School Attendance in Childhood Cancer Survivors and Their Siblings

French, Amy E.; Tsangaris, Elena; Barrera, Maru; Guger, Sharon; Brown, Raeford E.; Urbach, Stacey; Stephens, Derek; Nathan, Paul C.

doi:10.1016/j.jpeds.2012.06.066

Cited by 94 publications

(100 citation statements)

References 24 publications

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“…Consultations included assistance with homebound, 504 planning, or special education/pull‐out help“Family advocate” from a statewide advocacy organization. No credentials or professional discipline specified, but advocacy organization provided training to designated family advocatesFamilies and classroom teacher, separatelyBruce, Newcombe, & Chapman (2012) ‘School liaison program’ included assessment of child and family strengths, resources, and educational needs; development of a plan to address support needed; established links and strengthened collaborations between health and education systemsSchool liaison.…”

Section: Supplementary Informationmentioning

confidence: 99%

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Academic Continuity and School Reentry Support as a Standard of Care in Pediatric Oncology

Thompson

Christiansen

Elam

et al. 2015

Pediatric Blood & Cancer

119

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Clinicians agree that return to school after diagnosis promotes the positive adjustment of children and adolescents with cancer; however, the school reentry process can present challenges. The aim of this review was to critically evaluate the literature on school reentry support for youth with cancer. Seventeen publications were identified. School reentry services were well-received by families and educators; increased teacher and peer knowledge about childhood cancer; influenced peer and educator attitudes toward the patient; and improved communication and collaboration between patients/families, school, and the healthcare team. Evidence supports a strong recommendation for school reentry support for youth with cancer.

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Section: Supplementary Informationmentioning

confidence: 99%

“…Children and adolescents diagnosed with cancer are frequently absent from school because of treatment and treatment‐related side effects . Absences can be a problem both during and after treatment but are most pronounced in the year after diagnosis .…”

Section: Introductionmentioning

confidence: 99%

Academic Continuity and School Reentry Support as a Standard of Care in Pediatric Oncology

Thompson

Christiansen

Elam

et al. 2015

Pediatric Blood & Cancer

119

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“…Previous studies have demonstrated that some childhood cancer survivors face more difficulties in psychosocial life achievements, such as education or marriage, compared to control groups with no cancer experience [4][5][6][7][8][9][10][11][12]. Concerning occupational outcomes, most of the studies conducted have reported higher rates of unemployment among childhood cancer survivors than among their siblings or the population as a whole [4,6,[13][14][15][16][17][18].…”

Section: Introductionmentioning

confidence: 99%

Employment in French young adult survivors of childhood leukemia: an LEA study (for Leucemies de l’Enfant et de l’Adolescent—childhood and adolescent leukemia)

et al. 2016

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“…In Ontario, 19% of 15–21 year olds are treated at a pediatric cancer centre, 57% at an adult Regional Cancer Centre (RCC), and 24% at a community hospital (unpublished data). Most care settings do not have specific programs focused on addressing the differences in disease biology and response to therapy [20–22] or the risks for toxicity and late effects of therapy including infertility [23–25] cardiac, pulmonary or other treatment repercussions [26–28], secondary malignancies [29, 30], as well as the unique health and psychosocial issues faced by AYA, such as difficulty reentering school or the workforce, and forming or maintaining romantic relationships [31–33]. Despite recommendations that AYA cancer therapy be administered by experts in AYA oncology [34], AYA comprise a small percentage of patients seen in either pediatric or adult centres [2, 34].…”

Section: Introductionmentioning

confidence: 99%

The Initiative to Maximize Progress in Adolescent and Young Adult Cancer Therapy (IMPACT) Cohort Study: a population-based cohort of young Canadians with cancer

et al. 2014

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BackgroundCancer is the leading cause of disease-related death in adolescents and young adults (AYA). Annual improvements in AYA cancer survival have been inferior to those observed in children and older adults. Prior studies of AYA with cancer have been limited by their focus on patients from select treatment centres, reducing generalizability, or by being population-based but lacking diagnostic and treatment details. There is a critical need to conduct population-based studies that capture detailed patient, disease, treatment and system-level data on all AYA regardless of treatment location.Methods/DesignWe will create a cohort of all AYA (aged 15–21 years) at the time of diagnosis with any malignancy between 1992 and 2011 in Ontario, Canada (n = 5,394). Subjects will be identified through the Ontario Cancer Registry and the final cohort will be expanded to include 2012 diagnoses, as these data become available. Detailed diagnostic, treatment and outcome data for those patients treated at a pediatric cancer centre will be provided by a population-based pediatric cancer registry (n = 1,030). For 15–18 year olds treated at adult centres (n = 923) and all 19–21 year olds (n = 3396), trained abstractors will collect the comparable data elements from medical records. We will link these data to population-based administrative health data that include physician billings, hospitalizations and emergency room visits. This will allow descriptions of health care access and use prior to cancer diagnosis, and during and after treatment.DiscussionThe IMPACT cohort will serve as a platform for addressing questions that span the AYA cancer journey. These will include determining which factors influence where AYA receive care, the impact of locus of care on the types and intensity of cancer therapy, appropriateness of surveillance for disease recurrence, access to clinical trials, and receipt of palliative and survivor care. Findings using the IMPACT cohort have the potential to lead to changes in practice and cancer policy, reduce mortality, and improve quality of life for AYA with cancer. The IMPACT data platform will be a permanent resource, accessible to researchers across Canada.

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School Attendance in Childhood Cancer Survivors and Their Siblings

Cited by 94 publications

References 24 publications

Academic Continuity and School Reentry Support as a Standard of Care in Pediatric Oncology

Academic Continuity and School Reentry Support as a Standard of Care in Pediatric Oncology

Employment in French young adult survivors of childhood leukemia: an LEA study (for Leucemies de l’Enfant et de l’Adolescent—childhood and adolescent leukemia)

The Initiative to Maximize Progress in Adolescent and Young Adult Cancer Therapy (IMPACT) Cohort Study: a population-based cohort of young Canadians with cancer

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