ScreenABLE: Breast Cancer Screening among Women with Disabilities from Community Identified Challenges to Community-Based Programs

Magasi, Susan; Reis, Judy Panko; Wilson, Tom; Rosen, Allison B.; Ferlin, Alli; VanPuymbrouck, Laura

doi:10.1353/cpr.2019.0039

Cited by 13 publications

(7 citation statements)

References 26 publications

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“…CBPR is inherently challenging, yet fortifying to engage in. Such challenges have been articulated in the CBPR literature (Israel et al, 2013;Magasi et al, 2019;Minkler & Wallerstein, 2008;Suarez-Balcazar et al, 2004). Some of the challenges we experienced included managing different levels of community involvement from the same individuals across the life span of the project and across leaders and gatekeepers; compensating undocumented immigrants for their work; balancing power relationships; and observing the lack of response from decision makers to the needs of the families.…”

Section: Discussionmentioning

confidence: 99%

“…The emancipatory research underpinning much of the scholarship in disability studies (Goodley & Lawthom, 2005;Magasi et al, 2019) and in gender and race studies (Akim, 2011) goes deeper than developing mutually beneficial partnerships with communities. Through this approach, community partners can make the research process transformative and liberating.…”

Section: Promoting Meaningful Engagement Of Community Residents In Re...mentioning

confidence: 99%

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Meaningful Engagement in Research: Community Residents as Co‐creators of Knowledge

Suárez-Balcázar

2020

American J of Comm Psychol

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Community psychologists have contributed significantly to the body of literature on community-based participatory research (CBPR) and its application in understanding and addressing health and community participation disparities. At the core of CBPR are mutually beneficial partnerships with communities, whereby community members' voices are heard and they become co-researchers, helping guide the research process. In this article, I argue that for community psychologists to change the landscape of community participation, health, and well-being disparities experienced by many vulnerable populations who often face multiple forms of oppression, CBPR needs to be transformative and emancipatory. Stakeholders must be meaningfully involved as co-creators of knowledge and promoters of social justice embracing a human rights agenda. Drawing from work conducted with Latinx immigrant families with youth who have disabilities, I propose the following strategies moving forward: promoting meaningful participation of community members as co-creators of knowledge; promoting meaningful conversations that matter to communities; promoting civic engagement, activism, and advocacy; promoting an assets-and strengths-based approach to research; and promoting culturally relevant interventions. Community psychologists have the opportunity to make significant contributions to addressing disparities when community residents' knowledge is valued and recognized.

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Section: Discussionmentioning

confidence: 99%

Section: Promoting Meaningful Engagement Of Community Residents In Re...mentioning

confidence: 99%

Meaningful Engagement in Research: Community Residents as Co‐creators of Knowledge

Suárez-Balcázar

2020

American J of Comm Psychol

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“… Screen for metabolic syndrome, lipid disorders, and diabetes [ 17 , 33 , 54 ]. Cancer screening per UPTSF considering accommodations needed for physical or intellectual disability [ 29 , 30 , 31 ]. Motor vehicle and wheelchair safety – may need adaptive car seat.…”

Section: Resultsmentioning

confidence: 99%

“…Cancer screening per UPTSF considering accommodations needed for physical or intellectual disability [ 29 , 30 , 31 ].…”

Section: Resultsmentioning

confidence: 99%

“…However, this care model may not be available for adults with SB [ 14 ]. Since the guideline search process was completed, there has been additional evidence of the limited preventive care for adults with SB related to reproductive health care and cancer screening [ 28 , 29 , 30 , 31 ]. Both men and women with SB may have poor understanding of their reproductive potential and face discouragement from their providers in discussing their reproductive wishes [ 28 , 32 ].…”

Section: Discussionmentioning

confidence: 99%

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Health promotion and preventive health care service guidelines for the care of people with spina bifida

Fremion

Kanter

Turk

2020

PRM

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Individuals with Spina Bifida (SB) have unique lifelong medical and social needs. Thus, when considering how to promote health and offer preventive care, providers must consider how to adapt general healthcare screening and counseling recommendations to their patients’ physical and cognitive impairments along with discerning how to monitor secondary or chronic conditions common to the population. This article provides an update on the health promotion and preventive health care guidelines developed as part of the Spina Bifida Association’s fourth edition of the Guidelines for the Care of People with Spina Bifida. The guidelines highlight accommodations needed to promote general preventive health, common secondary/chronic conditions that require monitoring such as obesity, metabolic syndrome, hypertension, musculoskeletal pain, and considerations for preventing acute care utilization for the SB population throughout the lifespan. Further research is needed to understand the effectiveness of preventive care interventions in promoting positive health outcomes and mitigating potentially preventable acute care utilization.

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Cancer stages and mortality risk of breast cancer between women with and without disabilities: A national population-based cohort study in Taiwan

Inchai,

Tsai,

Chiu

et al. 2024

Disability and Health Journal

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ScreenABLE: Breast Cancer Screening among Women with Disabilities from Community Identified Challenges to Community-Based Programs

Cited by 13 publications

References 26 publications

Meaningful Engagement in Research: Community Residents as Co‐creators of Knowledge

Meaningful Engagement in Research: Community Residents as Co‐creators of Knowledge

Health promotion and preventive health care service guidelines for the care of people with spina bifida

Cancer stages and mortality risk of breast cancer between women with and without disabilities: A national population-based cohort study in Taiwan

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