School Functioning in Adolescents With Inflammatory Bowel Diseases: An Examination of Disease and Demographic Correlates

Carreon, Samantha A.; Bugno, Lindsey; Wojtowicz, Andrea A.; Greenley, Rachel Neff

doi:10.1093/ibd/izy026

Cited by 21 publications

(17 citation statements)

References 31 publications

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“…Most absences for IBD are for hospital appointments (online supplementary table 3). This is consistent with previous studies,26 30 33 34 demonstrating IBD-related clinic visits were the most frequent form of healthcare utilisation. Overall the majority (62%) report that at least ¾ of their absences were due to IBD.…”

Section: Discussionsupporting

confidence: 93%

“…Increasing age and the use of monoclonal therapy are predictors of reduced school attendance. This is consistent with Carreon et al ’s30 study examining adolescents with IBD, greater disease activity (p<0.01 in child report and p=0.03 for parent report) and older age (p=0.03 for child report and p=0.02 for parent report) were the most significant predictors of poorer school attendance.…”

Section: Discussionsupporting

confidence: 91%

“…Studies that specifically examine IBD also demonstrate these patients miss more school than their healthy peers,25–27 although this is not necessarily linked to poorer educational outcomes 28. Lower school/college attendance rates are correlated with disease, demographic and psychosocial variables 25 29 30. However, disease factors/treatments are not predictive of worse educational outcomes 25 28 30 31…”

Section: Introductionmentioning

confidence: 99%

“…Lower school/college attendance rates are correlated with disease, demographic and psychosocial variables 25 29 30. However, disease factors/treatments are not predictive of worse educational outcomes 25 28 30 31…”

Section: Introductionmentioning

confidence: 99%

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Children and young people with inflammatory bowel disease attend less school than their healthy peers

et al. 2020

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ObjectiveChronic diseases, such as inflammatory bowel disease (IBD), can impact negatively on education and social development. Examining the impact of IBD on school/college attendance for children and young people (CYP) is vital to provide targeted support to patients, families and schools.MethodsWe performed a cross-sectional survey to determine the school/college attendance rates, the reasons for absence related to IBD and facilitators or barriers to school/college attendance. In a subset of patients followed up locally, we performed a detailed review of hospital attendance data to assess healthcare burden.ResultsTwo hundred and thirty-one questionnaires were given to CYP with IBD aged 5–17 years. Response rate was 74% (final sample 169). The median school/college attendance rate was 92.5%, significantly lower than all children in England (95.2%). 39.6% of children with IBD were persistently absent, defined nationally as missing 10% or more of school. Only five children (3%) had a 100% attendance record. Increasing age and use of monoclonal therapy were predictors of poor school attendance. Concerns about feeling unwell at school/college, access to toilets, keeping up with work and teachers’ understanding of IBD are the main issues for CYP with IBD. There was a significant negative correlation between number of days in hospital and school attendance.ConclusionIBD has a significant impact on school/college attendance, with hospital attendance, disease burden and school difficulties being major factors. Employing strategies to minimise healthcare burden and developing a partnership between health and education to support children with IBD will serve to facilitate school/college attendance.

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Section: Discussionsupporting

confidence: 93%

Section: Discussionsupporting

confidence: 91%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Children and young people with inflammatory bowel disease attend less school than their healthy peers

et al. 2020

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“…There is evidence that patients with IBD have lower academic status than healthy controls [4] , [5]. Studies on school functioning have shown that children with IBD tend to have poorer school attendance [6]-especially when having a high disease activity [7] and also appear to participate less in extra-curricular activities [8]. Therefore, improving these aspects of life, especially in young IBD patients, should be taken into consideration for holistic care.…”

Section: Introductionmentioning

confidence: 99%

Real-world data about emotional stress, disability and need for social care in a German IBD patient cohort

Kubesch¹,

Boulahrout²,

Filmann³

et al. 2020

PLoS ONE

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To date, there is insufficient insight into inflammatory bowel disease (IBD)-associated stress, recognized disability, and contact with the social care system. We aimed to assess these parameters in IBD patients and a non-IBD control group, who were invited to participate in an online survey developed specifically for this study (www.soscisurvey.de) with the help of IBD patients. 505 IBD patients and 166 volunteers (i.e., control group) participated in the survey. IBD patients reported significantly increased levels of stress within the last six months and five years (p<0.0001) and were more likely to have a recognized disability (p<0.0001). A low academic status was the strongest indicator of a disability (p = 0.006). Only 153 IBD patients (30.3%) reported contact with the social care system, and a disability was the strongest indicator for this (p<0.0001). Our study provides data on stress and disability in a large unselected German IBD cohort. We showed that patients with IBD suffer more often from emotional stress and more often have a recognized disability. As only about 1/3 of the patients had come into contact with the social care system and the corresponding support, this patient group is undersupplied in this area.

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Psychological Aspects of Inflammatory Bowel Disease in Children and Adolescents

Plevinsky

Hommel²

2023

Pediatric Inflammatory Bowel Disease

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School Functioning in Adolescents With Inflammatory Bowel Diseases: An Examination of Disease and Demographic Correlates

Abstract: Demographic factors and age in particular were more consistent predictors of school functioning than disease factors. Special attention to older youth and those with active disease may be important to ensure optimal school functioning.

Cited by 21 publications

References 31 publications

Children and young people with inflammatory bowel disease attend less school than their healthy peers

Children and young people with inflammatory bowel disease attend less school than their healthy peers

Real-world data about emotional stress, disability and need for social care in a German IBD patient cohort

Psychological Aspects of Inflammatory Bowel Disease in Children and Adolescents

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