Science as a Cultural Human Right

Porsdam, Helle

doi:10.9783/9781512822946

Cited by 2 publications

(1 citation statement)

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“…At the societal level, since science is a specialized field of study and an integral part of social, economic, cultural, and political life, the right to science includes translating or curating scientific knowledge into language that the public can easily comprehend (Scheifele et al, 2021). For example, since 2003, Danish law has codified researchers' duty to disseminate their research and participate in public debates, as the public funds research conducted at universities, either directly or indirectly (Porsdam, 2022).…”

Section: Legal Basis For Actionsmentioning

confidence: 99%

Navigating equity in global access to genome therapy expanding access to potentially transformative therapies and benefiting those in need requires global policy changes

Lee,

Sawai

2024

Front. Genet.

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In December 2023, the US Food and Drug Administration and the UK Medicines and Healthcare Products Regulatory Agency granted the first regulatory approval for genome therapy for sickle cell disease. This approval brings hope to those suffering from this debilitating genetic disease. However, several barriers may hinder global patient access, including high treatment costs, obtaining informed consent for minors, inadequate public health infrastructure, and insufficient regulatory oversight. These barriers reflect the structural inequalities inherent in global health governance, where patient access often depends on social and institutional arrangements. This article addresses concerns around informed consent, treatment costs, and patient access, and proposes corresponding policy reforms. We argue that these discussions should be framed within a broader global context that considers social and institutional structures, global research priorities, and a commitment to health equity.

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Section: Legal Basis For Actionsmentioning

confidence: 99%

Navigating equity in global access to genome therapy expanding access to potentially transformative therapies and benefiting those in need requires global policy changes

Lee,

Sawai

2024

Front. Genet.

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The right to science in the context of the deformation of the international law-order under sanctions

Shugurov,

Pechatnova

2023

Obŝestvennye nauki i sovremennostʹ

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The paper assesses restrictive measures in the field of international scientific cooperation. The authors consider unilateral sectoral «science sanctions» as a large-scale phenomenon in modern international relations; analyze how the internationally recognized human right to science is ensured under sanctions conditions; substantiate a new direction of human rights activities. It is concluded that anti-Russian restrictive measures in the field of international scientific cooperation violate the basic right to science. The conclusion is formulated that scientific institutions become active subjects of extraterritorial violations of this right. The complication of the sanctions regime in the scientific sphere, including the introduction of horizontal and vertical restrictive measures, indicates the use of science for geopolitical purposes. The novelty of the study lies in the conceptualization of the deformations of the international legal order in the field of human rights as a result of the negative consequences of unilateral restrictive measures in the field of science.

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Science as a Cultural Human Right

Cited by 2 publications

References 0 publications

Navigating equity in global access to genome therapy expanding access to potentially transformative therapies and benefiting those in need requires global policy changes

Navigating equity in global access to genome therapy expanding access to potentially transformative therapies and benefiting those in need requires global policy changes

The right to science in the context of the deformation of the international law-order under sanctions

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