Sankofa

Reynolds, Nancy; Ofori-Atta, Angela; Lartey, Margaret; Renner, Lorna; Antwi, Sampson; Enimil, Anthony; Catlin, Ann Christine; Fernando, Sumudinie; Kyriakides, Tassos C.; Paintsil, Elijah

doi:10.1097/qad.0000000000000725

Cited by 21 publications

(19 citation statements)

References 45 publications

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“…It might reflect that disclosure is a gradual process and caregivers’ recognition about its completion is sometimes vague. This means that long-term periods’ cooperation between caregivers and healthcare providers, as the previous studies pointed out [ 27 , 28 ].…”

Section: Discussionmentioning

confidence: 84%

Disclosure to HIV-seropositive children in rural Zambia

et al. 2018

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BackgroundCare of children living with HIV comprises various issues, some considered challenging. One of the challenging areas is the serostatus disclosure to HIV-positive children. This study describes the current situation of HIV disclosure among rural children in Zambia and examines the socio-demographic factors promoting disclosure.MethodsWe used a mixed method approach applying both quantitative and qualitative methods to obtain comprehensive picture of HIV serostatus disclosure for children. Data were collected in Mumbwa district, Zambia (2010–2012), included 57 clinical records of children older than 5 years old. We examined children’s age, gender, and cohabitation status with their parents, caregivers’ level of education and income, and the relation between children and caregivers. Logistic regression model was applied to examine associations between disclosure and socio-demographic characteristics. Semi-structured interviews with 50 caregivers and 22 HIV-positive children were conducted to qualitatively investigate attitude towards disclosure and support needed.ResultsFull disclosure was completed in 17 out of 57 (29.8%) patients. Median ages of patients in disclosed group and non-disclosed group were 10 and 9, respectively (IQR 8.0–13.0, 7.0–11.25). In univariate analyses, older age and male gender has positive relation to the completion of serostatus disclosure. In logistic regression models, cohabitation status with patients’ mothers showed positive correlation to the completion of serostatus disclosure. In the interviews with caregivers, all caregivers said that disclosure of serostatus is a necessary process and good for their children, while actual serostatus disclosure rate was low.ConclusionSerostatus disclosure to HIV-seropositive children is not prevalent in Rural Zambia. Although further researches would be desirable, increased support to caregivers would be beneficial.Electronic supplementary materialThe online version of this article (10.1186/s12887-018-1252-2) contains supplementary material, which is available to authorized users.

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Section: Discussionmentioning

confidence: 84%

Disclosure to HIV-seropositive children in rural Zambia

et al. 2018

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“…WHO has also published the Guideline on HIV Counseling for Children up to 12 years of Age for adaptation in countries ( 5 ). Existing pediatric disclosure models and tools, such as children’s books, videos, job aides, and curricula, aim to assist health care providers, caregivers, and/or children in disclosure ( 37 – 39 ). These models and tools also address some of the health outcomes identified in this review.…”

Section: Discussionmentioning

confidence: 99%

“…These models and tools also address some of the health outcomes identified in this review. For instance, the SANKOFA disclosure model, which is family-centered, clinic-based, and health worker facilitated, addresses adherence, viral and immunologic markers, and mental health outcomes ( 39 ).…”

Section: Discussionmentioning

confidence: 99%

The Impact of Disclosure on Health and Related Outcomes in Human Immunodeficiency Virus-Infected Children: A Literature Review

Odiachi

2017

Front. Public Health

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This review explores the association between pediatric human immunodeficiency virus (HIV) disclosure and health and related outcomes among children living with HIV. A multi-stage process was used to search for relevant articles on the ISI Web of Knowledge database. Fifteen articles met the inclusion criteria. Five major outcomes emerged from children’s knowledge of their HIV-seropositive status: physical/physiological outcomes; adherence to antiretroviral therapy; psychosocial outcomes; sexual and reproductive health, including HIV prevention outcomes; and disclosure of status by the children. Disclosure of a child’s HIV status to the child has value in terms of positive health outcomes for the child, such as better adherence and slower disease progression—albeit the different studies did not always reach the same conclusions, and some suggest negative health outcomes, such as increased psychiatric hospitalization. Yet, there does not seem to be a systematic or coherent system for child disclosure. One recommendation from this review, therefore, is for government and program policies and guidelines that will promote child HIV disclosure in order to address the current low rates of disclosure in sub-Saharan Africa (SSA). More rigorous and longitudinal studies on the outcomes of disclosure, with larger sample sizes, and in SSA, are also needed.

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“…Beck-Sague et al [36] reported promising results of an ongoing quasi-experimental trial of a culturally adapted paediatric HIV disclosure intervention in Haiti, which included healthcare worker training, education for youth, capacity-strengthening for caregivers, a scheduled disclosure session and postdisclosure support for care-givers and youth. Equally reporting on an ongoing study, Reynolds et al [37] presented the background, process and methods of a collaborative approach to develop and evaluate a paediatric HIV disclosure intervention in Ghana; challenges and implications are also reported. Brandt et al [38] undertook a qualitative study to identify the key components of a child-friendly ‘disclosure book’ to assist caregivers and healthcare workers in Namibia with paediatric HIV status disclosure.…”

mentioning

confidence: 99%