, the number and timing of the subsequent follow-up visits will depend upon the condition of the child and the evolution of the disease.…”

Section: Visitsmentioning

confidence: 99%

“…Healthcare systems vary according to countries. Some centers have teams of professionals (mainly nurses, respiratory therapists but also physicians) who can perform home visits between hospital visits, while other centers collaborate with home healthcare providers who can visit the child and family (1,9,11,14,15). Several types of home service providers may exist with different medical functions (7).…”

Section: Home Visitsmentioning

confidence: 99%

“…Moreover, telemedicine may also cause an increased number of hospitalizations, oupatients visits, telemedicine consultations or home care visits (16), therefore "a more comprehensive cost benefit analysis is needed" together with legal clarity as legal problems associated with telemonitoring remain controversial. Indeed, although well accepted by patients, families and medical teams, the use of telemedicine needs further investigations as it is not clear if it actually decreases cost or improves outcome (1). The ERS statement on telemonitoring of ventilator-dependent patients concluded that "despite the hopes in telemonitoring as a means to face these problems, much more research is needed before considering telemonitoring a real improvement in the management of these patients" (17).…”

Section: Telemedicinementioning

confidence: 99%

“…However, the review of the experience of large centers highlights the fact that not all the centers are doing PSG, and that even when possible, the sleep studies are not done on a regular basis in all patients (1). This can be explained in part by the limited accessibility to sleep centers or to the confidence in home SpO 2 and CO 2 monitoring and respiratory support device data.…”

Section: Poly(somno)graphy (P(s)g)mentioning

confidence: 99%

“…Children receiving home noninvasive mechanical ventilation, by continuous positive airway pressure (CPAP) or noninvasive ventilation (NIV), should be followed with regular visits in order to check the tolerance and efficacy of the treatment. The followup strategy depends on various factors, such as the underlying disorder, the medical stability, the age of the child, and socioeconomic factors, with no clear recommendations concerning follow-up visits and evaluation of efficiency of ventilation for children (1). The follow-up may consist of an overnight hospital stay, an outpatient visit, a home visit, a visit via telemedicine, alone or in combination.…”

Section: Introductionmentioning

confidence: 99%

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Follow-Up and Monitoring of Children Needing Long Term Home Ventilation

et al. 2020

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Once continuous positive airway pressure (CPAP) or noninvasive ventilation (NIV) is started in a child, and the child is discharged home, follow-up needs to be organized with regular visits in order to check the tolerance and efficacy of the treatment. But there is a lack of validated clinical guidelines, mainly because of the heterogeneity of the ventilator servicing, the costs and health care systems among countries. Therefore, visits timing and strategies to monitor CPAP/NIV are not clearly defined. Moreover, depending on various factors such as the underlying disorder, the medical stability, the age of the child, and socioeconomic factors, follow-up usually ranges between 1 month and 3-6 months, or even 1 year following treatment initiation, with an overnight hospital stay, an outpatient visit, a home visit, via telemonitoring or telemedicine, alone or in combination. Apart from clinical evaluation, nocturnal oximetry and capnography monitoring and/or poly(somno)graphy (P(S)G) are usually carried out during the follow-up visits to monitor the delivered pressure, leaks, residual respiratory events and synchrony between the patient and the ventilator. Built-in software data of CPAP/NIV devices can be used to assess the adherence of treatment, to monitor pressure efficiency, leaks, asynchronies, and to estimate the presence of residual respiratory events under CPAP/NIV if P(S)G is not available or in alternance with P(S)G. The possibility of CPAP/NIV weaning should be assessed on a regular basis, but no criteria for the timing and procedures have been validated. Weaning timing depends on the clinical condition that justified CPAP/NIV initiation, spontaneous improvement with growth, and the possibility and efficacy of various upper airway, maxillofacial and/or neurosurgical procedures. Weaning may be allowed in case of the disappearance of nocturnal and daytime symptoms of sleep-disordered breathing (SDB) after several nights without CPAP/NIV and the objective correction of SDB on a P(S)G. But no parameters are defined. In any case, a long term follow-up is necessary to ascertain the weaning success. Large prospective studies, together with international and national guidelines, are required in order to build evidence for standardizing practice for the follow-up and weaning of CPAP/NIV in children.

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Section: Visitsmentioning

confidence: 99%

Section: Home Visitsmentioning

confidence: 99%

Section: Telemedicinementioning

confidence: 99%

Section: Poly(somno)graphy (P(s)g)mentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Follow-Up and Monitoring of Children Needing Long Term Home Ventilation

et al. 2020

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The follow‐up of children on home invasive mechanical ventilation after hospital discharge

Nayır Büyükşahin,

Yalcın

2023

Pediatric Pulmonology

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The number of children on home invasive mechanical ventilation (HIMV) has been increasing because it is a cost‐effective strategy, the developments in technological tools, and its psychological and developmental advantages. Therefore, healthcare providers should be familiar with the follow‐up of these patients after hospital discharge. This review will highlight the important points to be aware of during home care of children on HIMV, emphasizing the frequency of scheduled hospital visits after hospital discharge, recognizing adverse events related to HIMV, and ensuring the continued care of these children in areas such as vaccination, and performing appropriate tests in the follow‐up.

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Editorial: Pediatric Long-Term Non-invasive Ventilation

Fauroux¹,

Cutrera

2021

Front. Pediatr.

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Section 4: Home monitoring and follow-up of home-ventilated children

Cited by 3 publications

References 80 publications

Follow-Up and Monitoring of Children Needing Long Term Home Ventilation

Follow-Up and Monitoring of Children Needing Long Term Home Ventilation

The follow‐up of children on home invasive mechanical ventilation after hospital discharge

Editorial: Pediatric Long-Term Non-invasive Ventilation

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