Scanning the conceptual horizons of citizenship

Bartlett, Ruth

doi:10.1177/1471301216644114

Cited by 46 publications

(63 citation statements)

References 25 publications

(34 reference statements)

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“…12 Calls for recognition of the human rights of people living with dementia have been growing louder in recent years. 2 This ranges from studies on what it means to be a citizen with dementia 16,17 to evaluations of communities' activities 18 and evaluations of dementia-sensitive infrastructure such as transport and the design of public and commercial buildings. 2 This ranges from studies on what it means to be a citizen with dementia 16,17 to evaluations of communities' activities 18 and evaluations of dementia-sensitive infrastructure such as transport and the design of public and commercial buildings.…”

Section: Introductionmentioning

confidence: 99%

Dementia Friendly Communities in England: A scoping study

Buckner

Darlington

Woodward

et al. 2019

Int J Geriat Psychiatry

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Objectives To describe the characteristics of Dementia Friendly Communities (DFCs) across England in order to inform a national evaluation of their impact on the lives of those affected by dementia. Methods DFCs in England were identified through online searches and Alzheimer's Society records. A subsample (n = 100) were purposively selected for in‐depth study based on online searches and, where necessary, follow‐up telephone calls. Data collection and analysis were guided by a pilot evaluation tool for DFCs that addressed how DFCs are organised and resourced and how their impact is assessed. The evidence was predominantly qualitative, in addition to some descriptive quantitative information. Results Of 284 DFCs identified, 251 were defined by geographical location, while 33 were communities of interest. Among 100 sampled DFCs, 89 had been set up or started activities following policy endorsement of DFCs in 2012. In the resourcing of DFCs, statutory agencies and charities played an important role. Among DFC activities, awareness raising was cited most commonly. There was some evidence of involvement of people living with dementia in organisational and operational aspects of DFCs. Approaches to evaluation varied, with little evidence of findings having effected change. Conclusions DFCs are characterised by variation in type, resourcing, and activities. England has policy endorsement and a recognition system for DFCs. These can be important catalysts for initiation and growth. A systematic approach to evaluation is lacking. This would enable DFCs to be consistent in how they demonstrate progress and how they enable people living with dementia to live well.

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Section: Introductionmentioning

confidence: 99%

Dementia Friendly Communities in England: A scoping study

Buckner

Darlington

Woodward

et al. 2019

Int J Geriat Psychiatry

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“…Another issue found to be important for people with dementia and their family caregivers for participating in leisure activity was accessibility to places they could visit (Innes, Page, & Cutler, ). A recently explored aspect of DFCs is the concept of social citizenship (a sense of belonging in a place) as a human rights issue for people with dementia (Bartlett, ; Charras, Eynard, & Viatour, ; Clarke & Bailey, ). Finally, supportive and responsive environments in long‐term care settings, but not yet in community settings have been shown to positively affect the health, everyday activities, quality of life, and well‐being of people with dementia (Chaudhury, Cooke, Cowie, & Razaghi, ; Landmark, Kirkehei, Gundro Brurberg, & Merete Reinar, ; Woodbridge et al, ).…”

Section: Introductionmentioning

confidence: 99%

Dementia‐friendly community indicators from the perspectives of people living with dementia and dementia‐family caregivers

Huang

Chiu

et al. 2019

Journal of Advanced Nursing

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Aims To identify dementia‐friendly communities’ indicators and their current conditions in Taiwan from the perspectives of people with dementia and dementia‐family caregivers. Design This qualitative study explored the opinions and experiences of people with dementia and dementia‐family caregivers regarding dementia‐friendly communities. Methods Participants (16 people with dementia and 20 family caregivers) were recruited from neurological clinics, day care centres for people with dementia and support groups for family caregivers in the Taipei community from July ‐ October, 2016. Data were collected in face‐to‐face interviews, which were tape recorded and transcribed verbatim. Transcripts were analysed by Miles and Huberman's (1994) guidelines. Results Similar indicators for dementia‐friendly communities were identified in Taiwan as in other countries, including dementia‐friendly care services, dementia‐friendly hospitals, dementia‐friendly community environment, dementia‐friendly transportation, dementia‐friendly stores and shops, dementia friendly people, integrated dementia‐related information and community contribution‐ and ‐involvement opportunities for people with dementia. However, Taiwanese people with dementia and family caregivers described no emphasis on the potential of people with dementia to contribute to developing dementia‐friendly communities and more top‐down expectations for the government's role. Conclusion These indicators can be a guide for developing and evaluating dementia‐friendly communities in Taiwan. Differences between Taiwan and Western developed countries in indicators for dementia‐friendly communities can be further explored. Community nursing assessment, interventions, and evaluation based on these dementia‐friendly communities indicators can be further developed. Impact This study developed indicators for dementia‐friendly communities in an Asian country. These indicators can be used as a guide for developing and evaluating dementia‐friendly communities.

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“…In dementia studies we see the constructs of social citizenship as helping understand the practice of citizenship in ‘ordinary places’ (Bartlett : 456). Exploring the macro and micro‐practices of social citizenship enables a more specific understanding of how social rights, obligations and social structures can condition an individual's access as an equal to communities.…”

Section: Introductionmentioning

confidence: 99%

Shifting dementia discourses from deficit to active citizenship

Birt

Poland

Csipke

et al. 2017

Sociology Health & Illness

102

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Within western cultures, portrayals of dementia as 'a living death' are being challenged by people living with the diagnosis. Yet dementia remains one of the most feared conditions. The sociological lens of citizenship provides a conceptual framework for reviewing the role of society and culture in repositioning dementia away from deficit to a discourse of agency and interdependence. Awareness of cognitive change, and engaging with the diagnostic process, moves people into a transitional, or 'liminal' state of uncertainty. They are no longer able to return to their previous status, but may resist the unwanted status of 'person with dementia'. Drawing on qualitative studies on social participation by people with dementia, we suggest that whether people are able to move beyond the liminal phase depends on acceptance of the diagnosis, social capital, personal and cultural beliefs, the responses of others and comorbidities. Some people publicly embrace a new identity whereas others withdraw, or are withdrawn, from society to live in the shadow of the fourth age. We suggest narratives of deficit fail to reflect the agency people with dementia can enact to shape their social worlds in ways which enable them to establish post-liminal citizen roles. (A Virtual Abstract of this paper can be viewed at: https://www.youtube.com/channel/UC_979cmCmR9rLrKuD7z0ycA).

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Scanning the conceptual horizons of citizenship

Cited by 46 publications

References 25 publications

Dementia Friendly Communities in England: A scoping study

Dementia Friendly Communities in England: A scoping study

Dementia‐friendly community indicators from the perspectives of people living with dementia and dementia‐family caregivers

Shifting dementia discourses from deficit to active citizenship

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