Scoping the Field: Identifying Key Research Priorities in HIV and Rehabilitation

O’Brien, Kelly K; Wilkins, Annette; Zack, Elisse; Solomon, Patricia

doi:10.1007/s10461-009-9528-z

Cited by 52 publications

(56 citation statements)

References 36 publications

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“…It is crucial to understand the extent of disability among people living with HIV in high-prevalence settings in order to inform choices regarding care, policy and research. These findings add to the growing body of literature that calls for attention to disability in high HIV-prevalence settings [4][5][6][7]16,[56][57][58][59]. In particular, this scoping review demonstrates that much is already known about impairments, activity limitations and participation restrictions experienced by people living with HIV in hyper-endemic countries, but that key gaps in understanding remain.…”

Section: Discussionmentioning

confidence: 72%

“…Many people living with HIV who can access and tolerate ART are living longer lives [3]. However, increased longevity can be accompanied by a diverse range of health-related challenges [3], which may be termed disability [4][5][6][7]. This changing experience calls for a shift in how we conceptualize HIV in order to inform responses within this new era [4,8].…”

Section: Introductionmentioning

confidence: 99%

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HIV-Related Disability in HIV Hyper-Endemic Countries: A Scoping Review

Hanass-Hancock¹,

Regondi²,

Egeraat³

et al. 2013

WJA

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Background: In the era of enhanced access to ART, many people live longer lives but with episodes of disability resulting from HIV, HIV-related conditions, and/or as side-effects of ART. It is crucial to understand the extent of disability among people living with HIV in high-prevalence settings to inform choices regarding care, policy and research. This article presents the results of the first scoping review to examine the extent, nature and range of disability among people living with HIV in HIV hyper-endemic countries. Methods: This scoping review used the World Health Organization's International Classification of Functioning, Disability and Health (ICF) to conceptualize "disability". A systematic search of electronic databases was conducted using specific keyword and subject heading combinations. Identified publications were screened and reviewed according to inclusion/exclusion criteria. Data were systematically extracted and reviewed for quality. Extracted data were reviewed for patterns related to methods or results. Results were aligned with the corresponding ICF code. Results: Forty-one articles were included, reporting data from 38 unique studies. Most (78%) of the studies were conducted in South Africa; five in Botswana, one in Zimbabwe and Lesotho, and none in Swaziland. Almost all studies recruited more females than males. All studies except two were in adults. The studies indicate that people living with HIV experience a variety of disabilities. Impairments in body structure/function comprise the majority of data, with particular focus on mental function. Data on activity limitations and participations restriction were limited, however, they were recorded. They indicate severe impact on people's life and possible adherence. Conclusions: We argue that the time has come to elevate the focus holistically on health and life-related consequences of living with HIV and to integrate disability into the discussions and approaches to HIV care.

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Section: Discussionmentioning

confidence: 72%

Section: Introductionmentioning

confidence: 99%

HIV-Related Disability in HIV Hyper-Endemic Countries: A Scoping Review

Hanass-Hancock¹,

Regondi²,

Egeraat³

et al. 2013

WJA

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“…Scoping reviews are literary searches that are used to provide a preliminary assessment of the size and scope of a body of literature as well as identify strengths, weaknesses and gaps in the research 18 19. Scoping reviews have been used to summarise bodies of literature on concussion rehabilitation strategies20 and on other health-related issues like Alzheimer's disease,21 HIV rehabilitation22 and in settings such as trauma centres23 and intensive care facilities 24. Because research on concussion education programmes is relatively new, a scoping review is ideal to determine the state of these education programmes.…”

Section: Introductionmentioning

confidence: 99%

An examination of concussion education programmes: a scoping review methodology

et al. 2015

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ObjectivesThe primary purpose was to review the literature on concussion education programmes. The secondary purpose was to inform knowledge translation strategies for concussion researchers and practitioners. Design Research on concussion education programmes is relatively new. As a result, the current study implemented a scoping review methodology, which is a type of literary search used to provide a preliminary assessment of the size and scope of a body of literature, as well as identify strengths, weaknesses and gaps in the research. Methods A five-stage process for conducting a scoping review was followed for this study: (a) identifying the research questions, (b) identifying relevant studies, (c) identifying the study selection criteria, (d) charting the data and (e) reporting the results. Results Concussion education programmes have been developed and implemented with populations ranging in age from 9 to 49 years and have used interactive oral presentations, educational videos and computer-based learning programmes. Although the content of these programmes varied, the topics generally addressed salient aspects of concussion injury and recovery. Quantitative instruments have been the preferred methods for assessment. Conclusions Education programmes aimed at improving participants' long-term concussion knowledge, behaviours and attitudes of concussions are needed. Researchers must consider using a knowledge translation framework to enhance concussion education programmes. The application of such a framework can lead to novel and interesting ways of disseminating information about concussive injury and recovery.

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“…6,[8][9][10] The methodology has enabled the collation of information from a variety of sources and people. The findings will provide baseline information on the state of Canadian SCI rehabilitation service delivery, while identifying trends and gaps in these services, thus leading to a critical re-evaluation of Canadian SCI rehabilitation practice.…”

Section: Discussionmentioning

confidence: 99%

Using scoping review methods to describe current capacity and prescribe change in Canadian SCI rehabilitation service delivery

Craven

Balioussis

Verrier

et al. 2012

The Journal of Spinal Cord Medicine

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Objective: To describe the methodology used to conduct a scoping review of spinal cord injury (SCI) rehabilitation service delivery in Canada, and to explain the reporting process intended to advance future service delivery. Evidence acquisition: A SCI rehabilitation framework derived from the International Classification of Function, Disability and Health was developed to describe the goals and interprofessional processes of rehabilitation. An adapted Arksey and O'Malley (2005) methodological framework was used to conduct a scoping review of SCI rehabilitation services in Canada. Data were obtained from multiple relevant sources via survey (N = 3572 data fields) from 13 of 15 Canadian tertiary SCI rehabilitation sites, systematic reviews, white papers, literature reviews, clinical practice resources, and clinicians. Multidisciplinary teams of content experts (n = 17), assisted with data interpretation and validation by articulating practice trends, gaps, and priorities. Evidence synthesis: The findings will be presented in an atlas, which includes aggregate national data regarding impairment and demographic characteristics, service utilization, available resources (staff and capital equipment), specialized services, local expertise, and current best practice indicators, outcome measures, and clinical guidelines. Data were collated and synthesized relative to specific rehabilitation goals. The current state of SCI rehabilitation service delivery (specific to each rehabilitation goal) is summarized in a report card within three domains, knowledge generation, clinical application, and policy change, and specifies key 2020 priorities. Conclusion: These findings should prompt critical evaluation of current Canadian SCI rehabilitation service delivery while specifying enhancements in knowledge generation, clinical application and policy change domains likely to assist with achievement of best practices by 2020. The net result of these barriers to information exchange is the absence of a prior comprehensive account of SCI rehabilitation service delivery in Canada. The Rehabilitation Environmental Scan (E-Scan) project is part of a translational research program intended to describe current SCI rehabilitation service delivery in Canadian tertiary rehabilitation centers and to create a related national dataset. This manuscript seeks to describe the methodology used to conduct a scoping review of SCI rehabilitation services in Canada and explain the atlas reporting process intended to inform and advance future SCI rehabilitation service delivery. Methods Defining the research questionThe primary objective of this scoping review was to describe current SCI rehabilitation services for individuals with subacute and chronic SCI admitted to 13 tertiary SCI rehabilitation sites in Canada. This objective was defined by the investigators following discussion with the members of the rehabilitation arm of the SCI Solutions Translational Research Network, a national group of scientists and clinical thought leaders, frustrated by th...

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Scoping the Field: Identifying Key Research Priorities in HIV and Rehabilitation

Cited by 52 publications

References 36 publications

HIV-Related Disability in HIV Hyper-Endemic Countries: A Scoping Review

HIV-Related Disability in HIV Hyper-Endemic Countries: A Scoping Review

An examination of concussion education programmes: a scoping review methodology

Using scoping review methods to describe current capacity and prescribe change in Canadian SCI rehabilitation service delivery

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