<scp>C</scp>linical <scp>P</scp>ractice <scp>G</scp>uideline on <scp>A</scp>dult <scp>D</scp>omiciliary <scp>O</scp>xygen <scp>T</scp>herapy: Executive summary from the <scp>T</scp>horacic <scp>S</scp>ociety of <scp>A</scp>ustralia and <scp>N</scp>ew <scp>Z</scp>ealand

McDonald, Christine F; Whyte, Ken; Jenkins, Sue; Serginson, John; Frith, Peter

doi:10.1111/resp.12678

Cited by 58 publications

(57 citation statements)

References 9 publications

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“…Evidence from randomized control trials has shown that the value of oxygen for refractory breathlessness is limited [3,16]. Yet our study has shown that, to a large extent, caregivers consider oxygen to have a significant role in the relief of refractory breathlessness.…”

Section: Discussionmentioning

confidence: 79%

Caregivers' Perspectives on the Use of Long-Term Oxygen Therapy for the Treatment of Refractory Breathlessness: A Qualitative Study

Collier

Breaden

Phillips

et al. 2017

Journal of Pain and Symptom Management

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word count: 242Reference count: 24 Table and ObjectivesThe aim of this study was to understand caregiver factors associated with caring for someone with LTOT from the perspectives and experiences of caregivers themselves. MethodsThe qualitative study used semi-structured interviews. The study was conducted in two states in Australia. Participants (n=20) were self-nominated caregivers of people receiving LTOT for refractory breathlessness in the palliative setting. ResultsData analyses established one overarching theme titled: 'Oxygen giveth (something to help caregivers relieve breathlessness) and oxygen taketh away (from patients who lose some autonomy)'. The theme captured caregivers' feelings of extreme distress in response to witnessing refractory breathlessness, and oxygen fulfilling several critical and beneficial roles in this context. In parallel caregivers also explicitly and implicitly articulated several downsides to the use of LTOT. ConclusionCaregivers find caring for someone with refractory breathlessness extremely distressing. The benefits of LTOT are often over-estimated while its potential harms are under-estimated. As significant stakeholders in care of people receiving LTOT caregivers should be provided with opportunities to collaborate with clinicians in evidence based decision making and efforts should be made to provide them with information and education about the most effective pharmacological and nonpharmacological strategies to manage refractory breathlessness in a palliative care setting including the appropriate use of LTOT to enable them to do so. 4Introduction and background

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Section: Discussionmentioning

confidence: 79%

Caregivers' Perspectives on the Use of Long-Term Oxygen Therapy for the Treatment of Refractory Breathlessness: A Qualitative Study

Collier

Breaden

Phillips

et al. 2017

Journal of Pain and Symptom Management

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“…Clinician beliefs and behaviors and perceived patient and caregiver net benefits reflect the understanding from the literature. [7][8][9] Strengths of the study This study attracted involvement by a wide range of specialist nurses with significant palliative care experience employed with a variety of metropolitan, regional, and rural practices across Australia. The study deliberately engaged more than one state and a range of geographical settings so that a range of beliefs and behaviors and service delivery models could be reflected in the findings.…”

Section: Discussionmentioning

confidence: 99%

“…[7][8][9] Two recent systematic reviews and a multinational randomized controlled trial (RCT) have helped to define the role of oxygen prescribed for relief of symptomatic breathlessness when the criteria for long-term oxygen therapy are not met.…”

Section: Introductionmentioning

confidence: 99%

“…16 The aim of this study is to understand the factors that guide Australian specialist palliative care nurses' initiation of palliative home oxygen, using the current international funding guidelines as a reference point. 9,17,18 Understanding why palliative care nurses initiate home oxygen prescriptions and the threshold for doing so is important if equitable, needsbased care is to underpin the symptomatic treatment of breathlessness.…”

Section: Introductionmentioning

confidence: 99%

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The Clinical and Social Dimensions of Prescribing Palliative Home Oxygen for Refractory Dyspnea

Breaden

Phillips

Agar³

et al. 2013

Journal of Palliative Medicine

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Background: Chronic breathlessness is a significant problem in palliative care and oxygen is often prescribed in an attempt to ameliorate it. Often, this prescription falls outside the current funding guidelines for long-term home oxygen use. The aim of this qualitative study was to understand the factors that most influence Australian specialist palliative care nurses' initiation of home oxygen for their patients. Methods: A series of focus groups were held across three states in Australia in 2011 involving specialist palliative care nurses. The invitation to the nurses was sent by e-mail through their national association. Recorded and transcribed data were coded for themes and subthemes. A summary, which included quotes, was provided to participants to confirm. Results: Fifty-one experienced palliative care nurses participated in seven focus groups held in three capital cities. Two major themes were identified: 1) logistic/health service issues (not reported in this paper as specific to the Australian context) involving the local context of prescribing and, 2) clinical care issues that involved assessing the patient's need for home oxygen and ongoing monitoring concerns. Palliative care nurses involved in initiating or prescribing oxygen often reported using oxygen as a second-line treatment after other interventions had been trialed and these had not provided sufficient symptomatic benefit. Safety issues were a universal concern and a person living alone did not emerge as a specific issue among the nurses interviewed. Conclusion: The role of oxygen is currently seen as a second-line therapy in refractory dyspnea by specialist palliative care nurses.

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“…The ODP was continuous in 65% of patients, 87% used flows of less than 2 L/min. The device for administration of O 2 consisted of a nasal cannula (87%), and the system provider was the O 2 concentrator (58% [5][6][7][8] . Esta prática permite otimizar a ocupação dos leitos, reduzir o período e o número de internações e, consequentemente, os custos hospitalares [7][8][9][10][11] .…”

Section: Lista De Abreviaturas E Siglasmentioning

confidence: 99%

Aspectos clínicos, laboratoriais e de custos da população de crianças e adolescentes em oxigenoterapia domiciliar acompanhados pelo Instituto da Criança HC-FMUSP

Munhoz¹

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Clinical Practice Guideline on Adult Domiciliary Oxygen Therapy: Executive summary from the Thoracic Society of Australia and New Zealand

Cited by 58 publications

References 9 publications

Caregivers' Perspectives on the Use of Long-Term Oxygen Therapy for the Treatment of Refractory Breathlessness: A Qualitative Study

Caregivers' Perspectives on the Use of Long-Term Oxygen Therapy for the Treatment of Refractory Breathlessness: A Qualitative Study

The Clinical and Social Dimensions of Prescribing Palliative Home Oxygen for Refractory Dyspnea

Aspectos clínicos, laboratoriais e de custos da população de crianças e adolescentes em oxigenoterapia domiciliar acompanhados pelo Instituto da Criança HC-FMUSP

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